MOLD or LYME

I wanted to get back with everyone on the Mold/Mycotoxin problem my LLMD thought I might have.

Ok first of all my Dr and some of his collegues whom also have lyme patients who are not progressing

in their treatments even IV treatments with me also. Well they have been doing research to try and figure

out why a handful of lyme patients from each office werent getting better from treatments.

So they have come to the conclusion it may be mold/mycotoxins... His collegues have tested patients and

they all had positive tests for mycotoxins (Aflatoxin, Ochratoxin, Trichothecenes). They all started to take

a prescribed med Voriconazole 200mgBID.  They all have made drastic improvement.

SOOO my news is...I had the mycotoxin test and was positive with Ochratoxin 2.0ppb and Trichothecenes 0.20ppb.

I have been taking the  Voriconazole for only 5 days and WOW!!! REALLY!!

Pain is not so intense ... balance is way better to the point i dont have to hang on to railing or take one foot step.

The thing I noticed the most and its only because I am getting so much done that everyone is noticing how much

energy I have.

The exhaustion is getting better too. I would literally have to sit down everywhere I go, could not stand for

longer than 5 min or I couldnt walk up the stairs without having to lay down with exhaustion from just the stairs.

Another thing I noticed is that my hands, legs, and feet are not falling asleep as quick as last wk.

Ok so I ordered my test from www.realtimelab.com ..  I paid out of pocket for this test, and filed with insurance

company later, they will send into insurance but they charge an extra $30.

For the mold right now I am taking Anti-fungal (voriconazole) and will start the anti-fungal nasal spray my

dr recommened I take for treatment from www.sinusitiswellness.com ... Some kind of binder like Probiotic, Cholestyramine, or Activated charcoal, Avoid exposure and re-exposure.

 

Lyme-ticked dont know what insurance you have but I just send my receipt to my ins co and they do the rest.

Anywho I spoke a lil too soon well the two days I felt better I guess I should not have tried to do more than
normal. I am so paying for it and with the help of that monthly friend us women hate is taking its toll.

Still hangin in there.

I had a live blood culture test done and had both yeast and fungus.

Mold is a huge issue for me, it's been raining the last few days and my legs are burning again. I wish I could move to the desert.

Harley
I had big mold problem last year in house I just moved into.

I used Thieves oil by burning in water with a candle in one of those oil "things",

Then I just would fling a few drops right out of the bottle all around house."

I bought a $400 ozonator and had to leave house overnight while it was running and then open all windows and blow ozone OUT with fans.

You can NOT breath ozone it will make you sick.

I did this on every floor in house including basement.

Then I sprayed a couple of gallons of Concrobium all over walls and ceiling and floor of basement and anywhere else there may have possibly been mold like wood furniture that was in storage.


I also went for I'VE ozone treatment that made me feel great but if mold is still in house you still will get sick.


I took lots of corella tablets. I had read that chorella is as good as cholestramine and actos.

Another big game changer in the house was I bought a Miele vacuum and it really did clean the air as I vacuumed. This vacuum is awsome.

Be careful with ozone.

Wow. Is everyone else feeling better

I used the mold test kit $12 from home depot.

It's a round clear plastic tray. You pour in some liquid and leave
tray out in open where u suspect mold for aboit hour then put cover on.
4 days later of u see something u mail in and for
$35 they read it.

This is not most high end test but I had
3 different type molds in my upstate old
house . I tested my home on Long island
and nothing came out on tray.

I was getting very sick in upstate house.
Earlier in this post I was telling Harley what I did.

Mold inspectors can be expensive maybe $300
But if your family or you are sick it is worth
Eliminating as problem.

my nd/md gave me a booklet about the link between lyme and mold...I would have never put the two together (of course most days I wonder how I even have Lyme too).  She sold me little dishes I put out and it turns out I have mold in my bedroom and bathroom.  I am single and a friend moved my bed into my dining room as the stairs were killing my ankles and knees especially.  I only go upstairs to shower twice a day and wash clothes now.

I know this is an old post but, I wanted to offer some info on mold. I had mold exposure (w/o knowing it) for 15 yrs....thought it was the worst sinus/allergy issues. I was dx'd 5 yrs ago by the doctor whose sinusitiswellness website you mentioned....he's brilliant about mold illness (treating it for 30 yrs). Also, the book or website Surviving Mold is very informative & you can subscribe to a newsletter. They give all the testing to get done, etc. There are genetic sensitivities that 24% of the population have for mold (there's also tests for chronic lyme)....I have 2 mold genes so I am very sensitive. I've been told that on a mold plate where 0-4 colonies is safe for most people, mine have to be 0-2 so it's more difficult to find safe housing as mold is everywhere. It's been a battle that's not over yet but has gotten much better (until recent tick bites & lyme). I had to move from my house (even tho mold count is "normal" for everyone else) & am living in a camper. The sinusitis doc has a protocol that I follow to keep my air clean as I can untiil we can find a safer living situation. I'd be happy to share more by email.....24 out of 100 people is ALOT.....I've learned a TON & now am researching lyme as well. Just wanted to post & give my experience. There are so many suffering from mold illness (like lyme, w/o knowing it) & the word is beginning to really get out there thanks to Surviving Mold. You'd be surprised. Wishing you wellness & good health.

Lyme and other tick-borne infections lower our immune system, so any thing -fungus, viral, or bacterial- will be able to get a foothold much better than if our immune systems were actually working properly! That's why so many of us also have issues with EBV. Opportunistic bugs just like to take advantage of us!

Please be careful to not move into another place with a mold issue - either already present or building. We wouldn't want you to have to move again right away! Moving is exhausting!

I was glad to find this old post.  I think I had posted before, that just like Harley's Dr, my LLMD said that 7-8 out of 10 of his Lyme patients who are not getting well have mold poisoning.  I finally got tested thru Real Time and am positive for the Ochs and Tricothecenes.  I live in an apt that I have to get out of, but they charge to break the lease so I got an inspector out here.  He said that the lab test cannot tell you when you were poisoned, but he found enough mold in the basement, he felt it would serve my purpose. We found my furnace down there and the out vent is completely black w/ filth and mold.  He photoed pipes and vents covered in mold.

Now this was just a $200 'survey'.  He brought his mold sniffing dog who did not detect any mold in my walls, closets, under carpet, etc in the apt.  He did not test the air, stating that would be expensive and he believed his report would serve my purpose, along w/ my lab work.  His report states that 30% of my air is carrying the mold spores and they are being re-circulated thru the vents back into my apt.

I was not well when I moved in here in the first place -- that was Sept 2012.  But I have definitely been much sicker. Moved into a studio and cannot even manage taking care of this simple place.  I am sick every weekend and have noticed that I often (not always) feel better if I can drag myself to work.

With mold illness, would that be the case?  Would I be able to feel the difference in places if I'm really sick w/ mold?  I am betting that I was exposed/infected before this apt, but this one has made it worse.  My dog got sick and died from kidney failure and in an article about the Tricoths read that renal poisoning can be caused by this.  Am wondering if it could be that bad here?

Heavens! The article I read discussed the Tricoths as being used and considered in biological warfare!

Anyway, I do not see my Dr. til April 5.  Meantime he's had me start on activated charcoal til I get in there. It's difficult to time that around other meds because it absorbs stuff.  Been on it a week and feel no better, possibly worse. What's anyone's opinion on this?

 

Those who might remember me from way back, couple yrs ago, know that I was not that sick. MENTALLY, I was/ am extremely sick, but not this physically ill. There is not one single day that it doesn't take everything within me to get out of bed. And sometimes I don't.  I have been so ill I have started back on Mepron for Babs w/o knowing that this infection is still active or not.

Harley or anyone -- would you recommend that I call my Dr and request the anti-fungal before my next appt? (betting he won't). Do you know anyone who has benefited from charcoal?

I am hoping to move to NC soon, but have no idea how I will accomplish this as ill as I am.

Again, if I am being poisoned in this apartment, would (some of) my symptoms really come and go as I come and go from my home?  Is this total body pain due to mycotoxins?

And possibly more importantly, which do you think came first, the Lyme or the mycotoxins? Was it mycotoxin poisoning that caused us to suffer chronic Lyme? 

Thanks, peggster, I will definitely go there. YES, I have debilitating depression, fatigue and mostly horrific anxiety which paralyzes me. Of course, this is also a symptom of Lyme, Babs, and CEBV (positive).

I went to NC Thanksgiving weekend to spend w/ my family. I'm going into it only to make a point. My mother, who was extremely healthy had come down w/ what they diagnosed as pneumonia. When she could not breath, Dad took her to ER and they admitted her. Her care was horrific and Dad waged many battles against the nurses there.

If I could name the hospital on here, I would, because they clearly do not care about the elderly and her Drs were completely incompetent and the nurses were worse. She begged to get out of there. she had had a respirator of a sort that she was comfortable with. First they gave her a powerful diuretic, but nothing but a pot on the floor to pee in. For the love of God, why not a catheter?? She was clearly extremely exhausted, but they would not allow her to rest. She could never make it to the pot in time and wet herself many times. The nurse finally said she'd be better off w/o any underwear, it would be 'more convenient'. Can you imagine the humiliation for such a sweet 83 yr old loving woman who never said so much as a curse word her whole life.

This was a tiny little sweet, angel on earth, who had raised 6 children and had more grandchildren and great grandchildren than I can count. ALL adored her. She walked, gardened, swam, did yoga, served as lay minister in her church, regularly gave to those in need, raised flowers, fed the blue birds which she purposely attracted to her home, fed the feral cats, fed and watched in awe as the hummingbirds came to entertain. she had not one bad bone in her body.

Not only the humiliation of wetting herself and the bed pan, her nurse was a large, burly man who had no caring or sensitivity himself. As he literally attacked her w/ a face mask which she fought, she had a stroke. I got there in time for her to see me one more time -- she could not move or speak, but could look at me and squeeze my fingers for one day. The rest of the week, including Thanksgiving, I watched her die slowly, watched her limbs and hands swell up and turn black -- it was absolutely horrifying. But I stayed w/ her every minute they would let me. I shampooed and combed out her hair which staff would not do. We took the music off a hard rock station to play soothing classical music. I held an angel (that I had given her yrs before) in her hand and watched her die.

The point is, I have a huge family and ALL of us were in total shock and a grief like no other. My family filled half the waiting room every single day. I stood w/ my dear father each and every day as he broke down and begged her to fight.

In spite of this stress, trauma, and grief, I realized that I didn't suffer a single symptom during the 10 days I was there. That is very telling, in my opinion, don't you think?

Post Edited (+Lyme) : 3/25/2013 8:05:50 AM (GMT-6)