When Does Sleep Resume?!

Hi friends!

So most of my symptoms have resolved, thank goodness!!

But the SLEEP issues still persist. Is this a Bartonella symptom? Do those of you without Bart have sleeping problems?

According to the i-spot Lyme test my Lyme is in remission, but now we're battling the Bartonella.
I used to be one of those people who could sleep under any circumstances - ANY, like near a train track - heee.

Your input is greatly appreciated -
THANKS!! HOpe you're finding healing and peace.

~Sarah

Hi Lymerunner- well I've been on a heavy heavy pill that an endocrynologist prescribed before I was diagnosed. He prescribed it so I could sleep and gain weight (lost about 25 lbs within a month easily).

I've tried melotonin, Benadryl and am trying out an electrical stimulater, which I don't have tons of hope for...but fortunately it has a 60-day $ back guarantee.

Sleep is so very important that I dare not try another night unassisted.

What about you? How are you doing and does anything help you sleep?

Thx for responding!
Sarah

For right now I just use Tylenol PM. I dont like the way it makes me feel the day after, but like you said, its better to get a good nights sleep.

Beth-- where did you buy yours and what dosage worked? Do you use it every night or does it help to normalize the axis?

Stiff off abx? How is everything going for you? I know were became ill this month last year- hard to believe it's been a full year huh?!

Opugirl -

Thank you! Do you know the dose of the Rhodiola Resea? Why did you get so ill?? Any reason you don't want to get back on the Rhodiloa?

Thanks for you time --
Need to get off these heavy sleeping meds.

Hi Yogi,

So sorry you're dealing with the sleep issues. I take Ambien almost every night now. I used to be a great sleeper, now I wake up wide awake a couple of hours after sleeping. When I herx/flare, I can't sleep. I'm not a big fan of taking something to sleep, but sleep is so crucial right now and I can't keep continuing like this.

Hi Yogi!

              No I dont take the Tylenol PM every night, but if I wasnt worried about taking it every night I would. I'm sleepy the next day but not emotional. It seems like pain meds or anything simillar make me really crabby or weepy the next day. I was like that before the lyme lol! This is a non sleepy night for me and I just got done working an eve shift and have to be back at work at 6:45 am!! Oh boy! Let me know if you find anything that safely works for you to help you sleep

No problem - just fyi - the first few days I took it I got a drunk feeling but it subsided. On the upside last night even though I'm still tired I got a good sleep. Dreams and all. Slept like I was dead. I started the tryptophan + 1 calm PRT last night.

Let me know how it works out for you.

Thanks for the info opugirl! Glad you sleep like you were dead! Ps id love to talk to you-- have any time today that I could call you?

There is a direct and close relationship between either Bart or Lyme and sleeping problems.

For me, long before I ever even tested positive for Lyme & Bart, I started having nightmares and night sweats. I knew something was odd, because I hadnt had a single nightmare in 30 years. Within 1 month of taking the ABXs, my nightmares had completely disappeared. Within 1 month of going off my ABXs, my nightmares had returned. This repeated itself flawlessly for over 3 relapses now.

So predictable is this, that I can now tell the second my Lyme/Bart is returning is when I have nightmares.

Hi taroki,

I think it really depends. For me, the primary issue was falling asleep - not staying asleep. Yogi had many symptoms similar to mine with the sleep which is why I recommended it. Not saying that you can't try it of course! But I think the rhodiola adjust hormones.

I do know that sleep is a very common issue for those affected by lyme. I read that MMS is essentially bleach - hopefully that is not what you are taking. Some have had success for sleep issues with valerian root, magnesium, ashwaganda root, melatonin, tryptophan, GABA. It really depends I guess on what are causing your issues.

If you were interested I would try Calm PRT - you can take 6/day. I never needed that. I took 5/day to begin with then 1/night with 1 tryptophan and that helped. How is your lyme treatment going?

~beth

Caution about using sleeping aids:

"Sleeping aids. Do not use sleeping aids during the first couple weeks or so. As long as you have extreme pain or numbness somewhere that needs to be moved around occasionally you're probably better off rolling around and tosing and turning all night. Once you feel like you can go the night without accumulating severe pain somewhere, then sleeping aids are OK. Naturally, use as little as possible. You do need sleep but you also don't want permanent toxin damage."

www.angelfire.com/me2/StarShar/Herx1.html

Thanks for the replies. I will try rhodiola rosea.

For my Lyme, I would say the insomnia is the primary issue ... which course leads to major anxiety and suicidal thoughts when I don't get enough sleep. It's hard because any detox I do or even parasite cleanse triggers the insomnia again (otherwise I can get about 8 hours of groggy sleep).

Last night I slept very well ... got 7.5 hours of uninterrupted sleep which was amazing. Still fatigued and unrefreshed but this is the best sleep I had all month. I wonder if it's because I didn't take much Zinc today. I have high copper and I heard when Zinc displaces copper it interferes with sleep and adrenal fatigue.