low dosec naltrexone

anyone using low dose naltrexone in conjunction with treatment for lyme?

Hi Rnbelle,

I started it not long ago.

I haven't posted about it yet, because I wanted to wait just a bit longer to see how it evolves.
But up until now, I'm experiencing good results. I don't even want to say it too often, maybe I'll curse it... (bart paranoia I guess lol), but I'm even getting a bit excited about it.

I've been under treatment for about 21 months now, and was getting worse. I thought I was going to go crazy because of that never ending pain and discomfort. I feel bruised all over my body (walking like an 80 yo), and there are also the more defined pains (head, neck, shoulders, back, joints, etc).
When I started taking it, the following day I got up and the bruised feeling was way down? This hasn't happened to me in years. And my head feels clearer too.
The fatigue is the same, as all of my other symptoms. I might get worse too at a certain moment, because it is also an immune booster (might make me kill more bacteria). But I hope it will evolve well alltogether.

I've been reading about it, some people get help out of it, others don't. For some it works quickly, others have to wait (much) longer.

I won't speak it out too loud, but I'm having a bit of hope this time.

Are you planning to take it? Did your dr recommend it (if so, for what symptoms)?

It was my dr who prescribed it to me, because I told him I couldn't stand the pain anymore.

Barngurl

what is neurolyme and lyme arthrtis? i could be experiencing that..

They speak of neuroborreliosis when one's neurological system is affected, this can show many symptoms.

The arthritis is when the bacteria have affected one's joints (inflammation) causing (a lot of) pain, swelling, often migrating.

I have been on LDN for 8 wks now - started at 2.5mg for 4 wks, went up to 3mg and will start 3.5mg this weekend.

After my first couple of doses I felt an increase in spasms throughout my body as I lay down to sleep and felt a surge of brain activity right when I was trying to fall asleep. Was quite frustrating. I read from multiple sources that the LDN needs many weeks to settle so I pushed through it, started taking it a bit earlier in the evening (recommended dosage is at 11pm - it goes to work around 2-4am when the body is in optimal hormonal process).

I am now doing quite well on it. I have read such overwhelmingly positive feedback about it that I really wanted to be able to tolerate it and continue titrating up to 4mg, which is the max dosage. I am experiencing less muscle and joint pain so things are moving in the right direction.

-pirouette

I mean to ask if anyone else had noticed a change in their menstrual periods??? Once I started taking the LDN I started spotting before and after my periods, which I hadn't done before. I hope this doesn't signal anything bad... and I am THINKING this might be indicative that it is helping my body detox (by supporting immune functions) and the increase in spotting is an extended process of shedding in the uterus. The remainder of the period is the same as it has always been.

Anyone else experience this or have opinions?

-p

I posted that wrong. If your Lyme test was done the first time by Igenex--not LabCorp-- and showed 6 positive bands would your doctor still say that you have MS also? Because on the MS
forum they say that doctors won't dx MS if something else is
possible like LD.

But if you treat MS with an immune suppressing drug then you are putting yourself at risk for the Lyme to go crazy--right?

And the Neuro did not know that?