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Posted 2/25/2013 5:13 AM (GMT 0)
I just finished watching the movie. I couldn't stop crying, and I am so mad now. This is just wrong, people are dying. Why??? this is just plain crazy. Im very scared now, I know I shouldn't let that scare me, but I am. does it mean I have a bigger chance to have MS later on in life? and one main question, as Im a married person, is it sexually transmitted? that worries me :( cry
Posted 2/25/2013 7:47 AM (GMT 0)

Hi iwantmyhealthback,

I watched the movie to, cried too...
I think though it's important to keep faith that you'll get through this. Some healed members of this forum come back very regularly, or are all the time on this forum with good news of being healed, and with a lot of good advice.

My Dr is convinced it can be transmitted sexually - a considerable percentage of the partners of his patients tested positive, but don't show any symptoms, and feel great. It was a shock for me too to hear this. I got my husband tested (PCR) and it was negative (it's an ambiguous feeling knowing that a lot of the testing has false negatives).

Marie 

Posted 2/25/2013 8:20 AM (GMT 0)
ugh tell me about it. im so scared my 3 kids might have it from me! they r young so i cant tell yet. they tested neg but i didnt even recognize the name of the test and congenital lyme might not have antibodies anyways...
i saw that movie and i was like whoa, i think thats what i have...
it really helped me put the puzzle together
Posted 2/26/2013 1:58 AM (GMT 0)
I was very scared when I first watched it also. However, one thing to keep in mind is that some of the people on it actually got better. There wasn't a lot of follow-up info. at the end of the movie showing that. It's a very long, slow process, but people DO heal from this.

And WWJD is absolutely right, we know what to watch for in our spouses and children. I have 2 children and worry that I may have passed this to them in-utero. However, I know what to watch for and have a great LLMD that will treat children if needed. That's soooooo many steps ahead of where most of us were when we got sick.
Posted 2/26/2013 4:20 PM (GMT 0)
thank you guys for replying :)
Posted 2/26/2013 5:28 PM (GMT 0)
I'm afraid to watch it because I'm trying to stay in a positive place :( bad enough I think I need to get my heart checked out. It was checked back in October but that was before I knew I had Lyme.

Every night I pray to God to keep me another day for my son...I know we will all get through this. I'm concerned about those who are walking around for years on end not knowing what is wrong with them. Very sad.

I live in the DC area and mark my words when I'm totally better...key word is WHEN...I want to advocate on the Hill. Our voices need to be heard!

Let's try to stay positive so we can be a testimony for those behind us that will need us because we will be better! I'm determined and have have claimed the victory for us all :)

Posted 2/26/2013 9:09 PM (GMT 0)
this is a great group of positive peeps.

I never watched this film until my llmd wanted me too
I was bawling at the dr office saying no, I cant

( emotionally seemes too much) he said it is waht you are going through right now

and what mandy, dana showed, that is in a huge part of what I am going through, not able to talk well, walk, exhausted, that look dana had sitting in the audience chair,preping for concert,  while they were working, it was only for a second, she looked up, like she did not want to show it

that is me most of the time.

so I am very grateful for the film, something visaul to identify.

I woke up this mornig feeling like crap, but thought I am still here
I know I will be alive for a long time, I just want to feel normal, and alive like i use too.
Posted 2/26/2013 9:15 PM (GMT 0)
yeah, when I can read, I have books like the power, magic,

wayne dyer, doreen virture, louise hay, that kind of stuff, take with a grain of salt, but

I try to stay positive, well more like hopeful that things will get better soon

I write things down what i am grateful for,

and thinking it, what I do have, it helps

yeah we can help each other here by being as positive as can
when we vent, that gets out of system too, so that is a good thing

as long as we dont dwell and stay in it for a long time.-the specfic issue, I mean, in my opinion.


   I appreciate this site and u all, and electricity and my lap top and internet connection.

Posted 2/26/2013 9:18 PM (GMT 0)
Hope2behealthy,
that's what I felt when watching Dana. She doens't look sick, but you're feeling the 'same' thing she does. Feeling empty, that look in her eyes. I recognized it. Sitting there, not having the force to move from your seat.
I watched the film last week, I don't regret it at all.
Posted 2/27/2013 11:48 AM (GMT 0)
It actually helped me (after I bawled my eyes out for a few hours), because it made me realize that finding an LLMD was imperative. I now feel like I'm on the right track, even though I have a long road ahead.

It is horrible, and it makes me frustrated that so many of us have to go through this, especially without the support we need. I've recently been reading about Plum Island and its connection to Lyme disease as biological warfare. At first I thought the notion was crazy, but you start to realize, something is very wrong and there has to be a reason as to why this disease is so very controversial, and why the tests aren't improving, etc etc.

Sorry for bringing up more negativity but its really been getting to me lately. :-/
Posted 2/27/2013 3:49 PM (GMT 0)
I wish there was some kind of action group in my country, but I can't even find a support group over here.

I've got more than enough help from you guys  yeah  , but I was just curious if a support group even existed over here, just had a look and it's a no. I'll be stuck with all of you smilewinkgrin smilewinkgrin (or all of you with me) - LOL

Posted 2/27/2013 4:14 PM (GMT 0)
i am happy to be stuck with you :)
Posted 2/27/2013 5:08 PM (GMT 0)
thank you blush   - me too! :-)
Posted 2/27/2013 7:40 PM (GMT 0)
Wow. I had been avoiding watching since I heard of it last summer because I just couldn't deal with the negativity. I finally watched it today. It is more frightening than I thought.

Does anyone else find it highly suspicious that Alan McDonald suddenly got Alzheimer's and has forgotten ALL of his research? Seeing as though the man spent the past 25 yrs. doing research on the Lyme/Alzheimer connection, don't you think that he would be the first to recognize his symptoms of Alzheimer's? I find that truly suspect. The way the medical boards have persecuted LLMD's.

God help us all. I hope I live to see the day when the truth comes out.
Posted 2/27/2013 8:21 PM (GMT 0)
I watched it when I suspected I was sick with Lyme. I cried too. How can this be happening in this day and age?? The truth will come out one day.

I have found a few support groups in my area. My LLMD will be speaking at one in March.

I hope I am feeling decent and would like to attend. I could really use a local support group.

I feel like not too many of our family members and friends understand this disease. We've told them all to watch this movie, and a few have and then really start to get it.

I am thankful for this forum! A lot of strong, amazing fighters here :)

 

Posted 2/27/2013 8:29 PM (GMT 0)
@Shabbychic I completely agree with you on the Alan MacDonald thing. That is just too strange not to be suspicious.
Posted 2/28/2013 6:10 PM (GMT 0)
my husband thinks Im crazy, but everytime I have the opportunity to talk to somebody, I tell my story. some people don't even know what lyme is. actually saturday Im going to participate in a lyme awareness walk, I will do whatever is in my power to tell people about it. it's crazy how many people are suffering without knowing what's wrong with them. I hope you guys are having a good day :) greetings from houston :)
Posted 2/28/2013 6:16 PM (GMT 0)
I'm (hopefully will be feeling well by May) going to give a talk at our Monthly meeting. It is in front of 200 people (!). but knowing that we live in an endemic area and what we are all going through on here - I can't not tell people. I realize this now even though it is hard. There are some big important people in that meeting that can make more of a difference then I can
Posted 3/1/2013 3:32 PM (GMT 0)
I'm trying to get better about talking about it. I'm naturally reserved, and I mainly to keep it to myself. After a lot of soul searching, I realize now is that I felt ashamed.  I'm working on getting past that.

I see getting sick with Lyme as a sort of spiritual assignment. I can help others and raise awareness.

I hope this makes sense; I am getting a little foggy now :o)

Posted 3/1/2013 7:32 PM (GMT 0)
yeah muscle weakness, laundry det bottle or a gallon of water is heavy to lift

not altheltic like i use too

but determination, spirit, I am

we are super strong

def. stronger than most for sure! when we get through this, we can get through anything
Posted 3/1/2013 8:37 PM (GMT 0)
Haha Well ms. Beautiful, I must admit to you at my heavy weight size of 95 lbs, a gallon of water has always been heavy for me to lift LOL - no amount of athleticism will give me that.
Posted 3/2/2013 7:51 PM (GMT 0)
opugirl- are you in the wash, dc. area- I would love to hear you talk or find out about a local support group?
Posted 3/2/2013 9:22 PM (GMT 0)
Sort of. I am in the Wilmington area. Unfortunately it is a corporate mandatory meeting. But we are a regulated site (aka guards and barbed wire fence lol). BUT at least I can do that to get word out to people.
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