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Treatment other then antibiotics work as well?

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Posted 5/31/2013 5:32 PM (GMT 0)
Hi guys,

So forgive my newbieness. I'm just getting started on this quest for health after 6 years of being misdiagnosed with CFS.

It seems like anyone with "chronic Lyme" tends to lean towards long term antibiotics for treatment. I was wondering if there are other more natural or safe treatments that will give the same overall success. My thoughts/hopes are that there are indeed other options with equal overall improvements but that it may take longer to get those results. Is that true?

Any thoughts on this would be greatly appreciated.
Posted 5/31/2013 6:45 PM (GMT 0)
This is only my opinion. I'm not a doctor, I'm just a Lyme sufferer that has been at this for a year. I'm also not good at throwing out or remembering stats, but here is what I think: herbs are gentler on your system and are better at REALLY getting the job done. I will let you know that I'm on antibiotics right now, so I'm not against abx! I'm just saying that I think abx can probably get you in remission, by driving the bugs deeper into hiding, but I don't think it truly gets rid of the problem.

If you are really sick right now, I would say abx will probably get you relief quicker, and put you in a position where you can think straight and really plan an attack. But some people for whatever reason can't always tolerate abx, they have no choice but to go the herbal route but they do find health!

You will get opinions for both and one of the hardest parts of this disease is working your way thru all of this information and making the decision that is best for you. It usually takes a couple of tries to get a good protocol going. It's trial and error.

This is a great forum with great people and good info. Glad you found it. Start by reading the 'New to Lyme?' Thread at the top of the forum page.

Good luck!
Posted 5/31/2013 7:50 PM (GMT 0)
Hi,

That's the response I was hoping to get. But anyone out there with some thoughts please post them for me. I'm not opposed to abx but at the same time I'm not opposed to something that may take longer if its easier on my system. Ultimately though I just want some relief. I don't believe I am nealry as bad as some but that said I am extremely fatigued almost all the time.

Thanks!
Posted 5/31/2013 7:57 PM (GMT 0)
Hi Kineson,
I happen to have healed using only natural methods (other than an antidepressant that I was using for sleep). If you have read my 'story' on here through many posts, then you already know which infections I've had and how I've treated them. Although you can feel free to ask me any questions -either here on the forum or by email.

My opinion on the natural route is similar to what Shabbychic has said, only I believe that those that are quite ill would fair better starting off on the herbs only, as they are gentler to the system and will work synergistically with each other as well as with the body.

The problem we all face is that no one treatment will work for everyone, as these infections play on the body's weaknesses. So the protocol that works for each person will be as unique as that person is. The best thing to do -in my opinion - is to trust your gut in what you want for your body, then realize that whatever you choose, it will likely need to be 'tweaked' to suit you personally.

So the choice becomes yours and yours alone.
Posted 5/31/2013 11:40 PM (GMT 0)
I'm one of those who was "quite ill" by the time lyme was dx'd... CD57 count of 34, had been arriving late to work for the previous three years due to being so fatigued plus joint/muscle pain plus brain fog, I'd frequently get lost while out running errands, on the verge of either quitting my job or being fired.... and I was SO chronically exhausted that I really didn't care if they fired me. That is NOT me.

I'm using essential oils to heal/kill lyme & company (I'm allergic to antibiotics). I've had some really good results in only three months with the oils.

You have to try different things until you find something that works with your physiology.

Post Edited (sknight) : 5/31/2013 5:46:23 PM (GMT-6)

Posted 6/1/2013 12:43 AM (GMT 0)
Skintight,
What essential oils did you use?
Posted 6/1/2013 12:44 AM (GMT 0)
Sorry I meant sknight - darn autocorrect.
Posted 6/1/2013 1:01 AM (GMT 0)
Really great posts. Thank you all very much!
Posted 6/1/2013 6:18 AM (GMT 0)
Hi Kinerson,

I am another one who has healed without abx. I also was diagnosed with CFS!

Perry Fields is a good example of someone what was extrememly ill and healed without abx also. She now counsels lyme patients. she did it on her own, in fact, and is a nationally ranked-athlete. I mention her becasue you can google her and get lots of info on natural treatments that she did.

anyhoo...there are lots of protocols and ways to approach chronic lyme with or without abx.

The New To Lyme thread lists some of the main ones.

Good luck!

feel free to email me if you want info/list of natural protocols and clinics.

Nan
Posted 6/1/2013 1:47 PM (GMT 0)
Yes, sknight, what oils are you using? I'd love to know.

Prairiegirl, your typo gave me a good chuckle! : )
Posted 6/1/2013 7:49 PM (GMT 0)
For me, i have always done poorly on abx over the years. Now I know that I am heterozygous for both MTHFR A1298C and MTHFR C677T genetic polymorphisms. They effect my ability to detox. So, when I take abx and it nukes everything, good and bad, my body cannot process the toxins efficiently and they poison me, in essence, keeping me weak so the pathogens that are left can take over. Because I have Mycoplasma Pneumonia, Systemic Strep and Lyme, short of vancomycin it's hard to get an abx cocktail that would hit all of them, leaving no gaps. Add to that a saprophytic fungi/mold overgrowth in my intestines waiting for no bacteria to oppose it.. And it's pretty hard strategically.

So, I take herbs, supplements and use diet modifications. The thing about that route is that its much easier on the body to take over long periods of time. Because killing pathogens comes in waves, that is important. Also, many of the things I take address multiple issues. For instance, Triphala is important for my gut that doesn't work properly, it is a blood tonic, to help with die off, it is a biofilm buster, and it has some antiviral and antibacterial properties. Sodium butyrate addresses my gut issues again pairing with berberine to kick yeast butt, focuses on the colon and it detoxifies the ammonia that the pathogens produce as well as the excess trapped by my genetic polymorphism of MTHFR A1298C. This creates a synergistic approach, treating my whole body instead of just trying to nuke the pathogens. We will never nuke them all. This changes the terrain and empowers the body to keep things in line. Our body's natural defenses are more powerful then any drug, herb or supplement. So for me it is about removing the blocks that are preventing my body from doing it's job.
Posted 6/2/2013 5:06 AM (GMT 0)
Re: the oils that I'm taking... check out my post, about 2/3 of the way down in this thread... it's easy to find, there's one paragraph that is "red" in color. But the whole thread is really excellent and full of useful information.


https://www.healingwell.com/community/default.aspx?f=30&m=2746041
Posted 6/2/2013 5:07 AM (GMT 0)
Re: "skintight".... I can only hope ! :)

lol
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