How long on Antibiotics

Almost two years for me too. I'm not in any rush to stop them.

No, unfortunately, but on herbs and also off everything I was progressing rapidly and having unconscious seizures. Abx keep me from getting worse.

I was on Ceftin for a total of about 8 weeks.

Yes I have a normal life again. So abx really made a huge difference for me. I had to find the right combination which took trial and error but now am doing really great.

My advice to anyone is to keep trying different approaches. While several combination drugs stopped some of the worst neurological symptoms they never made me feel well. I switched meds, switched LLMDs and now can drive myself the three hours each way to LLMD. For over a year my husband drove me as I could not stay awake and/or cognitively could not drive there.

I still have some annoying symptoms hanging on but ones I can live with like the muscle twitching and still get bad headaches but instead of every other day they come a couple a times a month which I can handle.

Now hoping that these drugs will push this out of my system so I can switch to herbs only. My LLMD tells me every visit I will be 100% soon and I choose to believe him.

Bbrian,
My muscle twitching, spasms, and cramps have all gone - unless I've done something to deserve them!! LOL! So yes!! They do go away with treatment!

And I was going to say the same thing Flowergal has said - magnesium is supposed to really help with all kinds of muscle issues. We don't get enough through diet alone any more as the ground that our mass produced foods are grown in are deficient, so the plants can't get enough either.

bbrian, for me this board saved my life. Knowing others have gone through what I have makes it less scary. Back in the dark days when I was so sick and thought I was headed for a nursing home this group kept me going. If one person can get better than so can I, so can you! It's knowing a few bad days will be followed by a good day, then another and another. There are many wise people in this group that give so selflessly to help others.
Keep strong.

I started in March and I expect to be off by the end of the year.

Two years and three months for me.  I have had a very up and down road as we all have, but I have made a lot of progress.  I think back to what I was like before treatment, and I am another person.  I am so grateful!  Now just hoping to make some more progress.  I pulse my abx five days on, two days off. 

Is anyone else pulsing, and if so, what is your schedule.  I am wondering if going one week off and one on would be beneficial.  Let me know, I would be most interested!  Thanks!

My daughter was on ABX for 14 months with a break in the middle of treatment. She relapsed a few months later, and then we changed to an ABX-free treatment. She has been healthy for the last 3 years.

I favor a break during long term ABX treatment so that the body is given a chance to recover from the toxic effects of the ABX. The short term relief that the ABX provide are not worth the long term negative effects that they have in the bigger picture. I have seen what others have said here, but there are better ways in my opinion.

Don

Lingering symptoms include tingles down my back and neck, a little joint soreness but mostly eating GF has resolved that and the worst symptom which happens at 1 month post abx is brain fog as bad as when I started treating 3 years ago. I'm sure my failure to detox adequately has made a difference in being as well as I could be, so for now I'm concentrating on that

flowergal- The ABX made her feel a lot better, and symptoms went away by 14 months of treatment. She started to relapse a few months later. We found out that her immune system did not recover according to WBC and CD57 tests. My opinion is that she would have been on a lifelong rollercoaster of feeling better and then relapsing if she had just stayed on the ABX. We ended up pursuing a completely different approach that does not use ABX. We went to a clinic for hands-on treatment that helped her immune system to recover. That approach did the trick for her. Of course she had several months of remedies that she had to take afterwards.

Every case is different, but the ABX do nothing for the immune system. If your immune system is able to recover on its own, then ABX may be adequate to get the job done. That approach works for many people. In our case, we wanted to get our daughter off of the rollercoaster!

Don

Thanks flower gal :)