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Second Week On Doxy - Can I do a Western Blot While on abx??

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Posted 3/25/2013 8:16 PM (GMT 0)

Hi Guys,

My first post, try to keep it short.

about a year ago I started to feel weird burning (Ben-Gay ointment) type feeling over the arms, legs. and feet.  After a year, it moved into the the joints of knees and elbows.  I then sought treatment. 

After several blood test, my doctor informed me that he thinks he has the answer, he said my Igm came back and he thinks I have Lyme.  All of my symptoms do point that way.  I am taking 100 mg of Doxycycline twice a day.  First week was living hell.  Head hurt, alot of brain fog, extremely fatigued.  There may be some anti inflammation properties as the inflammation has been somewhat relieved.  I changed my diet a few days before taking the Doxy.  I stopped sugar, bread, and carbs.  I have a feeling that it is also my diet that is keeping the inflammation down.

I nono cheated this past Sunday and had a Chai Latte from Starbucks!! MMMmmm so delicious!  And had one biscuit.  I could feel inflammation heat sensation in my elbows immediately after consuming it. Bummer. smhair

So, I will be seeing my PCP who is not Lyme Literate on Wednesday.  I have orders for Western Blot but I think I should be off of abx prior to this test.  What do you think?  I am going through my insurance first and then Igenex if I dont think it is accurate.

Posted 3/26/2013 12:43 PM (GMT 0)
I too have burning in my legs and feet with the Lyme. It started more as a tingling and now is a burning feeling with tightness especially in my thighs making my legs feel heavy and rubbery.

If you had a positive IgM then you should really be seeing an LLMD for proper treatment. The dose of doxy you're taking is too low. I'm actually surprised you're herxing on that low a dose. I only did with 300 and 400mg. The fact you did herx is another sign you have Lyme.

IGenex has a more sensitive Western Blot Lyme test without a doubt. My Lyme-specific bands that were positive on the IgM were 31,34, 41 and 83-93 and 39 was IND. With another lab I had zero + bands on the IgM. Do the IGenex test if you still have any doubts though a positive test already shouldn't give you any. You don't need to be off abx for the WB according to IGenex. Good luck.
Posted 3/26/2013 3:45 PM (GMT 0)
Thank you ToddPaul and Chrisnj,

Very helpful info!  I am taking pro-biotics and will do the Wester Blot anyway.  After reading your posts I have found a LLMD and made an appt for April 4th!!!  I am so excited!  I have hope because God is for me!

I also wanted to point out that there is less burning when my diet is limited.  So, ToddPaul, why dont you take a vacay from bread,sugar, and caffeine and see if it will make a difference?  Oh, and I will be doing the Igenex, they are sending me a Lyme Panel kit.  But will hold off until the LabCorp comes back.

Thank you both for your kindness!  I am 40 yrs old, I think I am pretty, I have so much ambition left in me! I see myself continuing work and my hobbies, I see myself running after grandchildren (one day), I see myself traveling, I see myself serving my local church and community.  And with Gods help I will come back stronger than ever before!

Posted 3/26/2013 5:11 PM (GMT 0)
God is with you! I like that you are so positive, smilewinkgrin God bless you!
Posted 3/26/2013 11:24 PM (GMT 0)
mustardseed,

There is no guarantee that the Western Blot result will come back positive if you have Lyme Disease-no matter what you do. There are several reasons for this opinion of mine, but I will not go through that now. On the other hand, it won't hurt to have the test done. It is debatable as to whether or not you should stop your ABX treatment to do the test.

I also like your positive attitude. God is surely with you.

Don
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