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Posted 1/14/2014 12:55 PM (GMT 0)
Sorry for posting so much this week but I feel like I'm getting way worse then before starting treatment everyday is somthing

new. Today I woke up with my left hand finger tips all numb. Getting really nervous what do I do?
Posted 1/14/2014 2:27 PM (GMT 0)
Ahh, Tbrown, it is hard to bear, I know.

My doctor says the worse you feel on starting treatment, the better you will feel in the long run. The medicines are working -- it just doesn't seem like it!

All of the things you mentioned are consistent with a herx. Now some people feel that herxing is unnecessary and overly hard on the body. You could talk to your doctor about backing off on the treatment so that your body can catch up.

In the meantime, de-tox, de-tox, de-tox. Make sure you are getting lots of good rest and keeping your stress levels down.

Try not to be so nervous about all this, even though it's hard. Distract yourself. Find something that makes you laugh.

You are going to get through this, I am sure.
Posted 1/14/2014 4:38 PM (GMT 0)
Tbrown2, it sounds like a herx. My llmd has always suggested when beginning to feel that bad to stop the antibiotic for a couple of days and then start back on a small dose and increase as you are able. His motto is " slow and steady, wins the race" This has been very hard for me to do, but the philosophy has served me well. Hope this helps if you haven't done this already. Take care of yourself.
Posted 1/14/2014 6:54 PM (GMT 0)
Tbrown, it is possible that you slept wrong and that some nerves got pinched while you slept. This may be specially true if the symptoms get better soon after you get out of bed.

The feeling of numbness in the extremities is known by people with Lyme. I myself feel my arms and legs go numb whenever I am sitting down or laying down. I will be seeing my PCP for some tests to rule out something more serious but I am ready to hear that "it is normal with Lyme".
Posted 1/14/2014 7:19 PM (GMT 0)
I woke up got ready for work went to Dunkin donuts and reached for my phone to realize I couldn't feel 3/5 fingers. I panicked but tried to forget about it. I kept busy at work and noticed later they were fine again. I don't know pretty scary stuff
Posted 1/15/2014 1:26 AM (GMT 0)
Tbrown, apologies ahead of time if I am overstepping my boundries, but eating anything from Dunkin Donuts probably isn't good ... esp first thing in the morning

Again, sorry for the lecture, but . . . .
Posted 1/15/2014 2:32 AM (GMT 0)
Before treatment that is a symp I experienced. Usually 3/5. Didn't last too long usually. Another of many weird symps that came and went.
Posted 1/15/2014 3:53 AM (GMT 0)
Your right tano but I didn't have time for breakfast at my house. I only got an egg on a multigrain bagel though so kept the damage to a minimum
Posted 1/16/2014 12:00 AM (GMT 0)
This disease can be so scary at moments. I have had very unusual things happen to me as well but they always seem to go away within a day. Just watch to see if it stays away. It could be from too many toxins building up in your body from the killing off of all the bacteria. This is so stressful on the body we sometimes don't realize all the stress it puts our body through. It may really be nothing too serious.
Posted 1/16/2014 1:09 AM (GMT 0)
Hi TBrown I am about 6 months into treatment. Last week out of a clear blue sky my joints started swelling.
First it is my left knee joint and then it was my right ankle joint. These are totally new even though Ive had many bizarre symptoms over the months. It is a very weird disease and Im trying to learn to just roll with it.
Posted 1/16/2014 1:34 AM (GMT 0)
I collapsed in August and have had no feeling in my left 3 fingers since then. I has gotten better but my mobility and feeling are definitely not where they used to be. My handwriting is atrocious too. And I am a harpist...
Posted 1/16/2014 11:11 PM (GMT 0)
I also had numbness and tingling in my left arm and hand for months. Cefdinir and high dose amoxicillin have helped the most.
Posted 1/17/2014 4:14 PM (GMT 0)
Hi Tbrown2. Sorry to hear about the tingling - I am with you in the fight and have experienced the same in both hands and feet although it is mostly in my left hand and oddly my left thumb most of the time. I have not had large doses of antibiotics so at this point I dont' know to what degree they might help. I was on a kick of B vitamins and magnesium for a while and they may have helped but I had to stop taking them for a little while for a hernia surgery - unrelated to lyme.

What I did notice is that after the surgery - I felt great (other than the localized pain of the surgery itself). The lyme crap including the tingling in the hands etc... was gone for a few days. This had to be the effect of the general anesthesia. I wish I could just go to an anesthesiologist and get a 30 minute dose of whatever that drug was every four or five days :-) It seems to me to be all in my brain.
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