Do I wait?

This is my battle I've been in for the past 3 months or so. It started on june 10th when I was at work. I was talking to a customer of mine when I started yawning. I yawned maybe 5 times in a row then it hit me. The whole room went white and I almost passed out. When the bright light faded I felt almost inside out of my body as if I was no longer in reality. I had high anxiety as to what had happened and why my brain now felt as if it fried itself. I went to work the next day and barely made it through a 7 hour shift. I had to drink powerade every 10 minutes just to walk about the building for 30 mins. It was as if I had a low sugar problem. I went to the doctor the next day where she looked at me and said you're probably dehydrated so go home and get some rest. Went back to work the next day. I would talk to customers and my head was inside out and felt as if my brain couldn't process simple conversations and my memory was becoming loose and faint. I could barely remember what day it was. I went home slept and did this for about 3 weeks. I was drinking about a gallon of water a day at this point. I realized then that there was definitly something major wrong with me and went back. I asked her if she tested me for lyme she said no. At this point the room was moving I couldn't go outside without sunglasses on all day. I felt unwell all around. When I ate food anything for that matter I would get a full body sensation of what I ate or was eating that I was allergic to it. I felt so sluggish and my brain fog and comprehension of anything was so depleted that I was worried my brain was fried or frying itself. I was eating ALOT of food and I was staying exaclty the same weight. When i mean alot i should have gained probably 10 pounds atleast. I told the dr I was fatigued and everything now hurt. I mean EVERYTHING. She put me on doxy for 2 weeks. Day three into the doxy the sun sensativity was going away the room stopped moving shadows no longer seemed to move around. My feeling of unwell / anxiety was going away. I was on it for 3 weeks. I knew i wasnt 100 percent not even close but she would not give me anymore doxy. So the test had come back negative but she said I was perfectly healthy with everything going on in my body. Yeah well I know my body and brain and it was WAY off from the 29 years I've known it. about a 5 days after the doxy was over the room started to move again anxiety was back and so was my general unwell feeling and eating was still causing intense body sensations all over. So I put myself on amoxicillin at 800 milligrams a day that i had from about a year ago from a surgery. It all started going away again. At this point i knew that i had a bacterial infection and it was pretty major if 3 weeks of doxy didn't get rid of it. I went back and saw a supposed specialist who believes 1 month is max. I said to him why don't you give this to people till all syptoms are gone he started with the post lyme syptoms jargon. He then took more blood and shrugged his shoulders and said I have no idea whats wrong with you. The doxy seems to be working and you putting yoruself on amoxi helped too so i'm going to give you another month.

This is where I am now. When I close my eyes it seems they are pulsating and moving around my head feels way off about 4 hours into the day. Brain fog and comprehension problems. Eating still causes intense body sensations 2 hours after eating. the fatigue part went away i can make it through the whole day without having to sit down. Towards the end of a work day tho I'm so spent mentally that i feel as if its going to all just start over again. I'm at a loss at this point as to whats going on it has now been a week. And the sensations from food are getting sooner and sooner as is the brain fog. Where do I go from here?

My symptoms to the best of me remembering
Unwell feeling through my whole body
vertigo
sun sensativity
stomach problems
not in reality or real world
brain fog
forgetfullness
anxiety
heart palpitations
achey joints
hearing problems as if everything was too loud
had a 4 day hangover after i drank 3 beers during when she told me i was dehydrated.
UNBALANCED.. weird distance perceptions. I would look at my arm and it almost felt out of place This still happens from time to time now.

So do i see a real LLMD at this point? I'm lost, confused, scared. Also my second test came back only with one band on the test postive it was 24 or 26 I can't really remember. And he said it's not enough bands on the ign test to be positive. Any ideas do I wait or find someone who knows whats going on?

Hello Lavigne,

Welcome to the forum! I am sorry you are going thought a difficult time. Reading your post reminded me my own experience, I had most of the same symptoms. I went to see many doctors and they kept denying I have Lyme because the only positive band was band 58.

This is my second month of treatment after 5 months of trying to find an answer to my symptoms. I now see an LLMD and yes you should find one. I started feeling better after a month of treatment, my doctor put me on 2 antibiotics.

Detoxing is a big part of healing. click on New to Lyme.... Start Here, you will benefit from the information it is helping me a lot.

I wish you the best and I hope you feel better soon!

Carolina

Welcome Lavigne, I have had many of your SAME symptoms, even down to the yawning...My LLMD says I have Lyme + Babesia.. One further note, with 3 Lyme tests all I get positive is Band41.....Good Luck.....Keep reading.

Post Edited (mikeb2308) : 9/22/2013 6:39:33 PM (GMT-6)