One step forward, two steps back

It seems like I have a few good, days where I can function , then two or three days where I am really sick. I am spent hours and hours researching Lyme disease, and came to realize there are so many different symptoms.

Right now, I have brain fog, forget things,burning pain in my legs and arms. I can't handle loud sounds or bright lights. Today I felt like I had the flu, just been throwing up all day. I am trying to have a positive attitude but some days it's really hard. Not to mention, I even forget how to talk or what to say.

I tell myself I have to fight through all of this, but days like today , I just felt like it was never going to get better. I have been on doxy for over two months, and swear some days the medication just makes it worse. I even tried the gluten free diet for a while , I don't feel it helped me at all. I do drink tons of water, and eat fresh fruit and veggies, but most days still feel like I am losing a battle.

I don't feel my doctor is any help, all I ever get is just take the medication. I know I need to see a Lyme doctor because the regular doctor doesn't really understand what is happening to me. I do detox, and I think it helps, but some lyme days are just really bad days. I hope they find a cure for this terrible disease.

just me.

I take doxy twice daily, neproxin for the pain and inflamation, also I am on collidone silver, I have a new bottle of the turmeric I can add it next week. My doctor said to try one new medication a week so that is what I have been doing. I have a hard time sleeping I have bad spasm at night that wake me up, even if I take a nap , they usually wake me up.

In my opinion my doctor should text me for co infections, but since I had a positive read for the lyme though my blood work, I kind of get the feeling her office does not want to deal with me. Also my vitamin d and b is very low, so I have to take 50,000 vitamin d a week, and 1,000 vitamin b a day.

I am just confused as what to do next.

just me

Thank you, I just emailed every Lyme doctor is three states, I can't find one by me in Illinois. I am going to have to save up some money so I can go see them. At this point I just need to know that I am heading in the right direction.

I am so sorry you are feeling this way and I can totally relate. I actually posted a thread with the same title a couple weeks ago. Some days I feel great, and then some days I feel like I have been hit by a bus. It really is a horrible disease, and I too with there was a cure.
For me, a combo of antibiotics, antidepressants, detoxing, and therapy have been very helpful.

Keep being proactive about your health and you will start feeling better more often!

Hi Just me, I am happy for you that u found and have a llmd appt comng up next month.
You are a very strong woman, I can relate, and Lyme is a monster, trying to kick our butt so bad..

I am sorry for what u r going through tooo, you can tell u are tough. We all just keep plugging away at this nightmare the best we can, it is too outrageous isnt it, lyme affects us differntly, co infections, etc
in my wildest dreams, I would never think the body is this complex and so vulnerable.

No one else has the capacity to understand.... big hugs, hope today is at least a little easier 4 u.


oh yeah, about tumeric, you mean the poweder kind, only form of it I know of
you take it orally, or in a detox foot bath? thanks. That stuff can stain clothes, towels. I use it in cooking.....

I just have a few really bad days. The pain has been horrible , just horrible. I am learning to accept the things I can't change, and try my best to just get up everyday. I really feel like so many of these doctor do not know what they should be doing.

I sure hope so, because my family doctor doesn't know to much about Lyme, and I feel like it's a waste of time going to see her.

thank you.