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Posted 3/7/2013 3:44 PM (GMT 0)
So now that all is said and done and I get to start treatment....I'm TERRIFIED. I mean really. I had such a strong rxn to cephalexin and it isn't even SUPPOSED to be effective against lyme....so what is it going to be like when I start taking steroid big brother for neuro-lyme.....Yikes! Anyone have experience with nuerolyme and ceftin?
Posted 3/8/2013 1:53 AM (GMT 0)
Poor thing, I will pray for you. How often will you get treatment? When do you start? Praying for ya!
Posted 3/8/2013 2:02 AM (GMT 0)
Start tonight. Starting with orals for the neurolyme. Keflex was effective so now I'm on ceftin. Doc wants me to do 100mg doxy and 500 mg ceftin for 5 days and then double it for 5 weeks and then I go back April 15th. Glad to hear everything went well with Ms. RS today. Isn't she awesome!
Posted 3/8/2013 2:12 AM (GMT 0)
It'll be okay, you can do this. Just start slow and back off of the Ceftin for a few days if the herxing gets too bad. I have neuro-lyme and was on Ceftin. I generally just felt awful for the first 5 months of treatment no matter what I was on and what I did, so I'm not sure if it was the Ceftin or not. My LLMD took me off of it because I was just feeling really bad and she wanted to take things slower. And now I'm getting ready to start Babs treatment so we're focusing on that and Bartonella. The only meds. I'm on for lyme right now are minocycline and GSE. I'm on Rifampin and Bactrim for Bartonella.
Posted 3/8/2013 3:29 AM (GMT 0)
just take it one day at a time and remember the reasons and the goal.
Posted 3/8/2013 4:10 AM (GMT 0)
Nspeedracer gave good advice!

Opugirl- everybody has different response to the treatment. I wouldn't sweat it. You are a fighter. You will do fine.

I am praying for you as well!

Don
Posted 3/8/2013 7:50 AM (GMT 0)
It's the beginning of better times in the future. Just dive into it, you will indeed do fine!

good luck!

Marie
Posted 3/8/2013 12:46 PM (GMT 0)
It's okay to be scared, it's a scary disease. With you started treatment you will have some rough days still, but you are heading toward recovery. This is what I tell myself, I may be sick now , but I will get better. Hang in there.


justme
Posted 3/8/2013 6:19 PM (GMT 0)
Hey Opugirl,

People here are right, everyone reacts differently to different meds. I took ceftin as did my daughter and it wasn't that different from anything else. But everyone reacts differently. It also matters where in your treatment you are. You just starting this and early on in abx treatment, you will herx harder. Words of advice... go slow! I always give myself 3 days whenever I introduce something into my system. Even if I had taken it before, I still start slow. I increase 1 additional pill every 3 days. This way I know what is affecting me and how. And remember to detox!! That's so important. The worse the amount of die off, the worse the herx can be. Remember not to be a martyr... listen to your body, and if it is too much, back off a little. Good luck!
Posted 3/8/2013 7:04 PM (GMT 0)
nspeedracer, I'm going to add this to my affirmation wall at work, "just take it one day at a time and remember the reasons and the goal." Thanks!!!

Hugs opugirl!!!!!
Posted 3/9/2013 6:54 PM (GMT 0)
Opugirl....how are you doing on Ceftin? I hope your handling it okay.

I have to go really slow with everything because I can really herx. I am on month 3 of treatment and will be starting Ceftin next in addition to Doxy and Plaquenil. I always feel scared too when starting anything new because you just don't know how you will react. But as everyone said on here you have to keep remembering the reasons and the goal...I like this :)

My LLMD says that it's like a balancing act, when you feel more stable then start or up the dosage. I am seeing / feeling improvements, it can be frustrating how slow this all is though. Detoxing daily has really made a difference for me, juicing, healthy diet, tons of water and sleep.

One day at a time!

 

Posted 3/9/2013 7:08 PM (GMT 0)
So far so good. Palpitations, headaches but bearable. And today...I have SO much energy... I'm only on day two so I know I can't get too excited. I've been drinking green smoothies in the AM and lots of H20. Making sure to take my vitamins. I GOT HUNGRY today for the first time since OCTOBER... Now granted it wasn't like full blown stomach rumbly but definitely I need to eat...Achy here and there but not too bad! And when I checked my heart rate today it was 80 bpm...that is the lowest it has been in over a month. I felt like it was slower this morning and I guess I was right. I guess my body likes the ceftin (for now)
Posted 3/9/2013 7:16 PM (GMT 0)
That's great news!! Isn't it unreal how excited you get when you have a lot of energy and feel HUNGRY?! I always tell my husband, so this is what it feels like - - because it's been 10 months of being very ill.

Enjoy your weekend :)

Posted 3/9/2013 7:45 PM (GMT 0)
Opugirl, I'm on Ceftin! I started about 2 wks. ago. So far I've been good! I mean, I'm exhausted, but other than that no major herxing, no major issues. I was on doxy and felt terrible, plus I was getting hives, etc. so I had to come off it. I'm on Rifampin and Ceftin now. As far as abx. treatment goes, I'm not really having many major issues. Try not to worry! As everyone else has said, we all react differently to drugs. Some people have been on doxy for years! I couldn't tolerate 1 wk.! Who the heck knows why. It's crazy. I take 500 mg. 2 x a day. I take it with GSE pills, my multi's, Vit. D., and probiotic and I haven't even had any issues with yeast.

It is scary for all of us. I HATE being on drugs. I really do. But you have to look at it like it's something you need to get through. The quicker you start, the quicker you can finish. And God knows, if the Ceftin doesn't work out, there are many alternatives you can take in its place. I'm glad for you to finally be starting some abx in addition to all the other stuff you've already been doing. You are young and you can beat this!!
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