I have the same problem among many others. Sometimes I even have mild convulsions. This is ONLY at night when I am about
to fall asleep. It's not fun.
I do have a positive IgeneX test but my first LLMD thinks I don't ahve Lyme and the 2nd one begrudglingly agreed to treat me. I'm not sure what to make of it. I've already been tested up and down for MS and Lupus. They say i don't have MS or Lupus. OFcourse they don't know what I ahve which is why I feel it is Lyme..
I am sorry you are going through this. I hope you get some answers soon.