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Posted 3/4/2014 7:41 PM (GMT 0)
Hi everyone, I hope all is well. Usually I come on here and I am the cheerleader and sending prayers. Well I need some cheering and prayers. I have 10 symptoms left...10...and they have been lingering since September or October. Over the past 3 weeks my balance has become a big issue. I cry daily sometimes. I have slight dizziness too. Now I will say I started homeopathic meds 3 weeks ago and then boom...7 out of 10 symptoms hit the fan. So much so that I stopped the homeopathic meds and just working with a couple of abx, my supplements and herbal treatment.

I get scared sometimes. I pray to God to not take away my ability to walk or loose balance completely. It's nothing but God that I am able to get myself together every morning, get my son ready, walk out the door, drive, walk down a looooooooooooooong hallway to his daycare, get back in the car and go to work. (For those who don't know I'm a single mother and his father barely sees our son).

I hear so many wonderful stories about people regaining their full balance...heck their full life.

So pray for me. I wanna African dance again, run more marathons, swim with my son and not feel like I'm on a rocking boat every single day, perform again (I'm a spoken word artist), travel....everything and most importantly go back to school so I can help those who are chronically ill.

I know I'm up against my arch enemy Babesia...she really has to get kicked out of my body, kicked to the curb and stay out!

Anyway send some prayers my way. I will fight this...I will beat this but today I just need some virtual love, hugs, thoughts, good vibes and prayers.

Love you all.

 

Posted 3/4/2014 7:52 PM (GMT 0)
Do you mean homeopathic or naturopathic? Homeopathy is just one of the many modalities that naturopaths
use and it's often stated instead of naturopathy. If it was homeopathic treatments, I may be able to offer some insight.

I'm sorry you're going through more struggles! Hopefully the flare ups are just a sign that whatever you are taking is working on the critters. It's hard when you're getting so close to being done with the illness.

((((HUGS))))
Posted 3/4/2014 8:00 PM (GMT 0)
Sorry Wryter, Lyme & company has it's up and downs. Good days followed by bad days. I didn't have dizziness/balance at the beginning of treatment but did have it for a short while (vertigo). It is very disturbing. Mine cleared up eventually. I too have a few stubborn symptoms left, and I also have Babesia.

Obvious question but did you have your ears checked? I had mine checked to see about the dizziness and the hearing going in and out but the ENT did not see anything wrong.

Keep treating, try to look for something positive like a symptom that is gone, a sunny day, etc. sometimes a kiss from my dog is what cheers me up! It is a long climb back to health but you will make it.

flowergal
Posted 3/4/2014 8:08 PM (GMT 0)
Hi Flowergal and GardenPeace, thank you so much for the thoughts and hugs and good vibes. I have gone to 4 ENT doctors...I have a new one. I did get tested last June and my right inner ear has a problem. After all of those tests the stupid doctor said, "Well there is nothing I can do for you!"

WHAT!

So the doctor I have now put me on Meclizine. It's been over a week and still no help. I'm in physical therapy but they said I need some assistance with my inner ear since there is a problem.

So I need to go in a little harder and get some help with the right inner ear. I will say since I started the abx I feel something in my right inner ear, some popping, slight ache...so maybe it's coming back to life.

GardenPeace I was on homepathic meds...that's what the bottle says but you're right...it was by my LLND (nautropathic doctor). It sure did bring everything out but I can't risk being worse raising my son on my own.

I will stick with the herbal protocol as that is bringing stuff out but more slowly and easier to handle. Maybe the other stuff is still in my system because I just stopped the homeopathic tinctures on Friday.

But I have been feeling sooooooooooooooooo defeated. Why does it have to be this hard when you are close to healing :-(

Thanks for the cheers! When my son hugs me or holds my face and kisses my cheek (he's 2.5 years old) I know I have to get well. There is no choice.
Posted 3/4/2014 8:16 PM (GMT 0)
TheWryter--sending you as many hugs as I can. You are certainly dealing with a lot and I'm glad you found your way here.
Posted 3/4/2014 8:19 PM (GMT 0)
Thanks honey...I appreciate ksgirl67. I have had some awful days in the past when the thick of the storm was over me...but this latest symptom that just keeps recycling itself is a mess!

I pray my physical therapist will help me and we can start doing something for my inner ear disturbance without doctors orders...I'm tired of them brushing me off and putting me on stuff that doesn't work.
Posted 3/4/2014 9:32 PM (GMT 0)
Hi Wryter,

Sending you lots and lots of encouragement from overseas.

You made such progress, I'm convinced you'll get over this difficult time!!
Your son seems so sweet...

hugs,
MarieLS
Posted 3/4/2014 10:01 PM (GMT 0)
Hi Marie!!!! Thank you lovely, I feel so loved on here...I am determined for a doctor to listen to me and help with the inner ear business and I guess I have to wait out this storm with these symptoms. I know I will get better...but these past three weeks have been an emotional rollercoaster and a physical one too.

Yes my pumpkin pie is sweet...I love him soooooo much.

Waves to you from the east coast of the USA!
Posted 3/4/2014 10:08 PM (GMT 0)
Wryter, you have overcome things so much worse than this, so you will beat this too!! Hang in there - you know you have my prayers and thoughts of support and love.

Keep after these docs to get them to treat your ear issues. I know you can get through this!
Posted 3/5/2014 12:50 AM (GMT 0)
Crap, that sucks! Do you eat salt? Get up from the couch, bed, or bath VERY slowly.

Do balance exercises!!! They actually do help.

I used to bump into walls, people, etc.

Stand on your toes, and balance on one leg.

Go girl! You can do it!

Margaret
Posted 3/5/2014 1:13 AM (GMT 0)
Wryter...I can see you are a strong person and you will get passed these last few symptoms as well. And you have a great reason to stay the course, your little one :) Like Traveler said, stay on those Drs to treat what has already been diagnosed. We are here for ya!
Posted 3/5/2014 3:42 AM (GMT 0)
Hello there fellow runner!! Yes, dont be discouraged!!! We will get there one day! My plan is to run a race in another state when im up to it! Let me know when your ready and hopefully ill be ready too and we can say "hello" at the start line smilewinkgrin i get dizzy as well. Im ok until i start to work out, then the dizziness kicks in or the muscle aches and pains begin to settle in. Somtimes it deflates my happy bubble but i just keep getting up again and again! You can do it!!! Many prayers being sent your way! :-)
Posted 3/5/2014 3:51 AM (GMT 0)
sending prayers your way!
Posted 3/5/2014 4:04 AM (GMT 0)
I pray for peace, that through all of this you know god has you in his hands and will not leave you where you are. His work isn't done. I pray that a hedge of angels surround you and your little one and protect you, physically, mentally, and spiritually. Like it says in scripture, Isaiah I believe "a bruised reed he will not break". I pray god heals you quickly and you will be a light of hope for others in the dark. You will get through this. You are not alone even when it feels that way, know someone much bigger is there and there is no disease or condition too big for god to heal.
Posted 3/5/2014 4:39 AM (GMT 0)
TheWryter, I used to try to perform as much as possible in spoken word events but hadn't been able to for a couple of years at my sickest. It was good to get up there again about 6 months ago. I'd like to get more engaged in 2014. . I have a very involved partner and work very part time and I still had a hard time most days just surviving when I was experiencing.

Azithromycin PLUS Serrapeptase was really what resolved my final inner ear symptoms that had really plagued me, they were remitting and relapsing.. Mostly just simmering. I had dizziness, tinnitus and sometimes vision impairment.. Which culminated in an ear infection. We tried everything natural and nothing touched it. I would lay in bed and cry because I was so sick of trying to live and take care of my kids with the nausea. I hate nausea.

Ill be praying for you. I'm sorry it sucks.

Post Edited (PathogenKiller) : 3/5/2014 9:52:14 AM (GMT-7)

Posted 3/5/2014 3:12 PM (GMT 0)
Hi everyone, thank you sooooooooooooooo much for reaching out to me. The prayers, thoughts, encouragement mean the world to me.

PathogenKiller is Azithromycin an abx? Let me know because I will ask my PCP to write a script for it and I know Serrapeptase is natural and I can get that anywhere.

I do balance exercises at home and at PT. But like Pathogen said it is just simmering and just comes out of no where...time for it to be done once and for all.

Lastly please send extra prayers my way. My friend called and said his mother who is like a Mom to me took her own life the other day. She was in a deep depression over losing her mother but I didn't know it was this bad. She was so sweet and a beautiful spirit. I've known her half my life and now she is gone. So glad she got a chance to meet my son before the Lyme beast took over my life.

I miss her terribly and I'm kind of numb...I just knew when I felt better that my son and I would go to Miami to see her. And now she is gone.

Send prayers to my friend Kevin as well. After losing her the rest of his family for the most part is in England.

Life is short...we will all beat this disease...we have so much life to live. God bless.
Posted 3/5/2014 4:50 PM (GMT 0)
yes, its an abx. Be aware, I had to take 28 days of it. Well, I had to take 21 days of it and choose to stay on for the final week just to be extra sure we had gotten it. It is also called a zpack. I took a 5 day zpack first but that didnt touch it. the second zpack did. But my hear was in super crisis at that point and Id been trying to treat naturally to no avail for 12 weeks.. so you might need less. I guess my point is, Id take it just like a lyme abx.. past resolution of symptoms.

Im very sorry about your friend. <3
Posted 3/5/2014 7:51 PM (GMT 0)
I'm so very sorry to hear of your loss, Wryter. I hope that everyone in that family and you find comforting love.
Posted 3/5/2014 8:17 PM (GMT 0)
Pathogen I was on a Z-Pack years ago and WOW it worked fast and did wonders! I already emailed my PCP and told them I need H-E-L-P and that I want to try the Z Pack and I'm going to buy the Serrapeptase. I was looking into finding a new enzyme to take.

And thank you and Trav for the condolences...it's rough. She was a beautiful person. I had no idea and would not think in a billion years that she would take her own life (sigh).
Posted 3/5/2014 11:04 PM (GMT 0)
I am so sorry to hear of the loss of your friend's dear mother.  I can't imagine the emotional pain you are feeling on top of the physical pain you're already experiencing.  Please know that I'll be praying for you.  May God's love give you strength and comfort each and every day.  God bless you, friend....and keep on fighting!
Posted 3/6/2014 1:06 AM (GMT 0)
Hi Wryter,

You are one of the awesome and helpful people on this forum. On my worst days you were there. And you
better believe if you get back to African dance, I for one want a video. I started to relapse and returned to ammoxicillin which has ended many symptoms promptly. Hugs :)
Posted 3/6/2014 5:21 AM (GMT 0)
TheWryter - I'm so sorry about the loss of your mother figure... that must be so difficult for you and I'm sure you were so looking forward to visiting her once you felt well enough.

Thinking about you and sending so much love, encouragement, patience and support. You, my love, have been my biggest supporter and have ALWAYS been blissfully excited with any positive news regarding my healing. And I'm here for you!

LOVE YOU here if you need a thing. Happy to talk on the phone if you want to. I feel so much more connected when I talk on the phone...

xoxoxo
Sarah
Posted 3/6/2014 1:10 PM (GMT 0)
Dearest Wryter,

First I want you to know that I am thinking of you and I know you will overcome this!  Sending prayers your way and also for Kevin.  I am so very sorry for your loss and Kevin's loss, how very sad..  Yes, depression can do this to a person.  

Sending you BIG HUGS!!!!  And I'm always here for you if you need me, okay?

Denise

Posted 3/6/2014 5:01 PM (GMT 0)
Wryter. if you do good with the serra, think about taking it 30 minutes before every meal. Serra + zithro = good stuff on biofilms, which is typically what is at play in the middle ear. There is very low blood flow to that area so the serra is the key to getting the zithro to where it needs to be. Bromelain is another enzyme linked to increasing the power of abx.
Posted 3/6/2014 7:23 PM (GMT 0)
Thank you everyone for your wonderful thoughts, prayers, hugs, love and everything. WOW I needed it. I'm going to either continue back on Wobenzym N or try Serra (I will let y'all know) and I told my doctor...not ask...told that I wanted to try zithro. If I don't hear anything then I may have go up there.

Today is a lot better. This morning I woke up to a lot of popping in my right ear...maybe something is working finally!

My spirit is down because of losing Mama Sue. God she was beautiful and awesome and to take her own life just doesn't sit right with me.

Since I can't see her any longer I told her son Kevin that WHEN I get better (no if...but WHEN I get better) we are booking a flight to Miami to see him and the family. Plus I need a V-A-C-A-T-I-O-N!

Thank you all! I love, love, love, love each of you and I mean that. Every day I pray for my Lyme friends and that we are cured very soon! And we will!
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