What state are you in? Florida
• What major city are you near? West Palm Beach, Boca Raton, Ft Lauderdale, Miami
• What age is the patient? 31
• Have you been tested for Lyme or diagnosed previously? No
• How long have you been ill? I have been ill since July 2013.
• What are your symptoms?
Rash that comes and goes and can appear anywhere on my body, pain that comes and goes and can affect any area of body, numbness tingling in foot and hand, night sweats, constant fatigue, occasional light muscle spasms, insomnia, occasional constipation, unusual vision problems (afterimages, many floaters, colors where there are none, blank spots), occasional dry mouth, many new red veins in eyes, eye pain, joints snap and pop all the time, decreased sensitivity to touch, muscle weakness, weight loss (15 lbs), short term memory loss, harder to think of words I want to use, easily bruised.
• Do you have any other diagnoses? If so, what? I was diagnosed with Fibromyalgia in October 2013. I am currently seeing a MS specialist. There was a lesion on my brain. She says it does not look typical of MS though. Also many of my other symptoms do not add up to MS.
• I am looking for a LLMD that will run all the appropriate tests and treat me appropriately. From what I understand many tests are unreliable and many doctors are afraid to treat Lyme aggressively. I have had tons of blood work done and nothing has come up. I am negative for markers of Lupus and other autoimmune disorders. I do not believe Lyme was tested for. Basically the only test result that shows anything is wrong is the MRI showing the lesion. And as I said the MS specialist is not convinced. I am scheduled for a lumbar puncture next week… I ahve seen about 12 doctors with no solid answers yet. I did take a trip to Long Island in May of last year. Other than that I have been in Florida.