Severe Brain Pressure / Brain on Fire

I have had a pressure sensation (globally) in my head since first becoming sick last February. I have the burning sensation right now. It usually happens after I run. I dont know why. The pressure never goes away.. it is always at least a 1 or 2, never a 0. On my bad days it reaches a 10. Sometimes I can feel blood pulsating through my veins in my head... many other weird neuro symptoms. I barely have any body pain. Just all in my head and arms. I also have very weird sores/bumps on top of my head. I have tested positive for babesia duncani, mcyoplasma, coxsackie, hhv6, ebv and a few strands for lyme. ART testing showed a high viral and fungal load. My head pressure has gotten better I guess since starting treatment in October, although sometimes I'm not sure. I see my doctor Wednesday and I will let you know what route I am taking next.

Also, oregano oil on top of my head helps a lot.

Head pressure can be indicative of Babesia. Are you being treated by an LLMD?

Hi aklyme. The babesia would be a separate test, if you ordered it through igenex. Supposedly, coinfections are even harder to detect then lyme. Many LLMD's don't even suggest testing for it b/c they are so inaccurate. The good news 'sort of' is that many LLMD's treat babesia with something you can get online called arteminisin (spelling?) from artemisia annua. Very effective but lots of cautions with it too. RBC count has to be monitored very carefully with it as does liver enzymes. Buhner is now recommending cryptolepis, and sida for babesia - or specifically a combo tincture of CSA which is available at woodlandessence. Pretty affordable compared to a lot of other stuff.

Thank you very much for the information opugirl!
I am still trying to wrap my head around the Lyme Disease diagnosis and the amount of patients being treated with Lyme Disease.....what in the heck's going on?

Is it possible that most everyone has Lyme Disease in their blood but it doesn't really manifest into an illness until some type of physical trauma occurs, where the disease manifests itself?

http://news.discovery.com/history/archaeology/iceman-mummy-lyme-disease-120228.htm

Post Edited (aklyme) : 4/8/2013 5:10:40 PM (GMT-6)

Yes I have the head pressure terrible and have to look forward to sleeping pills to get relief.....My eyes are also bad too. Which makes typing and things on the computer terrible.......my Dr told me to not exercise for more than 20minutes and that is just walking the dog. she said anymore will make the bugs go crazy and make them worse so hard core exercise is out for me........like for the last year.....it is terrible cuz I was a big exercise person..........life is hard with this disease.......I take the Byron White drops 2 different kinds......waiting for some relief. I finally know someone else that has this problem. hang in there

I got my Babesia test through IGeneX and its came back positive for the Duncani strain. My LLMD was actually surprised because I don't have the classical night sweats, chills, etc. I have heard from a lot of people the head pressure can be from Babesia, Mold (mycotoxins), Bartonella, viruses, and Lyme itself... maybe everything mixed up into what big inflammatory storm?

The first time I took artemisinin I woke up the next day sore all of my body, took a detox bath, and it went away. That was the most sore my body has ever been.

Besides the chronic head pressure/burning sensation with random ice pick sensations, I have noticed other scary things..

-poor short term memory
-word block
-trouble saying what I am thinking
-dizzines when standing up
-anxiety (especially social anxiety) has skyrocketed
-heart fluttering
-scary/weird looking eye floaters that look like miscroscopic bacteria
-after glow of images (ex: next to the yellow line on the road there is always a faint blue line)
-when looking into the sky, i see tiny little flickers of stuff moving around/flashes of light

October-Nov was..... 200mg Doxy 2x a day

Nov-Jan was .....200mg Doxy 2x a day, Mepron 2 tsp twice a day, Zithromax 600mg tab at night +herbals

Jan-Fe was .....Bactrim DS, Mepron, Biaxin 1000mg, Cholestyramine 2x a day, A-Bab +herbals

Feb-Now- Bactrim DS, Mepron 3 weeks on, 1 week off, Cholestyramine, A-V, A-FNG, Chlorella + herbals (Vitamin D3, salt/c, sida acute, artemesia, worm wood extract, ginko biloba, pinella, samento, Parastroy and a few others)


Too be honest, I didn't notice much improvement until I started Salt/C and Chlorella. I cannot tell anymore if I herx or flare.

My head pain is in the back of my head and moves to the front as the day progresses. Then my eyes feel like they are going to pop out, I don't see good at times so I don't drive much anymore and if I do I hurt so bad when I get where I am going I am a mess. So I just stay home most of the time. My memory is bad too and I drop things. I have had MRI's cuz I swear I have a brain tumor but they say nothing. How is
your anxiety? Probably terrible because your freaked out and the Dr. says to stay away from stress! That is the hard thing is it possible? I don't know how long its been like this for you with your head but it should get better. Hope you start to feel better. oh and all most lymes peeps says is its a good thing we get sick it means were killing the bugs. So comforting! The weirdest and scariest disease ever. Keep me posted.

why is there an increase in people getting so sick with this?
it breaks my heart that new people sign onto this

but glad if they are getting help in the earlier stages

mosquitos I think as well

I just send love to the planet, and hope it can regain some balance

too many chemicals disrubting the natural flow of things

in part, gmos, cows not able to eat healthy grass, chem trails, planet is so unbalanced, bees are not around so much, micro waves, too many things in air, harp ,

the natural balance is off

pop control, planet going through a lot right now



who knows, this is a horriable disease, alive, but not really

memory probs are horrible as well, chunks of different yrs come up stronge

Aklyme,

I have headaches 7/7, 24/24. Most of the time it's tolerable, I've been dealing with them for about 17 years, I guess one can get used to things as long as it's tolerable. No one would believe me when I was talking about these headaches, so I was forced to live with them.

Sometimes though it is as if there's a metal band around my head. At those moments I can barely open my eyes, but at the same time it's like something wants to push my eyes out of my head. Going out in bright light is impossible. Sometimes it's more like burning hot needles poking in my brain. At those moments I just need to stop doing what I'm doing, my whole world disappears and the only thing I can do is try to manage the pain.

It's mainly at the back of my head, left side, top of the head, left side again and the area behind my eyes and my eyebrows. If it last long enough it goes all the way around.

Luckely for me, I don't get these horrible versions of the headaches all the time. That must be terrible.... I'm sorry you're feeling that way.

Memory loss is also getting worse and worse. Long term and short term, it comes and goes. I watch a movie, an hour later I can't remember what it was about. Husband and I have lots of arguements at home, style 'you said', 'I didn't say'. Sometimes my brain blocks, don't know where I am or what I'm doing (very short flashes, don't last long), can't find words, can't speak, can't remember names of people that I know very well, etc etc

Marie

Do your headaches ever lessen or go away when laying in the sun? For some reason I feel so good in the sun.

andy cotton candy,
That is really rough about your family not accepting this illness. It sure must be tough on you to not have family around. It sounds like you are well enough to go back and forth to your appointments, which is great. I currently live in a remote village in Alaska, so there aren't any LLMD's here.
This disease caused the break up of my my fiance and has distanced me from my 9 year old Daughter. Definitely is heartbreaking to say the least.

I've seen on the internet about whole families being infected with the disease; that is awful and very scary.

Do you have any bizarre nightmares because of the illness? I sure do........they are brutal sometimes.
Oddly, a lot of my "dreams" are very religious in nature and involve me levitating around........I know it's bizarre.......Gosh, I hope it is a symptom of the Lyme Disease and not me losing my mind.

I am almost the opposite, I have alienated most of my friends because I just don't like being around people when I am like this. I wish I did. There are some people who want to be around others when they are feeling bad, and some isolate themselves. I've tended to isolate myself - I realize this is not good. I just don't want others to think I am nuts.......

It's definitely tough seeing an athletic body go downhill fast because all I want to do when I am in pain like this is to eat.......eat, sleep, eat, sleep.......not a good combination.

I am also looking into getting a SPECT scan done of my brain. I would really like to know if anything physical is going on up there. Possibly some vitamins or supplements could work to address the part(s) of the brain that are being affected.

Right now I am just grasping at straws, and taking it second by second.

Also, is anyone on here Christian (religious)?

Hello andy cotton candy,
I'm a Christian too - ...It is my gut feeling that Ticks have very little to do with spreading the disease. Many LLMD's are claiming that the disease is being spread through various other vectors -not just ticks.

300,000 per year being affected (in the US alone is far too many people to be infected by ticks in my opinion. http://arklatexlyme.com/page/2/

This disease is very very bizarre and scary and I'm sure you've googled it on the internet and have come across the many people who have Lyme. Some have entire family members with Lyme Disease.

I am like you in that respect, a lot of the stuff that is on the news or in movies is crazy! I don't know how a person could watch some of those shows and NOT be affected somehow.

I'm remaining hopeful that my memories will return, and that this brain pain will go away.
As it is for now, I am taking medication for sleep, which pretty much knocks me out and gives me at least some relief during the day.

Thanks for your prayers, and I will keep you and your Husband in my prayers as well
-C