Does anyone else have burning skin?

I have Lyme disease and I never read anything about burning skin. I'm wondering if anyone else has this symptom. My main issues are burning skin (primarily my lower half), electrical pulses, twitching prickly tingly muscles and a fluttery heartbeat. It's worse when I wake up in the morning, but probably because I'm more aware at that time. I just feel alone and want to make sure I'm not the only one. Thanks!

Burning skin is very common with Lyme. I have it predominantly in my legs though it has gotten better as of late hopefully because of abx I'm on.

The burning is a neuropathy that stems from the spine. Lyme is known to affect the nerves and cause tingling, burning or even numbness.

No, you're not alone! I have it too. Although my skin doesn't hurt to touch, it just burns, as if I have Bengay on it. It's gotten better with treatment but still goes up and down in intensity depending on diet, rest, detoxing. It is VERY distracting when it's bad. I've been in treatment for almost a year and I still haven't been able to get rid of it completely. I always assumed it was the Bartonella infection but my new Lyme doc says it's a very common Lyme symptom. So who knows. But I sure would like to get rid of it!

I have times when the soles of my feet feel as though they are on fire. Most of the time it goes away on it's own. But, occasionally, 1/2 mg of Ativan is required to make it stop.

I am starting to think that any symptoms associated with the nervous system should be an indication one can have Lyme. It is mind- boggling to say the least. I tell as many people as I can that Lyme mimics many conditions. Before Toby got his Igenex testing done, most people would have raised their eyebrows at the possibility he had Lyme...especially doctors. Now he is slowly getting better with treatment.

In my initial exposure time, I felt like my skin was on fire.
My sides mostly which is why Dr thought shingles but
nothing ever transpired.

Hi Eurytopic!
Welcome to our community!!! I'm so glad that you found us!

Try to take in what you can and know that we are here to help you through this time. If you haven't yet, please do read through the "New to Lyme? Start here!" thread that sits at the top of the forum. It's packed with information that will be very valuable as you heal. Don't worry about trying to remember it all, that's why it stays at the top of the forum - for easy access!!

Are you seeing a Lyme Literate Doctor yet? What type of medicine do you wish to use to heal?

Honestly - all strains of Lyme are hard to heal from! These are very complex bacteria that involve much of the body's systems - but that's why we are here!! To help you stay informed about your options and possible treatments, supplements or other things that you might want to check into to see if they are right for you.

I have all of those symptoms EVERY SINGLE DAY!! They were my first symptoms and have remained! It feels like my skin is raw or sun burnt badly. Sometimes when it comes on it feels like hot grease being poured on me.

There's a ton of information here! You can use the search function to search through older posts/threads and if you still don't find what you are looking for, don't hesitate to start a new thread asking your question(s)!

Many on here have used/are using Buhners, a few are using Cowden's and of course other protocols as well.

Traveler that would be amazing!! I need this to stop! :)

I am new to this forum, but not to the burning skin sensation associated with lyme disease. My 1st burning skin episode occurred about 3 weeks following successful antibiotic tx for lyme disease. It covered all areas head-to-toe to include my inner eyelids, ear canals, nostrils, simply everywhere. Pressure and sunlight exacerbated the sensation. Sleep was impossible, as I would toss and turn all night as the areas touching the bed became increasingly hot. This 1st episode lasted about one month. Unfortunately this happened while I cared for my terminally ill spouse--I thought God had abandoned me.

The symptom-free period only lasted 2 weeks, then it came back. After doing a med-line search I came across an article which stated the alterations in skin sensation was a centrally-mediated mechanism and the light went on. That night I took a 10 mg Morphine tablet (from my wife's stash) before bedtime and all the pain went away. The relief from the burning skin pain lasted far longer (24 hours) than the morphine's duration of action. I ended up taking the morphine 10 mg 2x/week in order to have at least 2 nights of good sleep. This allowed me to take care of my wife. The 2nd episode lasted about 1/2 week shorter than the 1st episode.

The 3rd episode began about one month after the 2nd episode ended. I repeated the tx of 2x/week morphine at bedtime with good results.

I ended up having roughly 9 - 10 episodes in total. The 4th episode and those that followed were mild enough that 800 mg ibuprofen 1-2x/day sufficed to tx the discomfort. One pattern to these episodes became apparent; the duration of the episodes became shorter and shorter, while the episode-free periods became ever longer. My last episode was last year (Spring 2015), lasted only 2-3 days, and was so mild no medications were necessary.

I hope anyone reading this and is so afflicted can be helped by my report. There is hope and it does get better.

Welcome shadow ...ya the burning is a nerve thing i think it to be a bartonella symptom

I have full body small fiber neuropathy. Your skin will feel like the worst sunburn that you've ever had. You will get paresthesias and hypersensitive skin. It will hurt to wear certain types of clothing. It is truly awful and has altered the course of my life.

Post Edited (madisongrrl) : 11/21/2016 12:17:34 PM (GMT-7)