Hi there!

I haven't been on the internet much , I am having a hard time with the seizures, one good thing I guess, I fell last week, and bumped my head due to a nasty seizures, landed me in the hospital. The doctor are no longer calling them fake seizures, now it's just seizure disorder.

My sister is helping me research, because I have been getting worse, but I do believe I can put this disease into remission, just have to figure out the right plan of action.

For the last month or so , I been in bed, now I am starting to be able to get downstairs a little more, that is a good sign, I hope to see a new LLMD soon, I was to much of a case for my other one, I think, she is referring me to one that does both abx, and herbs.

The price of these LLMD's are crazy, and without a job, it's almost impossible to get to see one, but I am not giving up. I have applied for disability, I still think I can put this into remission, but right now, I could use a insurance card, and a regular check coming in, so I am fighting it.

I did read a lot before I filed, and I got a lawyer right away, so hopefully it speeds up the process, it was a difficult decision, but it had to be done. It's hard when you have worked in a field for a long time, I was in accounting, and couldn't even remember my name. I feel that this is a temporary set back.

The seizures are casing major issues with my legs, so we are looking into a wheel chair, again it's only a temporary thing, I am going to fight tooth , and nail to get my health back.

I am going to be tested for co infections, I do believe I have a few along with the Lyme, just waiting to get the money to do it.

No matter how bad it gets please do not give up, I just wanted to say that.

Also for pain my sister brought me some nettle leaf, and it's works really well, it's part of the buhner protocol, he mentions it on his web page, I was crying in pain, and it's giving me some relief. I know different things work for different people, but if it helps me I share it.

Not giving up.

Justme

Hi Justme! I haven't been on for a while and was just checking to see how you're doing. Sounds like you are still having a rough time of it. I hope you find the right LLMD for you to help you heal!

JustMe!!! I missed seeing you on the forum darling. I'm so sorry you're having such a rough time but God can do everything but fail you will be healed I truly truly believe it keep fighting the good fight keep us posted and I will definitely keep you in my prayers.

Justme,

I am so glad that your sister is with you and helping you. I remember you mentioning her before, it is great to have someone that is so understanding.

I had hoped that we didn't hear from you because you were better and busy catching up with life.

You should be proud of yourself for applying for disability it will help with the stress. When I was approved it was like a weight lifted off my shoulder, of course I waited too long to do it! So good for you!!

Have you tried medication for the seizures? I really hope you find an excellent doctor sometimes it is best to move on and try another. This disease is so complex.

I think the co-infection testing would help. I read somewhere that 66% of individuals infected with lyme also have babesia.  I'm not sure where I found this. I was positive for babesia before lyme. I guess more information is always good to have.

I hope soon you will be getting some relief.

Positive thinking is so important!

Anna