LLMD at Mayo?

Howdy!

Anyone happen to know if there are any LLMD’s at the Mayo Clinic?? Am getting some pressure to go there.
Anyone been there?
Thanks.
Wishing everyone strength and healing,

Cynthia

Hi Razzle-

Thanks for the “head’s up.” How long ago did your go there? I don’t really want to go to Mayo, but need evidence to present to my family about why I don’t want to go there.
Fortunately (and unfortunately) my mom is helping me pay for my LLMD, who is great, but she also can’t comprehend why he doesn’t take insurance. Despite my explanations.

Wish I could afford treatment myself, then I wouldn’t be beholden to anyone. Oh well, gotta go to the place of gratitude, right?!!

Lyme is a nasty business, thank God for support groups. I’m sure I would have offed myself or something without it!!

C.

As of today I am also being pushed to goto Mayo. I pushed back saying others with symps like me are reporting on the internet that Mayo is not worth going to get diagnosed with Lyme, FM or CFIDS/CFS. It was two against me, told I should not believe what I read on the internet (my Mom had a successful health expereience at the mayo in Arizona so they feel I should goto Rochester). I tried to explain they did not believe in chronic Lyme. I fogot to mention that I already had a negative IGenex result and I'm not sure Mayo even views IGenex vaforably.

So now I am also interested in knowing if anyone has been to Mayo, were they diagnosed positive for Lyme? Which doctor gave the diagnosis? Are the doctors at Mayo that treat Lyme are they ILADS doctors or IDSA? I just dont have confidence in my spirist this will be a good use of money, time and my energy.

Here are some more links about what we are up against:

www.clinicaladvisor.com/controversy-continues-to-fuel-the-lyme-war/article/117160/

www.ncbi.nlm.nih.gov/pubmed/20946067

archinte.jamanetwork.com/article.aspx?articleid=226373

lymedisease.org/activism/idsa-protest-why.html

Hey Razzle, Mayo sounds like some of my friends and family!!! LOL

Glad to see that JAMA study on IDSA recommendations/guidlines....a bit scary if doctors use these guidelines and less than 25% turn out to be useful.. Lyme looks to fall into the 25% category...so that means 75% of the time the Lyme guidelines are questionable in value. And still we have to fight this battle why....cause doctors dont educate themselves....they are little docbots regurgitating the IDSA guidelines......

Roxie60 said...
I really wish when people write blogs or post commentary / articles on the inet that they would put dates at the top. It makes it hard to reference a commentary when one cant figure out how old the opinion is....

What were you referring to with this post, Roxie?

As for proof of what the Mayo clinic chooses to follow, see Razzles' post and this link:
www.mayoclinic.com/health/lyme-disease/DS00116/DSECTION=treatments-and-drugs

"...A 14- to 21-day course of antibiotics is usually recommended, but some studies suggest that courses lasting 10 to 14 days are equally effective."

"If the disease involves the central nervous system, your doctor may recommend treatment with an intravenous antibiotic for 14 to 28 days. This is effective in eliminating infection, although it may take some time to recover from your symptoms. "

That pretty much says it all - completely IDSA standards!