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Posted 4/10/2013 2:12 AM (GMT 0)
I haven't been diagnosed yet, but I fully believe I have Lyme. I'm obviously not on antibiotics yet either.

I'm currently experiencing worsening symptoms. I feel like I'm going crazy, I can't sleep, I have extreme fatigue, I am extremely nauseous, vomiting, major stomach issues. I feel like I'm dying, to be honest.

I want to go to the ER, but I have already been 7 times since December and cant afford it anymore. And they all look at me like I'm crazy.

What can I do? I'm terrified. I feel like I'm dying.
Posted 4/10/2013 2:26 AM (GMT 0)
Ginger is used for nausea but sounds like you need something way stronger so anti-nausea meds may help. I've heard Emetrol is effective and it's OTC.

If you test positive for Lyme then you'll probably be treated for Bartonella as that is known for causing gut issues.

Did you test yet? If so hopefully it was through IGenex.
Posted 4/10/2013 2:30 AM (GMT 0)
I was tested by my primary doctor, who admitted she knows nothing about Lyme, and it was sent to the local lab and came up negative. So now all my doctors are saying that's good enough...despite my symptoms and the fact that I have seen ticks in my yard and killed them in my own home.

I would love to test again through IGenex, but can't get any doctor to retest me at all, let alone to send it there. I am broke...a single mother who is now unable to work and has medical bills in the thousands of dollars due to seeing so many doctors and ER visits during this struggle. I have no way to pay for anything out of pocket. It's extremely stressful.
Posted 4/10/2013 4:07 AM (GMT 0)
I am waiting for lab results but my doc will treat based on a clinical dx anyhow. Ive been given a lot of herbals and they are helping. I have to wait another month to begin treatment thouh and its hard. Like you i went through many docs and ran up a lot of bills but my instincts always told me lyme. Listen to your instincts!!!! You need to find a LLMD. I had to do it on my credit card but we'll worry about paying that when i can function and work ;)

Until then you just do what you can to get throug each day. Keep trying to find a different doc. Read the new to lyme thread, it has helped me a lot. Dont give up, help will come it just takes time to get ther, ugh!
Posted 4/10/2013 4:19 AM (GMT 0)
Thanks Heather. I wish I had a credit card to put this stuff on! But unfortunately I don't. I am looking into trying to get some help through LymeTap, but I don't know if I'll qualify yet. I will have to figure it out though..I can't just not get tested properly and not get treatment. And I am so worried about my daughter as well, I really want to get her tested.

I just got info about a LLMD in my area, who is supposed to be amazing, but her fees are quite high, of course. I'd have to do it all out of pocket. =/
Posted 4/10/2013 12:16 PM (GMT 0)
Hang in there. You at least know what path you need to go down. Beleive me there were many days where i felt sure i might die before I got any help.
I just keep telling myself not to give up (especially for my kids sake). Im trying to sell my house, its the only thing I may do to try and dig out of this deep hole!
Have you checked into any state insurance where you live? Good luck, I hope you get some answers soon.
Posted 4/10/2013 3:02 PM (GMT 0)

heather123 said...
Hang in there. You at least know what path you need to go down. Beleive me there were many days where i felt sure i might die before I got any help.
I just keep telling myself not to give up (especially for my kids sake). Im trying to sell my house, its the only thing I may do to try and dig out of this deep hole!
Have you checked into any state insurance where you live? Good luck, I hope you get some answers soon.

I actually still have insurance through my ex...we're not legally divorced yet, just separated so that I could stay on his insurance to get help...and now that I 99% suspect it's Lyme, this insurance doesn't do any good because none of the LLMDs around here (there are only 5 spread out in SoCal) take insurance. I don't have the money, as a single mother unable to work or drive, to pay for the expenses of seeing an LLMD (at $500+ a visit, not including costs for tests and treatment) out of pocket. Not at all. And I can't just lay here and get no treatment at all, you know? I also need to have my daughter tested. It's likely she may have it also. =( But I am doing everything I can right now to see about financial help...it's my main concern at the moment. I'm heading up to the county offices today and see if I can get some help through them too.
Posted 4/10/2013 3:18 PM (GMT 0)
Hi Meg,

Please activate your email in your profile so I can email you.
Posted 4/10/2013 3:28 PM (GMT 0)

opugirl said...
Hi Meg,

Please activate your email in your profile so I can email you.


oops! I didn't realize that it wasn't activated...I fixed it. Thanks!
Posted 4/10/2013 4:19 PM (GMT 0)
Check your email!
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