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My Lyme situation. Please help.

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Posted 9/6/2013 1:55 PM (GMT 0)
Hello everyone, first time posting on these forums. I'm hoping some of you can help me with my situation. Im guessing that I've had Lyme for about 5 months. I quit smoking maybe once or twice during that period (not for long). When I dud quit, I felt like vomiting when eating, couldnt get good sleep, I was VERY easily fatigued, couldn't get a satisfying breath, and had a "heavyness" feeling on the left side of my chest. I was unable to workout. One day I pushed my self hard exercising and had to quit BC of my heart. 30 mins after exercise my pulse was around 85-90 and showed abnormal heart beat using the blood pressure monitor. I finally ent to the doctor (after probably about 4 months in Lyme) they took mi y blood and the results cane in the mail about a week later saying I was diagnosed with e. They then prescribed me doxycycline 100mg for 3 weeks. I didn't feel any better except for the fact I could eat with out the feeling of vomiting. Smoking is the only thing that alleviates my symptoms however I'm currently quitting for awhile so I can heal, and get a job after I heal. Anyways I went back to the doctor and they gave me 3 more weeks of the same prescription. Which I'm currently 1 week into. I don't feel like in getting better, I'm tired of waking up at 5-6 every morning. I want to be physically (and mentally) in shape like I used to. A week ago I noticed when I smile a certain way on the right side of my face, it was twitching. And it still does to this point. I have a feeling my doctors don't know how to approach Lyme. It seems the most their going to do is throw antibiotics at me. I've considered seeing a specialist, however my family is poor and we are on Medicaid. I'm 18 years old and this is not how I want to live my life this young. Any help would be much appreciated.

Post Edited By Moderator (Traveler) : 9/6/2013 9:35:33 AM (GMT-6)

Posted 9/6/2013 3:40 PM (GMT 0)
I'm sorry, Mike, but I had to edit your post as talk of any illegal activity is prohibited - even if it is legal in your state.

Would you mind clarifying what you were diagnosed with? In your post, you just said "e".

If you have tick-borne infections, 100mgs of Doxy is not nearly enough to do much of anything. You actually need 400 - 600 mgs of Doxy for at least 8 weeks for a new infection.

I believe there may be some LLMD's that accept Medicaid, but we need to know the basic area where you are located to be able to help you find any LLMD.

If you haven't done so yet, please read through our "New to Lyme? Start here!" as it's packed full of important information that a can help you. Things like symptom lists, detoxing instructions, helpful links and pdf's.
Posted 9/6/2013 4:46 PM (GMT 0)
@Mike, whereabouts are you located?
~beth
Posted 9/6/2013 8:29 PM (GMT 0)
Sorry, I did not realize it was against the rules. And the auto correction on my phone must of messed it up, I meant that I was diagnosed with Lyme disease. I am currently located I'm Concord, VA. Thank you for any help anyone can provide for me.
Posted 9/6/2013 8:33 PM (GMT 0)
Also yes, I have looked at the new to Lyme thread, but thank you.
Posted 9/6/2013 9:25 PM (GMT 0)
Hi Mike
My best advice to you is to try to finish the 6 weeks of the meds. If it doesnt agree with you communicate that to your doctor and maybe he can find another medicine you can tolerate better. All I can say is that it sucks. And I hope you improve. Try to rest, use the supplements, and destress as much as possible. And obviously you have to have a lot of patience. If you are so inclined lean on your faith. Godspeed my friend.
Hope you find a little bit of improvement each day and are your old self again soon.
Posted 9/6/2013 10:40 PM (GMT 0)
Oh one more tip..is it possible to take the medicine before you go to bed at night rather than during the day ?
Posted 9/6/2013 11:50 PM (GMT 0)
Hi Mike,

Can you click on my name and email me?
Posted 9/7/2013 12:17 AM (GMT 0)
Mike you might want to try magnesium for the twitching. I also take probiotics, antioxidant, joint supplement, vitamin c and a multivitamin. I also just started on a new homepathic tx for yeast.

I use protandim which is an antioxidant with a soothing effect. Natural Ingredients

Milk -thistle _80x 80Milk Thistle Extract
Used for thousands of years to improve health.

acopa -monnieri _80x 80Bacopa Extract
A serious free-radical scavenger.


Ashwagandha _80x 80Ashwagandha
Supports a healthy immune system.

Tumeric -longa _80x 80Turmeric Extract
Powerful contributor to Protandim's Nrf2 activation.

Greentea 3_80x 80Green Tea Extract
Contains important antioxidants.
- See more at: http://www.protandim.com/what-is-protandim/#sthash.pLU64nsB.dpuf
Posted 9/7/2013 3:21 PM (GMT 0)

BarnGurl said...
Oh one more tip..is it possible to take the medicine before you go to bed at night rather than during the day ?


Sorry I forgot to mention I have to take the 100mg doxy twice a day (once every 12 hours). Thanks for your words of encouragement.
Posted 9/7/2013 3:26 PM (GMT 0)

BarnGurl said...
Mike you might want to try magnesium for the twitching. I also take probiotics, antioxidant, joint supplement, vitamin c and a multivitamin. I also just started on a new homepathic tx for yeast.

I use protandim which is an antioxidant with a soothing effect. Natural Ingredients

Milk -thistle _80x 80Milk Thistle Extract
Used for thousands of years to improve health.

acopa -monnieri _80x 80Bacopa Extract
A serious free-radical scavenger.


Ashwagandha _80x 80Ashwagandha
Supports a healthy immune system.

Tumeric -longa _80x 80Turmeric Extract
Powerful contributor to Protandim's Nrf2 activation.

Greentea 3_80x 80Green Tea Extract
Contains important antioxidants.
- See more at: http://www.protandim.com/what-is-protandim/#sthash.pLU64nsB.dpuf


Thank you for taking the time to write down that valuable list of supplements. At the time however, I am not able to afford them. I will do so when I get the money though.
Posted 9/7/2013 9:55 PM (GMT 0)
Mike try to get the probiotics asap. You def need them when taking antibiotics. Or if you can eat a high quality greek yogurt with probiotics that would help too. Ask dr if you can take second dose before bedtime ?

Read about herxing. You experience a flare up of symptoms when taking antibiotics. It is due to a die off of bacteria and release of toxins into your body. Its very very challenging to deal with.

Read Dr Burrascano's guide for information about diet etc. Hope this helps and you feel better soon.

http://www.lymenet.org/BurrGuide200810.pdf
Posted 9/8/2013 1:11 AM (GMT 0)
Was looking at the information on side effects of doxy:

Possible side effect
Side effects caused by Doxycycline may appear as headache, dizziness, blurred vision, fever, chills, body aches, red skin rash, pale or yellowed skin, dark colored urine, severe pain in upper stomach, loss of appetite, jaundice, easy bruising or bleeding. Contact your doctor if you experience severe effects listed above.

Drug interaction
Co-administration with aluminum, magnesium, or calcium based antacids is not recommended as Doxycyline absorption maybe slowered. Minerals (such as calcium or iron) or with bi****h subsalicylate have the same effect. Doxycycline is reported to enhance the activity of warfarin. Phenytoin (Dilantin), carbamazepine (Tegretol), and barbiturates (such as phenobarbital) may enhance the metabolism of Doxycycline.
Posted 9/26/2013 3:31 PM (GMT 0)
Hey sorry I haven't been on for awhile, going through alot recently. As for an update, a few weeks ago after drinking the previous night, I woke up feeling weak and fatigued and it was like that the whole day. I finally decided to check my blood pressure when I arrived at my grandmothers. My pulse was about 110 resting. I hadnt done any exercise that day either. I finally web time the energency room because I got worried. They got me back fast because my situation seemed higher priority. I end up spebding 6 hours at the hospital almost until midnight. They ran an ekg(showed OK), X-ray (showed OK), took my temperature through my bottom which showed 101 degrees, and put me on iv. After all that time the doctor comes in with his "diagnosis" and basically said her doesn't know what's going on and it could be from drugs. I told him I smoked that day to try to help calm my heart down. before that I hadn't smoked in a few days because I quit. Now I Know it wasn't from what I smoked. its considered medical in other states. anyways on my sheet of paper they gave me the diagnosis was slight fever, shortness of breath, and drug abuse. I was furious when I saw drug abuse on there. I started feeling better that night, but I had kind of hoped they would be able to find the source of the problem. I am noticing that the right side of my face is starting to slightly sag. mainly my eyelid and corner of mouth. I also still have the twitching when I smile and when I stand up I feel unbalanced and like my knees want to give out. On top of my air hunger and easy fatiguing. Also sometimes when I an watching TV if feels like I have to close my eyes, and reopen them to try and refocus on it. Any help would be appreciated.
Posted 9/26/2013 3:33 PM (GMT 0)
I'm also starting to think my breathing trouble and fatigue may be coming from babesia however I don't think my doctor even tests for that.
Posted 9/26/2013 3:37 PM (GMT 0)
Mike - were you able to contact that herbal school? If I remember there are no LLMD's near you.

I'm sorry you are feeling so poor. I would recommend starting some type of treatment as early as you can. Whether it is herbal or homeopathy which you can get many of those online by yourself.
Posted 9/26/2013 3:50 PM (GMT 0)
No I have not. I guess it may be because of how unknowledgeable I am with the use of herbs and how effective they are. At this point im willing to try any thing though. Is there any possible way you could resend the information? I have alot of junk email and sometimes emails seem to get lost. I would highly appreciate it
Posted 9/26/2013 3:57 PM (GMT 0)
Just re sent it.
Posted 9/26/2013 4:09 PM (GMT 0)
Ok thanks a bunch
Posted 11/17/2013 1:54 PM (GMT 0)
Just wanted to check in on you mike!
Posted 11/17/2013 2:16 PM (GMT 0)
Mike do not smoke.Lyme disease can with every system in your body and smoking can trigger massive panic attacks. Since you seem to be experiencing neurological symptoms the exercise intolerance, erratic heart rate and temperature deregulation may mean Vegas nerve inflammation. I had it and it was terrible.
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