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It's been a year, I don't know if I have lyme or what.

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Posted 10/13/2013 3:38 AM (GMT 0)
Well I have 120 100mg of doxy, do 3 a day for a few weeks and see what happens?
Posted 10/13/2013 3:07 PM (GMT 0)
I don't believe anyone answered your question, "so is there actually ever any remission?" The answer is YES!!! I am in remission!! For the Lyme and Bartonella, I've been in remission for 1 yr and almost 10 months now, and for Babesia it's been almost 10 months.

After going back and looking once again at your original post in this thread, I can see that you do have a handful of symptoms. So with the abx, 400 mgs a day is for those that have NO symptoms (other than possibly the bulls eye rash) but are testing positive for the infection. Doses of 600 mgs a day are usually needed as Doxy must be at high levels in the blood to be effective at killing this very complex bacteria. Other wise the only thing the Doxy is doing is keeping the bacteria from replicating, which will likely bring a relief of at least the severity of your symptoms, but will not actually kill the bacteria that's causing the symptoms. This will allow the disease process to start again as soon as you stop the Doxy. Doses of at least 400 mgs a day and preferably 600 mgs a day (divided into 2 or 3 doses of 200 mgs) are required.

Considering that you have had this going on for a year, it's likely that even Doxy may not be strong enough, as your infection is now chronic.

Although, if you are just trying to hang on until you can find a LLMD to help you, then 400 mgs a day may be helpful, as it can reduce your symptoms a bit.
Posted 10/15/2013 12:36 AM (GMT 0)
Start right at 400mg or ramp up from 200 after a week?
Posted 10/15/2013 12:47 AM (GMT 0)
Ramp up slowly & cautiously, always watching for a herx. If you do herx, stay that that dose for a few more days and increase your detoxing - either add in more things to help you detox. Start with more baths or foot soaks, dry skin brushing and drinking lots of lemon water - or you can add in activated charcoal.

If you want to use the activated charcoal, be sure to take it 2 hours before and 2 hours after you take any pills (supplements, or other meds) and food, as it will absorb and usher out of the body all it comes in contact with! It's not picky!
Posted 10/15/2013 12:48 AM (GMT 0)
So 2hrs before breakfast and 2hrs after dinner
Posted 10/15/2013 12:58 AM (GMT 0)
I would start with once a day to see how it goes. Let's say your going to take it in the am, so that I can give you an example:

So that would make it 2 hours after breakfast, supplements, meds, herbs. Be sure it is also 2 hours before you eat lunch or take any meds, supplements, herbs or more food. Otherwise the charcoal will absorb it all and take it out of your body before the body can use it.

And be sure to drink plenty of water during the 4 hours that the charcoal is working so that the things that the charcoal absorbs can be flushed out of your organs and out of your body.

Was I able to make it clear as mud for you? :-)
Posted 10/24/2013 9:26 PM (GMT 0)
Well today's day 8 on doxy, I did 200mg/day the first 7 and now 400mg/day... i'm very cautious to let myself think things are any better, but everyone has noticed that i'm acting "like my old self"...  please oh please let this be knocked out for good.

I do have a lot of random muscle soreness, not sure if that's the doxy or what... haven't really noticed any "herxing" problems, overall everything is better and passion for life tends to be coming back.

Posted 10/24/2013 9:47 PM (GMT 0)
That's wonderful news!! Congratulations!!! turn

Are you detoxing? The Epsom salt soaks will help that muscle soreness. Epsom salt soaks have been used forever for sore muscles!
Posted 10/27/2013 5:28 PM (GMT 0)
Have not detoxxed, symptoms come and go at this point... I have two strange small rasges on my shoulder they don't look like lyme

Getting difficult to take this much doxy per day, get very close to throwing up an hour after ingestion
Posted 10/27/2013 5:48 PM (GMT 0)
Be sure you are eating something substantial before taking your Doxy. Don't lie down or recline for at least 30 minutes after taking it either. Be sure to drink plenty of water after taking the Doxy too.

Detoxing is necessary to help get the toxins from the bacteria dying off - it also helps with the symptoms, but that's not the only reason we suggest it all the time.

Just so that you know, Lyme rashes come in all shapes and sizes. You should 'google' Lyme Disease rashes and take a look. It's just that Lyme is the only one that causes the bulls eye rash.

If the rashes look more like scratch marks, then think Bartonella. If the rash looks more like small red pricks on your skin, then consider Babesia.
Posted 10/27/2013 10:30 PM (GMT 0)
hi Is, I can tell you from my own experience, when I was about your age, I first began having insomnia, and anxiety. after going thru hell for almost 20 yrs, being told I have fibromyalgia, an anxiety disorder, bipolar, chronic fatigue, and alot of other mess, now I have recently being diagnosed with lyme disease. I believe I had lyme back then when I first started having the insomnia and anxiety.

be your own advocate. read read read. get a second and third opinion with a llmd. I was not convinced I had lyme either until my third LLMD. I understand being skeptical I was too.

Being a Lyme warrior is not something I wanted to be, but here I am. good luck in finding out for sure.
Posted 10/27/2013 10:33 PM (GMT 0)
My muscles hurt like I've been at the gym, is this lyme itself or the doxy? I wouldn't say I've experienced much herx... I have some good days and some says just like normal. I've been on 400mg for 5 days now
Posted 10/27/2013 11:47 PM (GMT 0)
Thats not bad. I likened many of my herxes (most of mine were mild - I could go to work etc) to the 'being hit by a truck' feeling.
Posted 10/31/2013 2:25 AM (GMT 0)
Still doing the 400mg vision staticy like usual, not much energy... can't even notice I'm taking anything
Posted 10/31/2013 4:18 PM (GMT 0)
It will take more than 9 or 10 days to affect these infections. Even for infections less than a week old, Lyme has to be treated for 6 weeks.

Be sure that you are detoxing - this is important as your body can not heal as well or as fast without doing this. The meds you are taking are creating more toxins daily and these build up in your body, making you feel even worse.

Then give it time. Even uncomplicated bacteria need two - three full weeks of abx - and Lyme is an incredibly complicated bacteria!!!
Posted 11/18/2013 7:48 PM (GMT 0)
well did the month @ 400mg, can't say it did much/anything, back to square one
Posted 11/18/2013 8:10 PM (GMT 0)
You could need 600 mgs a day or there is something "blocking" your healing - thyroid issues, adrenal issues, co-infections, or other medical issues can all stop healing from these infections.

The first place I would go if I were you is to 600 mgs of Doxy a day - it's the easiest thing to change. :-)

Next, I would assume that there is a co-infection, since that happens most of the time.

Are you doing anything to help your body detox? Not detoxing or not being able to detox well can stop healing also.
Posted 11/18/2013 8:16 PM (GMT 0)
I did have SED rate, ANA and comprehensive thyroid labs previously... they were all in their respective ranges.

Keep in mind I also have an arachnoid cyst in my posterior fossa the size of a golfball that they tell me "isn't a problem" so maybe it isn't lyme at all, I don't know.

Getting more doxycycline isn't going to be easy.
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