SEVERE neuropathy and constant burning. Is it Lyme??

Hello,

I have been having severe pins and needles sensations to my left foot. The entire foot feels as if it is on fire. I am very sensitive to touch- if I touch anywhere on that leg it reproduces the pain in the foot. I can barely walk. There is also a deep aching feeling. The pain initially was only in my heel but now it is the entire foot.  Neurontin helps but not enough. I am very young but have been on disablity now for 2 months due to this pain. I now am beginning to have similary neuropathy and pain to my right foot.

The left foot pain and burning is unbearable.

Does this look like symptoms of lyme disease? Anyone experience something similar?

Thanks!!

Neuropathy can be caused by Lyme, Bartonella and unfortunately, many other conditions as well. I have bartonella also and have foot pain, pins and needles and other symptoms. Do you have any other symptoms?

I don't know if I'd jump to Lyme or co-infections unless there were other factors like a tick bite, a recent flu-like illness, a past case of under-treated or untreated Lyme, other symptoms that line up with Lyme and co etc.

With the added info that Traveler posted below I would definitely be evaluated for co-infections and treated for Lyme if this started after a known tick bite. I hope you are able to find a good LLMD.

Post Edited (Summer3) : 11/22/2012 10:56:44 AM (GMT-7)

Thanks everyone for your responses. I was thinking bartonella as well. Traveler, THANKS FOR YOUR POST. I do have an appt with a LLMD's Nurse Practitioner in February. It is the earliest I was able to get an appt. In the mean time, I found a doc who agreed to start me on antibiotics. Im on amoxicillin (1.5g 2x/day) and biaxin (500 2x/day). The pain has gotten much worse since Im on antibiotics (approx. 1.5 weeks). I am wondering if we are treating this correctly. My bartonella H. is negative but I want to treat for a BLO regardless. I know that levAquin is really good for bartonella, but I have muscle/tendon weakness and other problems so I think it would be dangerous. What other antibiotics are best for bartonella? If I know what antibiotics to get I can probably have him write for it.
I am kind of desparate as this is debilitating pain. I also have cold sensations to my legs and feet, esp. the toes. Has anyone experienced that? Im really concerned.

Thanks so much!!!

Hi Livelife, I just read your post. I've been on this forum for quite a while but just now presenting with severe neuropathy and diagnosed with small fiber neuropathy. We're not sure if the lyme/bartonella infection is still present or if the damage is done. I do not however have pain in the feet which is the usual place neuropathy presents. Are you seeing a neurologist and have they done the most common neurological testing?

Lyme and bartonella are indeed causes of neuropathic pain so don't let anyone tell you otherwise. However, it is such a bizarre illness that it can present itself in totally different ways in each person.

So glad to see that you are scheduled to see an LLMD but don't be surprised if they refer you to a neurologist (if you haven't already). Is this the first and only symptom you have of lyme??

Hi.. I am pretty new here too. I was wondering about the neuropathy
feelings too. My llmd called and said my results showed IGM 23 positive only withno coinfections. I am on doxy 300 mg a day. However my real main
symptoms started out as numbness tingling in legs and feet with such exhastion...now as the symptoms fluctuate, I seem to have a feeling of a rubber band wrapped around my knees and stabbing shooting pains on side of knees down leg. i also get a 'rug burn' feeling in back od knees with a little puffiness....does anybody else get this? Because I was fine up until I got bit overnt in bed end of sept. Id love to hear from anyone with leg symptoms. Thx