Questions on helping the PH of the body and vaginal burning

Hi guys, im new here and my name is Ken, and im in need of a lot of help. 2 years ago my fiance was bit by a tic that bit and ran away. She immediately that night got sick. Over time got worse. Had all the symptoms, vomiting at first, muscle pains, the shakes, poor circulation, spasms, nervous system issues, vision issues, dizziness, constant digestive problems, constant trips to the bathroom, poor balance, excessive urinations, shooting pains throughout body, skin blotchiness, lack of focus, brain fog, head pain, organ inflammation, joint pain, bladder issues, chest pains, eye pains, lyme rage, you name it she had it. Took 6 months to find a lyme doc that would treat her. She was bedridden until then. The doctor did a western blot and the results were 3 strands of lyme. Se also did an ekg and has a left bundle branch block on her heart. The doc prescribed so many types of meds for her to take and constantly changed them up even dosage wise. The doc said she was dealing with many co infections and parasites.

She was on like 30 different kinds. For the first year and a half it helped but then had no effects and the doc ran into a wall and stopped seeing her. During this treatment she was on a no gluten diet. Cant lie she stuck to it for a few months but was miserable and had to incorporate normal foods again because she went from 115lbs down to 90 lbs. So after much research she found out about himalayan sea salt from youtube users that have lyme. She started off low doses and worked her way up to 12k mg a day with 12k mg of vitamin c a day.

At this stage she is suffering from vaginal burning and PH imbalance. She has put back on her weight and then a little more. It seems the salt and vitamin c have helped a lot but if she tries to ween off of it she is in extreme pain again. She has been on the salt and c for a year now and its like she is at the end of this but isnt getting that push into a true healing. She still pees a lot and drinks a ton of water. What can anyone recommend to help her get that push to healing. Her day to day lifestyle is so hard right now. She isnt being treated at the moment as she is treating herself as crazy as that sounds im sure she isnt the first one to do this. Currently she is taking probiotics as well.

My fear is that the body will eventually become immune to the salt and c that she will go backwards again or that amount of salt will do harm to her organs. And as we all know its hard to find a good lyme doc. Most the docs tell her she is in need of psychiatric help. We live in charlotte nc so if anyone can point us in the right direction of what to do for the remaining symptoms, that would be much appreciated.

Thanks for reading this.

P.S. I just did some reading up in this forum and discovered that this medicine called rephresh seems to help. Does anyone have experience with it?

Post Edited (Italian_angel) : 10/3/2021 12:24:04 PM (GMT-6)

Hi Bushguts,
Welcome to our community! I am so sorry that your fiance is so ill.

First of all, yes that amount of salt is really bad for the body. It's likely only the high vitamin C doses that are helping any, as it's a great antioxidant. She needs to stop the high salt intake though.

If people really understood how this "protocol" was designed, I don't that many would ever give it a second thought - really! I would like to greatly encourage you to read through this page:
lymeblog.com/modules.php?name=News&file=article&sid=1570

And this one as well:
www.lymeneteurope.org/forum/viewtopic.php?f=12&t=56

I would suggest that you and your fiance check into herbal protocols like Stephen Buhner's: buhnerhealinglyme.com/ or find a LLMD in your area for her treatment and actual healing from these diseases.

If all she is getting is 1200 mgs of sodium daily, and not eating a lot of pre-packaged foods, then she's not using "too much" salt.

According to the Mayo Clinic (www.mayoclinic.com/health/sodium/NU00284

"The Dietary Guidelines for Americans recommend limiting sodium to less than 2,300 mg a day — or 1,500 mg if you're age 51 or older, or if you are black, or if you have high blood pressure, diabetes or chronic kidney disease."

"The average American gets about 3,400 mg of sodium a day ."

And here's the issues they cite about getting too much sodium:
" Your kidneys naturally balance the amount of sodium stored in your body for optimal health. When your body sodium is low, your kidneys essentially hold on to the sodium. When body sodium is high, your kidneys excrete the excess in urine.

But if for some reason your kidneys can't eliminate enough sodium, the sodium starts to build up in your blood. Because sodium attracts and holds water, your blood volume increases, which makes your heart work harder and increases pressure in your arteries. Such diseases as congestive heart failure, cirrhosis and chronic kidney disease can make it hard for your kidneys to keep sodium levels balanced. "

So it would depend on what her diet is like as to whether or not she is risking any of the issues mentioned above. For example,
* 1 cup (237 milliliters) of low-fat milk has about 100 mg of sodium.
*One tablespoon (15 milliliters) of soy sauce has about 1,000 mg of sodium.
* A typical 4-inch (10-centimeter) oat-bran bagel has about 600 mg of sodium
* A slice of whole-wheat bread contains about 100 mg of sodium.

So you can see that it can add up quickly, especially if the person's diet includes those things (& more) that are mentioned above.

There is a saying that goes around Lyme forums - don't kill yourself trying to kill the Lyme. Very appropriate. I would encourage you to encourage her to at least try to find an herbal protocol to get on to and drop the amount of salt that she is getting. I'm not saying anything about her stopping the high dose vitamin C - which is what is most likely helping her to feel a bit better. I too take high dose vitamin C, even now although I have healed from these infections now.

Oops i made a mistake, she is on 12k mg of salt. She suffers from pain right above the bladder. Her eating is mostly like a regular american. She does take probiotics as well. She excercises daily which helps too. We recently bought represh for her in the gel and probiotic form. She now is suffering from that inflammation above her bladder. She said the rephresh has lessened the burning but not all of it. Its early in using it so we will see how it goes.

Is she at major risk for the amount of salt she is taking. Does anyone recommend her to drop the salt and stay on the c? What if she stops the salt and feels worse then what.

I have a question for you mumma, how long did you have lyme and how did you beat it?