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Lyme Disease
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Posted 10/7/2013 6:14 PM (GMT 0)
Hello, recent events....I made contact with an LLMD here in MI but cannot be seen until mid November. The office staff was wonderful and

stated the DR. would work hand in hand with my GP. The cost is out of pocket so ill have to be crafty in finding extra moneys. My GP has been

beyond wonderful and listened to me and what I wanted to do and also said she would love to work hand in hand with the LLMD. She initially

was going to give me 100 to 200mg of Doxy for 2 weeks!! Im like, no way sister ive been infected for 2 years I need at least 400mg, She agreed and gave me a months supply and will re evaluate in a month.

Had some issues with INS paying for the doxy but with my background of managing a doctors office for 4 years, I was able to get them to cover it and will be picking up my script today. I also picked up

a 5lb bag of Epsom salt, 6 bottles of hydrogen peroxide, a hard bristle brush, a bag of lemons, a bottle of VIT C, and 6 jugs of water. I spoke with my babies ped and after speaking with another doc they have decided we are to take the boys to U of M pediatric

infectious disease specialist. ok a litle scared!!! but thankful we are addressing this while they are 2 months old VS 2 yrs old!

Now im not sure if the abx will be enough to help me or what. My test results were Lyme IGG/IGM 1.76 which was high and only band 41 reactive + I don't know what any of this means lol. I pray the abx

work ok with my antidepressants and anti psychotics, my GP said they should be fine but as you all can imagine I am so scared over here!!
Posted 10/7/2013 8:52 PM (GMT 0)
Awww, Hi EMT mom,

I'm glad you have a plan - it sounds like a good one! Hang in there and come online when you need to vent.

As far as extra money goes I've been making some extra loot by selling on ebay. It takes time to learn what sells and what doesnt and what is worth the time and what is not. Estate auctions are good as well. I raked in a carful this weekend for $17 and should be able to profit $400-$500 though it will take the entire month and a LOT of work to post everything, sell it, and ship it. You also have to keep in mind about what will ship easy too when buying.I dumpster dive too. And Goodwill.

Just an idea.
Posted 10/8/2013 1:55 AM (GMT 0)
Which llmd? West side of state?
Posted 10/8/2013 4:41 AM (GMT 0)
Good for you EMTmom4, sounds like you are off to a great start!!
Just watch your sugar intake on the Doxy, caused me a lot of grief with yeast issues. I didn't pay enough attention to probiotics but I do now!
A bunch of us Lymies have yeast issues, so, an ounce of prevention is worth a pound of cure.
Good Luck.
Posted 10/8/2013 12:42 PM (GMT 0)
Opugirl, those are some fantastically ideas, you sure are crafty :) I'm going to try and sell some things on Craigslist. It's about the best I can do with all these kids running around. An 8 yr old, TWO 3 yr olds, anddd 2 month old twins!!

The LLMD is in saginaw.

Thanks for the advice Mike!
Posted 10/8/2013 1:35 PM (GMT 0)
One thing we did was to pay the LLMD with a cash back credit card.

We payed this off with a low-rate line of credit and rolled the line of credit back into our mortgage when it came due.

Now with the extra money we have from not seeing the LLMD quite so much, we are making extra payments into the mortgage which goes straight back to the principle.

Please be aware that an ID doctor will follow CDC/IDSA guidelines for testing and treatment.  The CDC lyme tests are not as comprehensive as IGENEX testing by a knowledable LLMD, and the results are interpreted differently.  

Reaction to any one of the lyme-specific bands (antibodies to borrelia are the only cause for the reactivity of these bands, weakly or strongly) are not considered as positive proof of infection by the CDC/IDSA.  The CDC requires a reaction on many bands for a diagnosis.  The IDSA will likely not consider testing for coinfections (bartonella, babesia, ehrlichia, RMSF, mycoplasma).  These coinfections can cause more symptoms/problems than the lyme actually will.   

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