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Monolaurin and Bio Fibrin

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Posted 10/30/2013 3:17 PM (GMT 0)
I am a 3 year Lyme's sufferer. I am presently off abx and using only Monolaurin and Bio Fibrin together but am experiencing a rash that itches quite a bit. I do not want to stop as I am doing as well on this treatment as I have on abx but am worried about the rash. Is anyone out there taking both of these and experiencing the same?
Bobbyboy1944
Posted 10/30/2013 4:06 PM (GMT 0)
I'm on monolaurin but not the systemic enzymes. Boy did I herx from it weeks ago with bad chest muscle pain but I started at 1500mg. I also think it made me more "fluey". I'm now worked back up to 1200 mg. after stopping it and doing ok with it. I think it's an excellent product to be taking for Lyme based on my herx reactions. No rash though but I do get them from time to time from Lyme and company. Rashes and itchy bumps. Unless they are raised welts I wouldn't be concerned it's an allergy. Unlikely you would be allergic to either of those. Are the rashes flat?
Posted 10/30/2013 9:39 PM (GMT 0)
It's possible that you have Candida (especially since you've been on abx for an extended time) that is being treated by the monolaurin, which is causing a herx that is showing up as the rash. Candida can cause rashes on the skin.
Posted 10/31/2013 12:17 PM (GMT 0)
Thanx to all who responded.
Posted 8/27/2014 5:06 PM (GMT 0)
I just started Monolaurin two weeks ago... added to my current protocol of clarithromysin and augmentan. I started with 1/4 tsp and moved to 1/2 tsp. I am feeling achy and tired, chills and sweats and I have reoccuring lyme symptoms that previously were clearing up. I do think this is a Herx and I am determined to stay with the program bc I think I am finally on the right track. I'm not sure I am ready to up the dose yet as I feel somewhat rotten. I'm going to check with my Dr. in a few weeks before adding the bio-film stuff too. I hope this stuff works because my goal is to get off the abx and rely on the monolaurin at some point!!

I'm glad to hear that some of us are giving this a shot. Is anyone else taking this with abx?  Do any of you know of success stories with Monolaurin?

Thanks!

Posted 8/27/2014 6:11 PM (GMT 0)
Sounds you like you are on the right track. I'm currently deciding whether to go back on the monolaurin or see this Naturopath that totally "cured" a customer of mine. I have trouble staying on the monolaurin. A very small amount now (600mg.) makes me very tired (can barely wake up in the morning and also tired at night) as well as feeling fluey and crappy just like you are. It also exacerbates my tingly/burning legs and hits my muscles hard. It's basically a social life ruiner as you don't want to do much of anything while on this stuff. I'm wondering if that alone or with the systemic enzymes would eventually relieve my symptoms. Wish I knew of someone that herxed hard on it and stayed on it.
Posted 8/28/2014 12:55 PM (GMT 0)
Thanks again to those who replied. My rash does consist of raised bumps that really itch bad but they are only here and there and not more than 5-10 at any one time. I am back up to the full dose of Monolaurin now and once I got passed the initial herx I have not had one in 3 weeks. I also am seeing a Chiropractor who is more like a naturalpath and has had good success with Chronic Lyme. Right now he has me on a vegan diet with no gluten as well as taking two products which basically boost and stabilize the nervous system. One of them is his own brand so cannot advise except to say that it has high doses of Vitamins C,D, E, B6, Niacin, B12 plus other stuff. Too early to tell yet if it will yield any results but I'm willing to try anything to make this nightmare stop. I think his theory is that Lyme has the nervous and immune systems inflamed and even if the bugs are being killed those have to be dealt with so that the body can eventually defeat the rest of the organisms on its own. We'll see. Hang in there, some of the Chronic folks are finding answers and regaining wellness so we can too. Ekamaponin
Posted 8/28/2014 4:22 PM (GMT 0)
I had started monolaurin several weeks ago and after a few days experienced severe back and rib pain and exacerbated joint symptoms. I cut back the dosage and symptoms lessened. I continued on that lower dose but did not feel it was doing anything so I decided to "guinea pig" myself. I stopped taking the monolaurin for a week. There was no change in symptoms. I began taking it again last Sunday and after 1 1/2 days developed a horrific headache, severe left wrist pain, rib pain and back pain. I don't know what this stuff is targeting but it is definitely doing something. I guess I will just continue to take it and hope that it actually has an effect on the LD (although how you are supposed to know if it is targeting Lyme is beyond me).

I have seen many posts on numerous websites about people using either Ultimate Monolaurin or Lauricidin, but I have been unable to locate any reports of its effect on LD after long term use. If anyone has seen anything in this regard or has personal experience (either good or bad) please post same. Thanks!
Posted 8/28/2014 5:24 PM (GMT 0)
Thanks for all your replies. When I started with Monolauran several weeks ago, I started at a really low dose 1/4 tsp. ( 750 mg I think). I got a headache immediatly too! ( I am also on two abx). I continued with the 1/4 tsp for a week and then moved to 1/2 tsp. That is when I started to feel all the herxing.... muscle/joint pain and stiffness, eye pressure and inflammation, blurred vision, tingling, tooth pain ... on and on. Also, achy and tired. Today I decided to go back to 1/4 tsp. I'm going to see how I feel. I do not want to stop bc I want this to kill this bacteria inside me... my LLMD has had good success with Monolauran. I'm doubtful at this point that I will ever get to a full dose, but maybe I don't need to. I'm just not sure when I want to add the Bio-film stuff. Please keep in touch and keep me posted every few days to see how you are doing. I am hopeful to hear someone feeling improvement. This disease is so frustrating to me!!!!!

Thx.... donewlyme smhair

Posted 8/30/2014 4:18 PM (GMT 0)
I don't know if this will last but today the joint pain, which has been relentless for the past 4 months, seems to have eased significantly. I don't know if this is due to the monolaurin beginning to work or if I am just going into another remission of symptoms (which usually lasts about 5 - 6 weeks and then they begin to flare again).

I still have not been able to find anyone who actually has used it for any duration to ask what their results were. I am cautiously optimistic.
Posted 8/30/2014 9:21 PM (GMT 0)
Where do you get this monolaurin?
Posted 8/30/2014 10:01 PM (GMT 0)
I am using the monolaurin from http://www.inspirednutrition.com
Posted 9/4/2014 11:03 AM (GMT 0)
Valentinebaby, how are you feeling on the monolauran ? Have your symptoms continued to improve? I started again yesterday with a really low dose ( after taking a few days off) and I'm getting severe lower back ache!! I have had this back ache for a week but now it's worse again. I seem a bit crampy too and numbness in right hand that had previously been better. This is so frustrating to me! Don't know if I should try to stick it out and see what happens??
Posted 9/4/2014 6:10 PM (GMT 0)
I am almost afraid to jinx myself by saying it.....but yes I am still seeing improvement. I am actually wondering if it is working or if the Lyme went into remission again as it has in the past. The constant all over deep joint pain has subsided, the night sweats have greatly reduced, the headaches have disappeared, the stabbing pains are gone, the electrical tingling sensation that went from head to toe during the night has stopped, the intermittent chills have stopped, the soles of my feet don't hurt anywhere near as much, hair loss has slowed down. I guess all I can do is keep taking it and wait to see what happens. I don't know when I am going to add that bio fibrin.

I was contemplating stopping it for a few days again to see if symptoms return, but not sure if that is a good idea.
Posted 9/4/2014 6:35 PM (GMT 0)
 If you are improving I would stick with it!!! Your symptoms seem very similar to mine... although I have muscle and tendon pain too. I have those intermittent chills too and they are wierd. Were you diagnosed with Babesia too? This whole disease and the symptoms are enough to make you want to scream! I am encouraged to hear that you are still doing well. Is it the only thing you take? I am also on Clarithromysin adn Augmenten so that may be why I can only withstand a tiny dose on the monolauren. I was wondering about when to add the biofibrin too?? It says after you reach a full dose of Monolauren, but I doubt I will ever ever get to that dose!! i'm checking in with my LLMD on September 19th and going to ask for some guidance!! Good luck and stick with it.... maybe we are on to something!!
Posted 9/4/2014 8:13 PM (GMT 0)
Valentinebaby- How much are you currently taking? Did you work through the herxes or decrease the dosage? I still haven't started back on it but I also don't see ever getting to the full dose of 9 grams a day.
Posted 9/4/2014 10:01 PM (GMT 0)
I had been on Doxy (numerous times) and every time I went off it a few weeks later symptoms flared (I also underwent 4 knee surgeries in just over a year and after each surgery symptoms exploded). I do not like antibiotics. More often than not, at least for me, they create more problems than they cure. Babesia test came back negative, but I wouldn't bet on the test's accuracy. Right now I am taking the monolaurin, evening primrose oil (2000 mg/day), biotin (5000 mcg/day) and a multi vitamin (swanson once daily multi).

First I decreased dose then decided to tough it out and worked through the herxes I am up to 2 scoops of monolaurin/day. I will say it was brutal for a few days; however, it seems ok now. I am actually going to try to increase to 3 scoops either tomorrow or next day. I will tell you that for the past couple of hours I have been getting some weird shooting pains in my toes and my wrists feel achy and weak and ribs are a bit achy. I really wish I knew if this stuff was working. (That is why I was contemplating stopping for a few days. I figured if symptoms came back strong and then I started it again and they subsided again I would know for sure it was the monolaurin doing something.)

Your thoughts?
Posted 9/5/2014 2:41 AM (GMT 0)
My thoughts are that I would be dead if I were taking 6 grams a day. You're taking 10 times what I recently took that made me herx. I know of one person it did not help but she didn't herx on it so that seems key.

I don't think I would stop it. It's just too complex to tell much by stopping and starting has been my experience. I would move up to the full dose soon, add in the bio fibrin and see what happens over the next month or two.
Posted 11/15/2014 6:07 AM (GMT 0)
Any updates to any of your Monolaurin success stories?
Posted 11/15/2014 2:07 PM (GMT 0)
I'm on it again and dosing up very slowly which is tough with the caps so I'm also doing the pellets. It's still early to say what the outcome will be (I'm only up to about 750mg.) but I'm pretty optimistic right now. My energy levels have been excellent as of late to the point that I have been having trouble sleeping and I'm still not tired. It's weird because last time I took it I herxed with very bad fatigue especially upon awakening. I'm also noticing I haven't been getting the flu-like feelings in the evenings as of late though it's not an every day thing for me like it was a few years back.

I still have a long way to go but it's encouraging that I think there may be some improvement and I'm not herxing as much at this level like I was just a few weeks ago. Time to dose up a bit it seems.

I'd like to hear about others trying it. Someone I recently chatted with on Facebook said this stuff saved her Mom's life. I don't doubt it feeling how powerful it is.
Posted 11/16/2014 1:47 AM (GMT 0)
I am on Monolaurin under the brand Lauricidin. My LLMD recommended that brand.

She told me to take only ONE PELLET a day, for those of you who are herxing.

Margaret
Posted 11/16/2014 4:20 AM (GMT 0)
Margaret- You can start that low but you eventually have to dose up to kill off the bad guys. Each pellet of the brand I'm taking is only 35 mg. and you need to take between 3-9 grams daily for effective eradication of any infection. Lyme requires closer to the 9-gram level. It can take a while to build up but it's necessary as you work through the herxes.
Posted 11/16/2014 4:16 PM (GMT 0)
Happyjo- You can combine it with abx but remember to start slow. I found out the hard way last year when I first tried the monolaurin that it can bring on very severe herxes if taking too much too fast. This is because the body can only deal with so many endotoxins from the bacterial die-off which occurs quickly with this product.

The Lauricidin are pellets that are swallowed whole with some water just like taking pills. I'm taking the other brand that Valentinebaby provided a link to but it's the same thing. I'm also doing caps that I just happen to sell in my store.

I highly recommend trying it but if you do just remember to go slow and be patient.
Posted 11/16/2014 11:37 PM (GMT 0)
Hi ToddPaul,

I'm really glad you posted about monolaurin, bc when I posted about Lauricidin a few weeks ago, I got no to very few responses. I didn't realize I should have used the generic name.

I also had no clue you were supposed to use such a large dose (at some point).

The question is: Is it a broad spectrum antimicrobial? Do I still need to take the hooch, or can I get away with the Monolaurin only? Using the two of them together gives me quite a herx.

Margaret
Posted 11/16/2014 11:47 PM (GMT 0)
What I meant is, Ekamaponin, I'm glad you started this thread, and ToddPaul, thanks for the additional info.!

M
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