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Thanksgiving in the hospital

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Posted 11/24/2012 1:00 PM (GMT 0)
Hi all,

Just need to vent here since it's hard for me to express my feelings to any of my family or friends sometimes. We spent Thanksgiving day in the hospital with my mom. She goes for IV antibiotics daily, and on the days she doesn't go, her LLMD gives her orals to take instead. For some reason, she is fine when given IV Ceftin, but the pill form makes her vomit uncontrollably (I'm talking for hours and hours with no way to stop, we have no choice but to take her to the ER so they can give her fluids and anti-nausea meds). On Thursday she decided to take the oral form knowing it upsets her stomach and sure enough, we spent the better part of the day in a hospital room.

I just feel so sad. Just so down. I keep a strong front around people, and make the best of the situation, but then when I get into my bed at night, I cry myself to sleep. I can't help it. We were all excited about spending the day with our whole family, and instead I had frozen waffles for dinner that night. I can't wait for this all to be over someday.
Posted 11/24/2012 2:46 PM (GMT 0)
Well that's not a fun way to spend Thanksgiving :(. I'm sure that was very frustrating and upsetting. Since it's the weekend do you think you could still get together with your family to go shopping and out to eat or maybe cook a few favorite dishes to eat at home tonight or tomorrow and rent some Christmas movies?

I'm sure it's very frustrating for your mom as well. Speaking from my own perspective as a Lyme patient with a severe case, I know when I'm ruining things for other people due to symptoms popping up. That's part of the reason I like to be alone all the time. I'm also known for pushing through things and not backing down off my protocol even if it's making me sick.

Does your mom have a PICC line? It's unusual that she goes in for IV antibiotics. Usually you can do them yourself at home.
Posted 11/24/2012 2:50 PM (GMT 0)
What a horrible thing! My heart goes out to you and your mom. But please remember that it is a long slow journey to getting well with lyme. I'm thinking someone needs to speak with the doctor about possibly taking your mom off the oral form. Throwing up is causing way more stress to her body than the benefits of taking could possibly do. There are just too many meds out there that they could try. Has she improved at all with this combination? or has she tried other combinations and this is the best?

I cannot imagine how horrible your mom felt, both physically and emotionally knowing that Thanksgiving was spent in the ER. I hope she is having a better day today. Our thoughts are with you that things start to go in the right direction.
Posted 11/26/2012 8:38 PM (GMT 0)
@Summer3 thanks so much. We did get to spend a lot of the weekend together, all of us, and that does help. I know my mom feels badly and I'd never let on that I was upset because I don't want her to think I'm upset with her. I'm upset with LYME! I hate Lyme for what it's done to so many people, my mom included. She does not have a PICC line but the LLMD is only about 20mins drive from our house, so she doesn't mind going every day. Plus she has a lot of friends who drip every day and I think it's a good support system for her.

@springsjean she spoke to her doctor and will never take the ceftin again. She does well with the antibiotics in general considering how hard it must be on the body to deal with all these medicines on top of the Lyme, so it just must be a bad one for her. Thank you for your lovely words and I hope that you are feeling well also!
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