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Babesia Duncani and Lyme, with unknown co-infection! HELP

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Posted 1/25/2013 3:18 PM (GMT 0)
I have lyme, babesia duncani and a unknown co-infection... I've been fighting this for over a year. Could possibly had this for over 5 years. Seeing a LLMD for 8 months. I can't seem to shake it.
Symptoms for me are tendonitis like pain in arms, tingling and numbness between shoulders, neck stiffness, I get very cold, now have connective tissue disorder - middle finger will turn completely white when exposed to extreme cold weather. Air hunger. Dry eyes at night, butt bone hurts to sit on for 20 minutes or longer, bones ache, finger tips hurt, calves hurt, achilles hurt, night heat - no sweat, foot hurts underneath, back of head hurts - pressure and like being squeezed, face tingling on left side, numbness and tingling on lip, left ear is painful to touch. Lymph-nodes hurt in my neck and on each side of my breast, random shooting pains. I have a weird vibrating sensation in my body. My veins will hurt to touch, I did have vasculitis in my brain but it has cleared for now. All of these symptoms come and go on a 4 to 6 week cycle lasting 2 weeks. Half of my symptoms stay 24/7.
I'm not sure what to do. I am seeing Holistic Dr. with Lyme Dr. and Internal Medicine Dr.
What are you taking?
Can anyone help me?
Posted 1/25/2013 6:42 PM (GMT 0)
Sore feet and swollen lymph nodes are classic Bartonella!! It's a tough one to shake. You need an anti-protozoal/malaria med for it. But you can get rid of it. Could be why your not feeling better yet.
Posted 1/25/2013 6:43 PM (GMT 0)
I have babesia Duncani and its my main problem. I dont have the classic night/day sweats and chills. Just some off balance feelings, cardio issues/chest pain, and head pressure.

I hope your LLMD has you on Mepron and a macrolide. Biaxin is stronger and works better for me. Also, my LLMD has me on Bactrim DS which also targets Babesia.

You need to try:

salt/c
Cryptolepsis
Sida Acuta
Byron A-Babs herb (have to get from LLMD)
Sweet Worm Wood Artemesia and Artemisinin at HIGH dose. The 200mg a day doesnt cut it. Work your way up to around 1200mg.

Also, parasites are a big thing. Maybe try parastroy or humaworm. I am on parastroy.

Last, my llmd put me on cholestyramine as a binder to the toxins.

I am also on:

8000mg of Vitamin D3
Alpha Lipoic Acid
up to 6 grams of salt/c spread throughout the day
Samento, Banderol, and Cumanda
Florastor and a probiotic
Grapefruit Seed Extract
Olive Root Extract


I have been treating since October. Once I added the salt/c, things began to really change and improve. If you decide to use it, use Raw Pink Himalayan Crystal Salt. Dont buy salt tabs that lay in your stomach and burn away at the lining. Also, use powdered vitamin C. Happy healing!
Posted 1/25/2013 9:08 PM (GMT 0)
Thanks for the quick reply...
I did doxy for 6 weeks, then IV Rocephin for 5 weeks, after that it has been:
Cefuroxime Axetil 500mg x 2 or 7 days a week.
Atovaquone-Proguanil 250 mg x 2 for 5 days a week (We did up to 4 a day and now back to 2)
Azithromycin 250 mg x 1 for 5 days a week (I think this should be higher dose -- x 2)
Tinidazole 500 mg x 2 a day (weekends only)
Vit. C 2000 mg
Multi Vit
Fish Oil
Axtaxanthin (16 mg a day) This really help with muscle pain and strength!
Turmeric Formula x 1 a day
4Life Transfer Factor x 2 a day
Probiotics x 2 a day
Artemisinin x 2 a day
Digestive Enzymes x 6 a day
Teasel 5 drops x 2 a day
Just stopped:
Lloyd's Formula 30 drops x 2
Lymogen 30 drops x 2
I may add them back in... ??
Neem Leaf x 6 day

Adding back to protocol ---
Sovereign Silver 2 tsp x 3
Purple Defense Resveratrol 50mg x 1 a day

I'm exhausted! I finally broke down today and call a LLMD who has researched Babesia WA1- Duncani for years. Expensive but it may be my only hope.
I am having connective tissue issues, my ANA is positive but not high 1:160.
I have a very low white blood count every few months... currently 3.3
Absolute Neutrophils are 1284L
Waiting a current CBC blood test to come back.
Also had a complete blood testing for Connective Tissue Disorder done...
I started using the Pink Him. Salt several months ago.
I main concern is the weird sensation in my left neck area, lymph-nodes are swollen, I get this strange head pain in back. My back at night has this weird seizing feeling and then every 4 to 5 weeks it is tingling non stop. My muscles feel like I've worked out extra hard and I can barely use my left arm to lift -- pain! My bones ache, The Ear pain is really strange, very tender to touch every 4 to 5 weeks, I have this cycle of pain with pain in between. Oxygen in finger test is 72 to 94 varies...
Oh, I forgot to mention, I've lost 20+ pounds and when I am in the white blood count -- low period, I seem to drop weight fast.
I am also off balance at times,
I did have a form of dementia last spring, it finally got better, but I still get clumsy and forgetful. I have ringing in my ear and with eye twitching.
I go into stares if I am exhausted, I also have migraines with sharp bee stings.
At times hot isn't hot enough! I get extremely cold, ice cold.
I'm sure there is more...
Suggestions on what I'm doing and what you're doing is great...
thanks....

Post Edited (lymearita) : 1/25/2013 2:18:27 PM (GMT-7)

Posted 1/26/2013 2:40 AM (GMT 0)
lymearita,

Dr. Horrowitz is a famous LLMD and he was recently interviewed about Babesia Duncani. The video is very informative. Here is the link:

http://link.brightcove.com/services/player/bcpid2034996720001?bckey=AQ~~%2CAAAACbynBME~%2ClLbqcXvJ0PCVUSHzVNjHBqI0ZMP_8msh&bctid=2020635580001


Also, welcome to the forum! We are sorry that you have to join us because of your illness, but we are glad that you have found us. You will find many friendly and helpful people here. We look forward to your contributions, and feel free to ask questions along the way.

I would encourage you to click on the "New to lyme?.... Start here" thread on the top of the column on the left hand side of your screen. It gives a lot of good information that is good to know.

We are looking forward to hearing of your progress!

Don
Posted 1/26/2013 5:57 AM (GMT 0)
lymearita,

Welcome to our forum! There are a lot of posts in this forum that touch on many symptoms you have mentioned. Look through them, there are wonderful people here with some valuable insight. I agree with Shabbychic, sounds like you have bartonella. The bottom of my feet hurt so much, especially in the evening. They are slowly getting better.

Also, did you go thru the "New to Lyme" section. There is great info and articles there. I am sorry you are suffering, but you did find a great place with some very supportive people here!
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