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Need LLMD as soon as possible!!!!

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Posted 5/2/2013 10:29 PM (GMT 0)
I know I have Chronic Lyme. I am going insane literally. I am almost suicidal. I am tired of being sick. I am tired of not being able to take care of my kids. I have been EXTREMELY depressed. No more money left to see any more doctors. Off most of my meds because I cannot afford them. I have a credit card I paid off and I am going to take that card to pay for an LLMD and to pay up front for a Lyme Test. Then I am going to go from there. I live in a bus with my kids and husband. My husband works all the time and when he does have any free time he does what he can in our yard, in our house and taking care of our kids. I am tired of not being able to take care of my kids, I am tired of not being able to cook or even take care of myself. I am mostly tired of being a burden on my husband. When I do get the positive test back I will then go about finding a REALLY good LLMD even if he is several states away. I guess I will have to pay with credit cards. I do not even know how I will do that. But I have to do something. I just cannot just sit around all day long on the computer. There are days I am so depressed I just stare at the walls. I am tired of being in pain and I am tired of being so tired I fall asleep all the time.

PLEASE SOMEONE HELP ME!!! I NEED THE NAME OF AN LLMD PREFERABLY AROUND THE NORTH FLORIDA AREA!!!!!!
Posted 5/2/2013 11:10 PM (GMT 0)
I am sorry I don't know of a llmd in your area, but your story touched me.

There are some things you can do at home, that won't cost much at all, if you have access to a tub, you can detox your body with epson salt, and perioxide.

Are you in pain all day? I was too, and I started taking herbs, and using heat to help me. I don't know your whole situation, but please try to get help, do not think that ending your life is the answer. I was at the lowest point in my life a few months back, and someone on here helped me. Someone will let you know of a doctor in your area I am sure.

I was on a cane, with up to 7 seizures a day, and I am doing better. I am in no way cured, but I can fix my kids some dinner now, where before I couldn't get out of bed. It did take time, and trying different things.

Lyme is a long road, but there are days , where I have really good days, so it makes the bad days a little easier knowing a good day will be here before I know it.

justme
Posted 5/2/2013 11:20 PM (GMT 0)
I have no tub. We only have a shower in the bus. I do not know about herbs. We are barely living day by day just to survive. Pain I have a hard time with, but I manage. It is the fatigue that is killing me. At times I am not able to do anything due to the fatigue. It is really really bad. I am even taking Vivarin and everything possible and I still cannot stay awake let alone function at times. It is really rough being so tired all the time.
Posted 5/2/2013 11:23 PM (GMT 0)
I already have my main doctors (my urologist, internal medicine doctor, etc.) threatening to cancel me unless I pay on my bills that I owe then and I just cannot afford to pay the bills. It is upsetting. I have been diagnosed with everything under the sun. But no matter how much meds they put me on I do not get better. We have property that we live on with a singlewide trailer. But just do not have the money to fix it. Our income taxes went on paying our credit cards off that we used during the year to pay for tests and doctor visits that did not tell me much of anything. Our last house and property we lost in bankruptcy becuase of me being sick and loosing my job to all this stuff. I refuse to lose this house too. It is just very upsetting at times.
Posted 5/2/2013 11:30 PM (GMT 0)
Tired of being sick and tired. I am still seeing my pain specialist and the meds I get from her barely help me. I could not afford to pay my Rheumatologist anymore so I am not seeing her. But that is probably a good thing because she had me on Prednisone, which was causing a lot of other weird stuff. I have been diagnosed with Fibromylagia, Interstitial Cystitis, Endometriosis (I keep having surgeries, but I keep getting it), Adenomyosis, IBS, Chronic Fatigue Syndrome, Rheumatoid Arthritis, Osteoarthritis. I cannot remember what else. I have TONS of symptoms. Some of these the blood tests have come back negative but I am still told I have them. No one can explain why I keep getting worse and the medicines do not work. I went off the Prednisone and Methotrexate meds because they seemed to be making things worse. If that gives you a little information on what is going on with me.
Posted 5/2/2013 11:48 PM (GMT 0)
We are trying to eat as healthy as we can, but it is hard not having a lot of money. My husband has started a small garden in buckets. We do the best we can with what little we have. My kids eat though before I do. So they usually get all the vegetables. I do not want to change that. My kids are my world and I want them to eat healthy and to not end up like me. But, I got bit by a tick when I was about 7. I actually remember it getting embedded in my head and my dad burning it out. I was bit when I lived in Texas. After thinking about it and thinking about it just everything adds up. The leg cramps that the doctor could not explain when I was younger, the headaches that could not be explained. The chronic strep throat and blepharitis that could not be explained. It just kept getting worse from there. The mental part though is the worst on top of the fatigue.
Posted 5/2/2013 11:49 PM (GMT 0)
I am now 39 years old. Forgot to mention that.
Posted 5/3/2013 12:15 AM (GMT 0)
CleoKay,

I am so sorry to hear how sick that you are. I first want to welcome you to the forum. Our purpose is to offer support and encouragement to you. We have a lot of friendly and knowledgeable people who are willing and eager to help you. Please feel at home. Everything that you have suffered has been experienced by many of our members here. We do understand what it is like.

I would encourage you to take a look at the thread entitled "New to Lyme....Start Here?" at the top of the thread column. It has a lot of information that is important to know when you have this illness. Please pay particular attention to the section on detoxing. The microbes create a lot of metabolic waste products that are poisoning your body. They create even more of these poisons as they die off from your antibiotics or treatments. Detoxing is important to do regardless of the specifics of your treatment approach.

I realize that you are in dire circumstances right now. You love your husband and children, and you want to be there for them. Please keep your goal in mind, and do not ever give in to despair, or do anything rash that cannot be reversed.

There are a few key things that you must keep in mind right now. First, you must find a Lyme-Literate physician. You have a lot of physical issues, and the medications that you took are both very dangerous for those with lyme disease. They both suppress your immune system. Your whole system has been overwhelmed. A good doctor will cover the many areas that need to be addressed.

Second, eliminate any unhealthy lifestyle habits that you may have, i.e smoking, alcohol, etc. Try to eat a lot of vegetables and fruits. You might want to experiment by eliminating gluten products and dairy, and then see how you feel. Many people sick with Lyme have gluten and dairy allergies, which make them even more sick, and suppress their immune system. Drink a lot of good clean filtered water. Eliminate all refined sugars as much as possible.

Third, be sure to detox using some of the methods that you have read about in the the thread that I have mentioned. Try to get some exercise in your florida warmth to keep the blood flowing.

Fourth, Keep a positive attitude. There definitely is hope, despite the fact that you may have a hard and rough road ahead of you. My daughter was very sick for 5 years before she got well. She is perfectly healthy today. Your illness will require a lot of patience. Never give up. We are all here to encourage you, and to be a sounding board for a vent when things get really rough. Always keep your goal in mind!

We have members that live in Florida and Georgia on this forum. I hope that some of them can offer suggestions for a Lyme Literate Doctor. Please be sure to have your email address activated on your account, so that they can send the info to you. We cannot give out their names publicly.

Please keep us posted with updates so that we can interact with you, or offer suggestions where they might be useful.

Don
Posted 5/3/2013 12:28 AM (GMT 0)
Hi CleoKay,
Welcome to our little community! It seems that you and I have a lot in common! LOL! Not necessarily a good thing! wink I too was first infected at the age of 7, although I was 47 before I finally got effective treatment. I'm glad that you are able to get some help sooner!

If you haven't already, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists (as Lyme rarely occurs by itself), helpful links and pdf's, how to detox when one has these infections, and a list of questions that you can ask any doctor that you are seeking treatment from!

We also have a pretty good search function on this forum to help you narrow down your search for information from past posts. We must be our own health advocates now and the best thing to arm yourself with is knowledge about our infections and the different ways to treat them!

Start with your diet. You need to eat, and as healthy as you can. I understand how tight things are for you and your family - I've walked that road as well, but you have to do this. I'm sure your kids won't mind if they don't take the last two bites of those veggies & whatever else you are eating that day to help Mom get better. Without the nutrition, you will have a much, much harder time healing.

And drink all the water you can right now - 64 ounces or more a day. If you can afford even a bottle of lemon juice and you don't have a lot of issues with muscle cramps/spasms/twitching add 2 capfulls of lemon juice to each 32 ounce of water. This will help flush toxins that have been building in your body out so that your body can concentrate on healing rather than dealing with toxins. This is also the reason for detoxing as I mentioned above.

As you probably have already figured out, LLMD's are expensive for someone in your position. You can heal with herbs, as Justme said in her post, I did. It takes a lot of work, but it can be done! If you really want to use a LLMD though, please email me by clicking on the little blue envelope under my screen name. I may possibly have a name and contact info for you.

Next is detoxing, start off slow though - with no tub, you need to start off with peroxide/Epsom salt foot soaks. Use about 3 cups of Epsom Salts and 16 ounces of peroxide in something that will hold that - one of the buckets from the garden if necessary! It's that important! Use luke warm water and only keep your feet in for 10 minutes to start. This may make you feel worse to begin with(herxing), that's why you need to start off with only 10 minutes in the water.

I have had trouble doing a full body detox in a tub from the beginning, it always made me herx so badly! So I've only been able to do the full body detox soaks in the last year of my treatments and then only one per week, if that. The rest of the time I've used the foot soaks.

Have you ever had your thyroid levels checked? What about your adrenal glands? If so, what were the results? Chances are that both are really struggling right now and will need supplementation. You can do some reading on this site:www.stopthethyroidmadness.com/ to help you decide if you need to supplement, since you can't really get to a doc and have the tests done. Swelling of the eyelids & face is something that I get when mu thyroid is off. The exhaustion is likely due in part to low functioning adrenal glands.

You are not alone in this any longer!! We are all here for you to learn from and to get suggestions from! Also, you can feel free to email me anytime that you think you would benefit from it.
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