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Rough few days. For people who been going through this. Some help to go on.

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Posted 9/29/2013 5:31 PM (GMT 0)
Good morning everyone,
The past few days have been ROUGH. I started the AL-Complex last Saturday and within this past week have felt worse. I remember going to the Dr about two years ago when I felt this way and they started me on Tegretol. It really helped calm me down, but a majority of the symptoms remained and therefore I remained on Tegretol until I weaned off about a month ago, so this could be withdrawal symptoms, but I doubt it because I weaned off slowly.
Once I started the medication, I feel like my heart stops beating then sloes down the flutters to catch up and I gasp for air. When I stand up, I get very dizzy. My appetite and digestion is AWFUL. If I eat anything starchy or carb related, I end up getting low blood sugar symptoms (odd taste in mouth, dizzy, ravenous hunger.) When I do eat, I feel sick and I am bloated in my legs and arms and very very stiff. I have terrible constipation. I have cystic acne on my scalp and back again. I have the conjunctivitis in my eyes STILL. I am tired tired tired tired... I go to sleep at 8am, nap during the day and wake up around 9 if I am not barely making it into work.

Last night, after dinner I was still hungry and I ate a decent amount of coconut butter. about 1/2 a cup. I haven't been eating carbs and my body is surely in ketosis and craving fat. I have had these fat cravings for about two years now, but after eating the coconut oil this time, I got very ill. I was throwing up (and other things,... keeping it clean) all night.

I feel like I am losing my mind right now. I am really sorry for such a negative post.

I decided today to lower my thyroid medication back down to 1 1/2 grains from 1 3/4 in case that is the culprit. I also want to stop the B vitamins I am on, I am worried the B vitamins can be causing a lot of this as well. Although I cannot find any articles online about that. I am just going to take the AL-Complex, the 1 1/2 grains of Thyroid and my D vitamin.

I am confused with the thyroid meds because I have read somewhere that symptoms like I am having happen when you aren't taking enough Thyroid medication, and I notice that after I take my medication in the morning that I feel significantly better, then I start to crash again in the afternoon. I am going to post on a Thyroid board as well asking about that.

With all of these symptoms, I dont even know what to think anymore...

Some questions:


1. Did you see old symptoms arise once beginning treatment.

2. How long does the Herx go on for

3. Does anyone else feel their symptoms get worse at a certain time of the year? (Mine are all around this time up until November.)

4. When everything started to get REALLY bad again was when I began taking the Thyroid meds. Can stimulating your thyroid hormones bother the Lyme and cause an increase of symptoms?

For all of you who take the time to read and answer this, thank you.


OaklandPisces



idea
Posted 9/29/2013 5:43 PM (GMT 0)
Hi Oakland,

Sorry you are going through a bad time. It seems to be a once a day occurence on this end. I just started new medications higher doses and yesterday I was ill. Today seems to be a steady stream of dizziness I cannot shake. I usually need to eat all day to prevent this. high protein stuff. Read this online also:

The Jarisch-Herxheimer reaction is a reaction to endotoxins released by the death of harmful organisms within the body.
Presentation

It resembles bacterial sepsis and can occur after initiation of antibacterials, such as penicillin or tetracycline, for the treatment of louse-borne relapsing fever (80-90% of patients) and in tick-borne relapsing fever (30-40%). An association has been found between the release of heat-stable proteins from spirochetes and the reaction. Typically, the death of these bacteria and the associated release of endotoxins or lipoproteins occurs faster than the body can remove the substances. It usually manifests within a few hours of the first dose of antibiotic as fever, chills, rigor, hypotension, headache, tachycardia, hyperventilation, vasodilation with flushing, myalgia (muscle pain), exacerbation of skin lesions and anxiety. The intensity of the reaction indicates the severity of inflammation. Reaction commonly occurs within two hours of drug administration, but is usually self-limiting.
Posted 9/29/2013 5:51 PM (GMT 0)
Thank you, I am very familiar with the Herx, but I am just confused as to if it is my Thyroid, if it is the medication I am on for that or if it is the Botanicals.
I dont know what to think.
The Dr's all dont know, my body obviously can't talk to me and I just have to do trial and error until I find out.

So thankful for forums where people have been there and done that.
Posted 9/29/2013 10:46 PM (GMT 0)
Honestly, it sounds like it was the A-L and the coconut butter from how you have it written out in your first post above. Coconut has antibacterial properties, among other things, that can really kick up the amount of toxins that we have to deal with.

I wouldn't think that thyroid meds would have that affect - but it wouldn't surprise me much either.

Have you had your adrenals checked? The crashing in the afternoon is what's making me wonder if that has anything to do with your problems.
Posted 9/30/2013 12:53 AM (GMT 0)
Yes, my adrenals are fatigued and my Cortisol is high in the afternoon. I took 6 weeks of adrenal support and cortisol meds.

I'm just so tired. I can't even walk up a incline without my heart beating out of my chest. I can't eat without getting nauseas either.

The weirdest thing is the reverse feeling. I feel like everything is going backwards symptom wise.
Posted 9/30/2013 12:04 PM (GMT 0)
I too am from the Bay area, but now live in Boise, Idaho...The Docs up here dont even believe in chronic lyme so it has been frustrating..I now use the dr.hulda clark parasite cleanse-black walnut hulls, cloves and wormwood along with colloidal silver and many different prescription strength detoxifying agents as well as nutritional supplememnts to keep the immune system built up. I have had Lyme for 30 years, but diagnosed 2 years ago and spend most of my days bedridden due to having Chronic fatigue syndrome as a co-infection. I am also on the Byron White formulas and o througha 3 day herx every week at same time..thursday thru saturday, but after a year of treatment, with my own research, the herxes are getting better and shorter in length..I know what you are going thru oaklandpisces..Its a rough way to live..i went from jogging 5 miles a day, working 12 hour days, to bedridden most of the time..my life has been stolen out from under me and nobody around here (idaho) understands or believs what I am going through..this is the first post ever on a forum and believe I was guided here for a reason...I have come close togiving up several times due to the herxes being sooo bad, but finally they are lightening up enough to bare through. Pumpkin seeds are,my newest addition due to its killing agents. I have been through several western Meddicine/antibiotic trials with no success, but since stopping all tht0at and using the naturopath way, I am improving, but its been longgggg haul...feel free to contact me if you want/need to chat..i am always home/vailable for Lyme improving conversation..thank you...Hope myfirst post goes through..dont know if I helped or not and hav lots more to say, but i will leave it t tht for now
Posted 9/30/2013 2:29 PM (GMT 0)
One of the commentors posted about ketogenic diet and hypothyroid symptoms in this blog post:

http://perfecthealthdiet.com/2013/09/autoimmune-panel-wahls-ballantyne-jaminet-gray/#comments

"Sarah’s point about how ketosis worsened rheumatoid arthritis by dysregulating cortisol is interesting. But more provocative is her point that reduced leptin could cause the thymus, which direct T lymphocytes of the adaptive immune system, to atrophy. I’ve long wondered why ketosis seems to be often followed by autoimmunity, most frequently in the form of hypothyroid conditions but also other, “fibrotic” forms of autoimmunity such as RA. So many people become ANA positive after being on a ketogenic diet. I’ve long thought that the timing was more than just pure coincidence."

Paleo used to be all about very low carb/ketogenic diet, but I think people's minds are changing...
Posted 9/30/2013 2:42 PM (GMT 0)
"Yes, my adrenals are fatigued and my Cortisol is high in the afternoon. I took 6 weeks of adrenal support and cortisol meds."

Why only 6 weeks of therapy? Did you retest and find out that's all you needed?
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