Feeling extremely frustrated

Hi Lymer,

I understand your frustration very well...

I've come to a point that I (mostly) don't care anymore. My healing process and the challenge of coping with all of those symptoms is the most important thing right now. If they don't want to be part of that world, they can just... well, there's many expressions for that... 

I avoid people that pull me down, and I ignore stupid remarks. Cause that's how I consider them: plain stupid. Not worth investing my energy in.

I have been able to inform some people around me about the seriousness of this disease, by showing them some documentaries. They saw the link between me and the documentary, and that's a great relief.

Just look at yourself: you're doing a great job working and taking care of a todler, and doing your household, plus you're fighting a very tough battle... That's much more than a normal person should be doing... Be proud of yourself, pat yourself on the shoulder.

We have a saying in Dutch: the best steersmen are ashore... that says it all.

Marie

 

Lymer, I admire your fortitude. You do a lot for someone who is battling a chronic illness. I remember how difficult it was to take care of my young ones when I was fighting (and still am) Clinical Depression. I think when you really look at what you are doing in the face of adversity, you will be able to see that what they are saying doesn't "add up to a hill of beans". They don't know what is going on. Emotionally, it can be tough when it's family and/or friends, but it's their problem, not yours. You are doing what's you think is the right way to deal with what's been thrown at you, and I admire people who persevere and try to do their best. You can be assertive without going off the deep end. I separate myself from people who are negative, but I'm open to them when they are ready to be open to me. I am willing to listen to constructive thoughts, not destructive ones.

It is tough and it's understandable when people are confused. I think the problem is not so much understanding the illness as it is not being understanding, if you get my meaning. Compassion- and I don't mean pity - goes a long way in helping people dealing with chronic illnesses. Toby doesn't have this problem because it is obvious there is a physical issue and he was diagnosed with ALS. I experienced it though so I do understand what everyone is saying. It's like an invisible illness when it's pain, depression, anxiety, or whatever else people go through with something like Lyme. It certainly doesn't help when Chronic Lyme isn't recognized for what it is. Trav, the stress issue with Toby is a real concern. He has such a hard time trying to function with his arms and hands. They won't do what he wants them to do. There is obviously a disconnect with his brain. He is afraid he will lose his job which is understandable.It is stressing him out big time and even though I told him stress may slow down the healing process, he is having such a hard time staying calm. We are praying for some healing in this area, at least enough for him to be able to function.

Wow Trav, you have Lyme and your husband has degenerative disk disease and chronic arthritis! I am so sorry that you two have to go through all this. I have given Toby shoulder and back massages, but I have to be careful not to hurt him. He lost a considerable amt. of weight so he almost feels fragile. I haven't done it for awhile, but I could ask him again if he would like me to do it. It would be good if he could try to control the stress. I understand how hard it is for him, but I worry how it affects him. He really responds to touch so maybe more of that would be good. Thanks for the reply.

thanks lymer for posting this

not that I want u to be going through what u are going through.... I wish u and all healing miracles.

it helps me, I needed this reminder, I know this post helps others

thank u all, I needed to read this today. THis forum is incredible.

many blessings, gentle hugs

sknight, I like what u wrote

never heard it quite that way before, :)

my mom told the town I was crazy when people asked her what was wrong with me

and she worked in medical field, and I am learning to release it

I have to keep giving it to a higher power, is my way to cope

but glad I am not alone in my thinking, about karma... but I don't know

I just know this world is painfully out of balance and more sensitive one is, sometimes, we pick up more stuff and get sick more easily




anywhoo, I appreciate the support here, it is healing

and I will continue to come back here,

Hope you're feeling a bit less frustrated meanwhile, Lymer... ?

Like Tom says: nothing left to push with... listen to what your body is telling you..., not to what others are trying to make you believe...