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Posted 9/24/2013 7:56 AM (GMT 0)
I'm crying because of the pain in my left eye... I had eye problems for a very long time, also the stabbing ones, but this is as bad as it gets...

I'm at work, at my desk, but I can't even drive home, cause the pain makes me close my eyes and bend my head...

Maybe inflammation?

 

Posted 9/24/2013 2:49 PM (GMT 0)
ok, so I called the ophthalmology dep at the hospital asking if I should go to the ER or if they could arrange something for me. They squeezed me in for a normal consult. Dr tested everything, my eyes are both normal.

But he knew a lot about lyme (has a friend dr who has it) and was very cooperative. Said that  treatment is very hard and difficult, seemed to know a lot. It's neuropathic pain and he insisted on me seeing a specialist to keep that pain under controll.

 

Posted 9/24/2013 3:08 PM (GMT 0)
Oh Marie,

I'm so Sorry! If its the pain I'm thinking of its horrible. Like someone is stabbing your eye with an ice pick? Its called a suicide migrane if that helps the docs out. I've only had it once but know enough about why it gets its nickname. Hang in there!

~beth
Posted 9/24/2013 3:40 PM (GMT 0)
that's exactly what it is Beth - just looked it up, it's a cluster headache aka suicide headache.

one side of the head, stabbing in the eye, tearing eye, running nose on that side of the head, and it started at work when I was just about to fall asleep behind my pc.

Thank you,

Marie

Posted 9/24/2013 3:42 PM (GMT 0)
Hi Marie,

I am so sorry to hear you have the eye pain. I can't believe how much it can hurt. I have noticed that for me, light sensitivity can bring it on. I've found if I feel it coming on and immediately shut the shades, and put sunglasses on, I can minimize the intensity and duration of the eye pain.
I'm sorry that it has you stuck. I hope you get the pain medication you need. I'm 34 too, and sometimes it's nice just to know someone else is going through this. Although, I don't want you to have to go through this. Thank you for sharing. I hope you feel better soon.
Posted 9/24/2013 5:54 PM (GMT 0)
Hi there,you poor little mite sad

I would have responded sooner,but I wanted to talk to my lovely neighbour who suffers from this kind of headache with depressing regularity.

She told me that the only thing that has ever helped her,is sleeping with an oxygen mask!.......pain killers were useless and she refuses steroid shots.

She doesn't have Lyme and the doctors are clueless as to where and why the headaches originate,sometimes they last for weeks.

I hope your's goes away soon,you have been through more than enough recently.

Sending you hugs from across the border.

Tickled
Posted 9/24/2013 6:52 PM (GMT 0)
Hi Marie,

You poor thing. cry    I hope this pain goes away REAL soon.  My nephew suffered with cluster headaches and if it is anything similar to this I can certainly empathize with what you are going through right now.  Hang on tight.

Patty  xo

Posted 9/24/2013 11:09 PM (GMT 0)
Im so sorry. This sounds terrifying! I try deep breathing exercises when I get eye problems, my holistic therapist taught me. Its simple. First, try to calm down as much as possible and close your eyes. Look up as far as you can with your eyes closed and breathe in, then look down as far as you can with your eyes closed and breathe out. Repeat 9 times.
If anything, it takes my mind off the pain. My Lyme causes conjunctivitis so severe they swell shut at times.
Good luck and love!

Annie
Posted 9/25/2013 7:48 AM (GMT 0)

Thank you all for your kind help... what would I do without you...

@Roots, it helps so much not to feel alone, you are very right...

@Tickled, that's very sweet of you doing the effort of seeing your neighbour. Painkillers do nothing at all. After I got your message and had a nap, I looked up some information on cluster headaches and taking in oxygen whenever you feel it coming up seems to help a lot. Now I need to figure out how to get my hands on oxygen without having to wait weeks to get to a neurologist.

@summer16/Patty, thank you, it lasted for about 3 hours before noon and then came back in the afternoon... hope I won't get it today.

@oaklandpisces/Annie, thank you for the tip, I'll try to do it next time. I don't know if I will be able to, but I can try it when I'm having a migraine attack or other eye problems - breathing exercices can do wonders!

Thank you very much

Posted 9/25/2013 9:43 AM (GMT 0)
Hi Marie,

How are you today?

You can buy oxygen on amazon without any problems.....6 litres cost about 8-9 euros.

Tickled
Posted 9/25/2013 10:20 AM (GMT 0)

No attacks yet today, the usual rather intense headache, but not like yesterday ... eye socket still hurts but no stabbing in the eye. So I'm a happier mite than yesterday wink

I emailed my dr, and he wants me to try Lyrica, 2x 300mg per day.
I will try the oxygen though, I prefer that to heavy medication. I read that Redbul can be efficient (taurine + caffeine), but I'll leave that solution aside - lol.

Posted 9/25/2013 10:04 PM (GMT 0)
Good to hear Marie! Hang in there!
Posted 9/26/2013 2:21 AM (GMT 0)
I've had this from pollen allergies...can last days...but allergy meds (antihistamine eye drops, oral anithistamines) help... Eye doc said my eye was fine, but the inner lining of the eye-lid was covered with tiny bumps (like hives, only tiny) from allergies. It caused stabbing pain in my eye...
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