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zithro...racing heart

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Posted 8/3/2013 3:27 PM (GMT 0)
I'm on low dose zithro for about a month. I thought I was tolerating it but when I added the GSE again I totally crashed. Every morning I get up my heart races like crazy and the too tired to breath fatigue has kept me in bed for over a week.

Today I tried to push to get up and get a few things done and my heart just goes crazy. I don't know if its a flare or the meds. I've had all heart tests done in the past and don't want to see a doc because they'll just tell me I'm nuts.

I stopped the gse and am going to break from the zithro until I see my llnd on monday.

I am depressed and scared. I don't tolerate any of the meds and am feeling so hopeless. I am so sick of this horrible disease! If I had the energy I would SCREAM!

Will this heart racing and fatigue ever go away? I feel so trapped in my own body ; (
Posted 8/3/2013 3:55 PM (GMT 0)
Hi Heather,

I was on zithro for months, and it was horrible. I herxed non-stop, my heart would sometimes go crazy. From all the abx I took, this one is the worst, together with minocycline. If my dr would tell me to go on it again, I would refuse - lol.

Please take it slow, do everything you can to detox, and give your body time to recuperate, over and over again. Do slowly with the GSE too, it can be too much at a time, could release too much toxins. Step by step. If you weren't able to leave your bed, getting up is already an achievement. Getting some things done may be too much of it.

You'll need to set some bounderies to yourself, and accept it, it's hard, but once you found a balance, you'll feel more at ease. But it takes a while... eyes

Please talk to your dr and discuss a possible change of protocol. The disease is so hard on one's system, treatment puts a huge strain on it.

MarieLS

 

Posted 8/3/2013 3:58 PM (GMT 0)
Hello Heather LR,

I am dealing with fatigue right now. Fatigue has keep me at home for the last 4 days my heart races if I do to much. I have to take breaks during the day. I am also looking for the right treatment, I finally have an appointment this Monday to see a LLMD....I can't wait.

I hope the fatigue goes away soon for both of us. I agreed this disease is horrible. I am also dealing with depression but we have to keep going.

It took me a long time to tolerated the antibiotics, I am currently on 1000 mg Biaxin, Zithro didn't work for me. Take any new medication slowly and up the dose each day you will be surprise also take them with food.

Post Edited (Csmm23) : 8/3/2013 10:05:28 AM (GMT-6)

Posted 8/3/2013 4:33 PM (GMT 0)
Thank you MarielS and Csmm23. Your words really helped me calm down. If I only had a dollar for eveytime I felt I was dying , my trreatment costs would be covered.

I'm going to have to scratch zithro off the list. I can't live like this. I sure hope the fatigue improves! I try so hard to think positive but some days are just a struggle.
Posted 8/3/2013 4:37 PM (GMT 0)
Csmm23, good luck with your apt by the way! Although ive been struggling I know I wouldnt be here had I not gotten to my LLND! They have the experience to help us. Keep us updated!
Posted 8/3/2013 9:56 PM (GMT 0)
Heather LR, I will keep you updated with my treatment, you do the same...Good luck!
Posted 8/4/2013 11:37 AM (GMT 0)
Hi Heather LR,

I spoke to my LLMD about taking GSE and he said it is so powerful that taken while on antibiotics it will negate there effects.

Sorry to hear you are not feeling better, I still have significant anxiety and panic attacks from lyme after 7-8 years of  being bitten.

Hang in there!

Anna

Posted 8/4/2013 12:23 PM (GMT 0)
I'm with acharms on this. My dr doesn't want me to take it yet, same with Flagyl. Too much for my body to handle, even after a year of treatment...

What's that about patience?? eyes

Posted 8/4/2013 1:31 PM (GMT 0)
Maybe you can try something else Marie. I went on Flagyl and felt no difference actually (wahoo!) but when I went on wobenzyme...everything I thought I was going to feel with Flagyl I felt with Wobenzyme! You can take really small doses too. I got up to 8 pills/day and now Ive switched to nattokinase which is stronger.
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