when does it stop

Hi guys, guess I'm just getting tired of fighting the fight, this has been the worse 7 yrs of my and my wife's life, I Thank God How understanding she is with me, I see a llmd Dr, my glands have doubled in size in the last yr and hurt all the time, this is my lung dr that has told me this, I know he wants to do another biopsy on them, I did this 4 yrs ago and Nothing, this Dr doesn't think It's lymes, I have been to the mayo and they said I Did not have lymes and where I live It's not here in this state, MO, I'm tired of going To drs who don't beleive lymes doesn't excist, guys I don't know what I'm trying to say just that I'm tired of fighting a disease where you have to prove your sick but you know your sick and the people that taken a oath to help you just Dnt beleive, my llmd Dr is Great I know i cant leave him he hasn't given up on me, I just want to go into his office one of these day's and say Thank you and his staff and tell them its over and I'm healed. Well I know this all doesn't make sense, its 11pm and i Slept most of the day and I hope I can Sleep.

Have you been tested for coinfections? Swollen glands sound more like bartonella.

I have said it over and over again but it is A LONG SLOW JOURNEY and it becomes part of your life unfortunately. We have had to slow down tremendously but you can still get feeling terrific again. Is your LLMD telling you ways to boost your immune system as well.

I feel for you. It is so so discouraging when you feel sick every single day. I hope that you can get on the upswing soon.

Hi there,

IMO, I would see a LLMD to r/o lyme's disease and the co-infections. Are you taking a benzodiazepine (antianxiety meds) or have you ever taken a fluoroquinolone (Levaquin, Cipro)? These meds can cause very similar symptoms as Lyme's disease. Sometimes we have to be our own advocate because most docs don't understand certain diseases and the effects of meds.
Wishing you and your wife the very best.

summer16/Patty xo

just had to vent, went out, ( I dont know if chem trails in the air or what, but so many bad drivers out there) so my anxiety increased

I had to go pharamcy to get my anti anxiety meds. a bit ironic eh?

it is close enough I can still do it. GOd help me though
a lot going on all at once...

i loathe this disease, but love u guys.

Hi 7yrsandcounting,

I am so sorry you have been suffering for so long.  I, too, was on an anti-anxiety med (xanax) to help with a horrible reaction to the antibiotic Levaquin in 2008.  Valium, Ativan, Xanax, Klonopin, etc. are meant to be used short term, in most cases.  These meds can cause the same symptoms as Lyme disease.  It is so hard to distinguish which is which sometimes.  There are good sites to read more info on the side effects of benzodiazepines just to make sure you are not also dealing with interdose withdrawals from the Valium.  I just thought I would share.  I am not saying you don't have Lyme disease by any means.  Being informed of any med you put in your mouth is a must.

summer16/Patty  xo

Hi 7yrsandcounting!
Howdy neighbor! I live in Arkansas!

Welcome to our forum!! I'm so sorry for all that you and your most wonderful family have been through so far! What we & our families go through is very similar to what Cancer patients and their families go through - only they have the recognition of their disease!

If you haven't yet, please do read through our "New to Lyme? Start here!" thread that wits at the top of the forum. It's packed full of informative links, great information, symptom lists - as Lyme rarely travels by itself, and even some questions your LLMD may need to be asked!

You should not have been in treatment for 7 years and be this ill! You should have a reduction in symptoms soon after starting effective treatments. You can see what symptoms you are having and what symptoms are generally considered from which infections by going over the symptom lists in the "New to Lyme?" thread. That could be one reason you have not had any real progress.

Another possibility is that abx won't work for you. I had that happen. I spent a full 12 months on abx only to get worse - a lot worse! The first two months after stopping abx, I spent bed ridden trying to recover. I turned to herbal treatment and have had good progress since the third month of my Lyme treatment, and 2 months after starting my Bartonella treatment. This is truly amazing when I consider that I've had these infections for over 40 years without any adequate treatment.

Now for that wonderful, supportive wife of yours. There is a site called "Lyme Spouse" (www.lymespouse.org/) that is designed just for those who have a loved one dealing with these infections! It's for their support, not ours. It explains what we are going through, some of our odd behaviors at times and what may trigger it, and more. Something I would highly suggest that you two check out! Your daughter would do well to check it out as well. I'm sure it will help her to explain what's going on with Grandpa to her son.

You can get through this to a brighter side of life! It will take a lot of hard work and a lot of diligence, but healing is out there!