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Anyone ever had twitching calves/feet/thighs?

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Posted 1/8/2014 3:28 PM (GMT 0)
Hi All,

I was diagnosed with Lyme and Babesia duncani by Dr. L in upstate New York. I am now on 3grams of Amox per day and slowly ramping up my Azith. But all along through this, my calves and my toes have been twitching. Scary, weird, like aliens visibly crawling under the skin of my calves.

Now I am even getting a few twitches in my thigh muscles, and it is scaring the heck out of me. And in my shoulders and eye. Has anyone ever associated with twitching calves possibly to Bart?

WHY WOULD TWITCHING INCREASE as I am on treatment? If it were a herx, wouldn't there be LESS MAGNESIUM LOSS due to fewer bacteria, and therefore LESS TWITCHING? WHY does it seem to be spreading up my legs and into other areas now?

Please I hope someone can answer--just knowing that others have had twitching in calves and then other places as well would be a relief. THANK YOU!
Posted 1/8/2014 4:35 PM (GMT 0)
Hi Mylyme,

I never really got twitches in my lower part. More jerks for me then twitches but twitches are very common with lyme. It could be a lot of things, nerves, herxing. When I was on abx at first my nerves went crazy. If you have the bugs in your CNS it can cause a bit of havoc when they start dying right next to your nerves. Magnesium loss isn't necessarily the cause of the twitching though sometimes it might relieve it.

I found in my personal situation that even when the bacteria was removed, it is almost like my body wasn't used to not having the bacteria there so a lot of my systems were 'off' and needed to be corrected even though I was no longer affected by lyme. Ironically this only happened after removing the bugs!

Are you detoxing and How new to treatment are you?
Posted 1/8/2014 4:39 PM (GMT 0)
I twitch CONSTANTLY. Same as you. Feet calves quads mostly. You are twitching mostly because of die off of bacteria and your immune system irritating nerves. Low magnesium can also contribute but my llmd and neuro told me it's irritation and will probably be the last symptom to go. You can help it by cutting out gluten and controlling yeast if you have it as many limies do also.

Post Edited (Will228) : 1/8/2014 9:42:21 AM (GMT-7)

Posted 1/8/2014 5:29 PM (GMT 0)
Hi Opugirl and Will and All,

Thank you so much for your replies! It REALLY helps sometimes just to reach out and hear from others's experiences.

It is such a bizzare disease. I can see my toes move by themselves, calves and thighs twitch, to name just a few of over a dozen symptoms. Happy to hear I am not the only one with feet calf quad twitches.

In answer to your question, i guess I am rather new to treatment. I tried Mino but had a bad reaction so had to start all over again.

I did 4 mos of malarone for babs. That is over and we will see if i need it again or more. Now I have been on Amox for 2 and a half months, and I take one Zith every two days. Doc L in Pawling wants me to get up to 500 Azithromicin in addition to the Amox. I am moving slowly because i dont want to go too fast and have it backfire.

Will, believe it or not, my calf twitching is so bad sometimes that I even try to sleep by pulling my toes so the calves are tight and then they dont twitch as much. It is incredible.

Any thoughts? THANKS AGAIN!
Posted 1/8/2014 5:58 PM (GMT 0)
I have twitches everywhere, all over my body... even in my tongue... VERY annoying. Worst twitching parts are my legs (thighs and calves), toes, hands, tongue and my abs (also very annoying....). It can last for a whole day...

Have you tried B12 injections? I get relief (not always, but I can often feel a difference) from annoying nerves when I inject B12.

Also, when you're experiencing twitching and cramps, it's better to not drink lemon water (advized as a detoxer), it can make it worse. You'll have to stick with plain water...

Good luck!!

MarieLS
Posted 1/8/2014 6:55 PM (GMT 0)
Yes yes yes! I'm having twitching in my muscles. Jerks and flailing arms. It's so uncomfortable. I've heard magnesium helps but so far nothing over the past 2-3 years had solved this.
It seems to be worse if I am tired, have eaten anything sugary or allowed myself a gin and tonic. I know this is blasphemous information I've revealed about myself but to stay sane once a year I indulge. Not anymore but I know how frustrated you must be. Hot soaking baths until the water cools also helps.
Take care. I feel for you. I'm twitching right along with you!!!
Posted 1/8/2014 7:26 PM (GMT 0)
I get twitching too mostly after eating something that I'm sensitive to or taking a medication that I'm sensitive to.

I would check a website called Drugs.com and check the side effects of these meds you're taking.
Posted 1/8/2014 7:45 PM (GMT 0)
This is such a crazy disease. Twitching and tremor were the first things to hit me (other than fatigue). Then I started waking up with numb fingers and hands. Dizziness. The neurologist found a small scar on my cerebellum in an MRI and said that it can be consistent with Lyme, and it might go away with treatment.

Meanwhile the twitching continues. Only thing that can slow it down for me is deep meditation, but then as soon as I come out of it they all fire right back up again...
Posted 1/8/2014 7:45 PM (GMT 0)
Almost medfree, some side-effects to antibiotics are actually herxes. For example, Doxy has flu-like symptoms as a listed side-effect but that's more of a herx from killing the microbes.

I too have the twitches mostly in my arms, thighs and eyelids. It's a Lyme symptom but has increased from treating from abx and now just herbs so for me it's definitely a herx.
Posted 1/9/2014 5:09 AM (GMT 0)
Yep! Twitching has become so normal for me since I started treatment, I barely pay attention to it anymore lol! It's more annoying than anything. Oh, the joys of this crazy disease....
Posted 1/9/2014 5:36 AM (GMT 0)
I twitch a lot it happens more when I am tired. Magnesium helps me tremendously. They say its good to laugh at yourself sometimes well when it comes to twitching my right eye lid does it a lot causing me to walk around looking like a pirate
Posted 1/9/2014 5:05 PM (GMT 0)
Yes my dear...twitching from the thighs down to the bottom of my feet. Not as often as it used too and ironically I would twitch more after an IV treatment. Like opugirl said...the bugs are dying and your body has to get used to the recovery plus Lyme itself causes twitching :-(

Are you on magnesium, D3 or Vitamin C Complex?
Posted 1/10/2014 5:51 AM (GMT 0)
I also have twitching, happens in thighs, calves, arms, well just about anywhere. I am also on Amoxy 3G per day. Started 3.5 weeks ago (seems like much longer). I was twitching before I started the Amoxy so cant commment other than I still have some twitching but lower intensity and frequency. Tinnitus is drving me mad.

Curious, I dont recall if you said how long you have been on Amoxy but have you been herxing? I dont think I have and so it is causing me to doubt I have Lyme. Others have indicated they did not herx and they had strong positive Lyme results so I'm trying to just not worry about not herxing but it would be nice to hear from someone else taking the same thing I am.
Posted 1/10/2014 10:32 AM (GMT 0)
Hi Roxie60

Don't be concerned because I had NO HERXING whatsoever on Amox. I even doubted if it was working. Only thing I noticed was that I had some more energy; I felt like I could bike to work again. But no--no herxing. I read somewhere that Amox doesnt murder them but it inhibits their growth. However Dr. KL in Pawling told me that with Azithromicin I might get a herx, and I think I am with the twitching.

I am twitching all over now but I am trying to see it as a positive thing: nerve irritation, bacterial death, etc.
Posted 1/10/2014 12:00 PM (GMT 0)
Tbrown2 is right. Supplementing with Magnesium really helped my twitching and partially helped with my insomnia. Now if I can just find a way to get rid of my itching on top of my twitching!
Posted 3/11/2014 6:29 PM (GMT 0)
I just made a post regarding twitching. Mine is everywhere and like someone said here, they just ignore it, unfortunately i cannot ignore mine, it effects my sleep like nothing else :(
is itching a sign of lymes too? last night i was unbelievably itchy, however i did have two amalgams removed . So not sure if it had to do with that.
I take bentonite clay too to help release toxins from my body.
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