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Posted 4/6/2013 3:12 AM (GMT 0)
Does anybody have SIBO along with the Lyme infection? I've been fighting the heartburn for decades and my Lyme doctor says that it is all related. We tried the synthetic drugs to take care of the SIBO and now I am on the natural antibiotics to combat the Lyme.  I'm on the GAPS diet and doing everything I can but still have a lot of stomach pain.

I live in Washington state and have little support here.

Posted 4/6/2013 5:02 AM (GMT 0)
Start a good probiotic and try this an experiment. Cut out ALL gluten for 3 weeks and see how you feel.
I use Ultimate Flora Critical Care Probiotics, they require refrigeration. Don't buy them if they are sitting on a shelf not refrigerated.

Post Edited (PrayingForAMiracle) : 4/5/2013 11:08:47 PM (GMT-6)

Posted 4/6/2013 10:34 AM (GMT 0)
Andy,

Welcome to the forum here at HealingWell.  This is a good place for support and info.

I run a local support group and send out announcements for another support group in a specific location in WA. I also know of another online support group for those anywhere in WA. Please email me (click the envelop icon under my name at the left) if you would like more info on these groups.

Take care,

Posted 4/7/2013 9:03 PM (GMT 0)
Eliminate gluten, dairy, sugar. Take a good quality high dose probiotic and saccromyces. Lyme and co-infections will cause SIBO. Also, bartonella really attacks the gut. I had a lot of GI symptoms - nausea, vomiting, reflux, cramping, etc. until starting Rifampin for Bart. Literally, 3 days after starting Rifampin, my GI symptoms started to go away!
Posted 4/8/2013 12:51 AM (GMT 0)
Razzle!! I didn't know that you ran a support group!! How wonderful of you! And with you being so ill for so long! You are providing a very valuable resource- thank you!! :-)
Posted 4/8/2013 4:09 AM (GMT 0)
Hey Andy,

Definately get on some good probiotics and try to limit your gluten intake, but you can also try this powder called Glutagenics by a company called Metagenics. It did wonders for me! I took it 2 x's a day before I ate. I mixed very little with water and drank it down, about a shot glass worth. I have told a lot of people abou this, and may of them swear by it just as I do. It really helped with every symptom of SIBO and very quickly. It is also gluten free!!

Hope you feel better soon..
Samantha
Posted 4/8/2013 7:22 PM (GMT 0)
Thanks you guys for your info........I am new to lymes and the whole thing is scary. After taking 2 years of every test I finally found some answers........My Dr has me on L-Glutamin Powder and Quercetin-Ascorbate powder and DGL powder and mix it in half cup almond milk......I am off all gluten, dairy grains and sugar......After my 4 months of antibiotics is really messed up my gut! So I am only on natural antibotics the Byron White kind......they make me herx bad.....plus my eyes are bad along with the neurological stuff hands shake and my head feels like I going crazy! This is a terrible disease and all of you out there fighting are a inspiration to new people like me to keep going........Hope everyone gets help and feeling better soon. Where I live there is only one other person that claims to have Lymes! But I know they are out there.
Posted 4/11/2013 4:34 PM (GMT 0)
Sodium butyrate has been integral to me. You can read my story in the link in my sig. I battled abx initiated SIBO with diet but it only went so far. Adding in sodium butyrate was a game changer for me
Posted 4/11/2013 5:27 PM (GMT 0)
Collostrum also does wonders for healing the gut. I kept having pain for a short time, and taking this healed it right away.
Posted 4/11/2013 7:07 PM (GMT 0)
thanks for the info guys...........so is the Collostrum a natural thing? and is the Sodium butyrate? I know I new to all of this! Plus anyone else take Charcoal? My Dr. has me taking it on my herx days. I think it makes my stomach hurt though.....it is so frustrating not being able to eat and then if you do it hurts about 1hr later.................I will take any advise.
Posted 4/11/2013 8:14 PM (GMT 0)
Colustrum is the probiotics a cow feeds her calf just after birth.

Sodium butyrate is very healing to the GI tract lining, especially the colon. Naturally found in butter, which is one food I will never stop eating because it is healthier than margarine by far.

For those allergic to dairy protein, ghee is clarified butter and is not supposed to contain any protein.

I always buy organic butter, though...don't want any extra toxins than we get already with this disease...

If you take charcoal, make sure you drink lots and lots of water...

Trav,

Thanks.  I volunteered to co-lead a local group, and the other person had to step down...  I try to pay it forward (do good things for others) when I can...

Posted 4/12/2013 3:43 AM (GMT 0)
Have you been tested for h pylori, the bacteria that causes c
Ulcers? It's very common.

I had it 2 yrs ago and had stomach pain like I've never experienced before. It took about 6 months to clear using a natural protocol but was worth not taking more abx.

Just another thought I had. And yes, as Razzle said, colostrum comes from a cow in powder form.
Posted 4/14/2013 12:38 AM (GMT 0)
wink But it doesn't come from the cow as powdered colostrum!! Giggle! turn

That's wonderful Razzle! It's also the same reason I'm still on this forum!

I've noticed no one has mentioned Kefir - and I'm a big kefir fan! I even make my own! It's an amazing probiotic and more! I've had a lot of intestinal issues (although SIBO isn't one of them, fortunately), and kefir has done wonders to healing my gut!
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