4 week cycle of flares?

I've just been watching utube videos on Lyme disease...one I watched (I think it was a lecture by Dr. Horowitz) - he talked about diagnosing Lyme...and one criteria was to record your daily symptoms...and to notice if you got worse every 4 weeks...as that was the cycle of the lyme bacteria.

I don't go through that ....I do have daily flares....and some days are worse than others...but it's definitely not on a 4 week cycle...I'm hoping that isn't a big diagnostic tool that means i don't have Lyme disease.

Do you have a 4 week cycle?

Louise - have you tested positive thru Igenex?
You're not taking antibiotics, are you?

Well, I'm glad to hear that I'm not the only one that has pretty much constant symptoms...and not flaring on a 4-week cycle.

Well, it's good some of your symptoms have resolved. My twitching and tremors are almost gone, too. I also still have the buzzing - mine is constant throughout most of the day/evening. And I have a lot of pain - daily.

What about the hot flashes? Mine are still there - mostly at night - but not as bad as they've been.

I definitely feel worse in a timing related to my menstrual cycle...not sure if it's because I might have hormonal issues, or that's the bacterial die-off cycle...

Louise - did they discover her cancer from an MRI finally? The other two times did they do scans of her back? How is she now? If you're positive for Lyme disease - then I dont think you should be thinking of cancer. But i know how you feel. I too wonder sometimes if I can attribute all my symptoms to Lyme... but I havent been tested yet. I am having back pain lately so now of course Im wondering if I have severe osteoporosis and my spine is degenerating. But, I know its just myself getting all worked up because I havent been healthy for a long time. When were not well, we feel so vulnerable and start thinking the worst... so now of course I'M thinking about cancer... God just let this all be better soon before I go crazy!!!

Yes... I don't really understand these '4 week cycle things'. I thought the Lyme started reproducing every 12-24 hours?

What is it with these 4 week cycles? I do remember symptoms getting particularly worse about every 4 weeks when I first got it... Then they were just pretty much steady. Then they were close to non-existant... Then I had brain tingles for about a week, then that went away.

So which is it... Lyme reproduces once per month or it reproduces every 12-24 hours? Apparently from what I understand we treat based on cycles. And the best treatment is 2 cycles symptom free but usually if we treat for a few cycles it knocks it out. Except for the "persistors" i guess.

Lymepickle - I think the life cycle must be 4 weeks - but I've never had a 4 week cycle of symptoms.
Hope that doesn't negate a diagnosis of Lyme.

Louise - I feel VERY unwell...mostly pain. The past few days in my mid and upper back. Every day my left arm/hand/index finger hurt. Some days worse than others. I have tail bone pain - this for past 3-4 months I think.
Besides pain, the other crap I deal with daily: vibrations/adrenaline rushes all day/hot flashes/sleep - bad - wake up every couple of hours - crying spells (that one really bothers my husband)
besides vibrations, I also have internal tremors....they're a little bit different than the vibrations.
It all sounds so bizarre when I tell the docs my symptoms....they all act like they've never heard of them before. They need to get their frigging heads out of the sand.
Thank goodness my muscle twitches are almost completely gone, as well as the outer tremors (ones you can see - as opposed to inner tremors)
I do sound like a nutcase- don't I? :)

I was sick all weekend and yesterday too. Finally felt better
today and got caught up with some laundry & hw. And even went to
the hair salon but felt so weak while I was there I was not sure
if I should just leave. So even when I feel better it is not 70%

So my LD is not cyclical it seems more constant with a few short breaks. Not my idea of cycles.

Just thought I would chime in here as my "cycle" seems to be 24 hours. If I'm having a crappy day where I fall a lot, slur my speech and have brain fog, the very next day I can talk and drive fine. My handwriting changes every few hours - first I can write legibly, then a few hours later I write like a 5 year old. It's bizarre!!! I can't make any plans cause I never know what the next day will bring!!!
Argh...

Sueg - I also worry that it's not Lyme....and I either have something worse like cancer....or I will be undiagnosed forever...and have to live with this.
In all honesty, I would prefer a diagnosis of Lyme, than an autoimmune disease - at least with Lyme there's a chance that it will be fully eradicated...but with autoimmune - it's with you for life...and sometimes can be very disabling.
I also don't want a diagnosis of Fibromyalgia - as there is no cure...only pain management.

But, the way I look at it is this: If I have days...or even part days of feeling well...then I figure I can have all days of feeling well. The body wants to heal and be well...so I believe we can get well... (on a good day I feel this way...lol) We just have to keep fighting!

I am symptomatic all the time. My flares last 2-3 days with 1-2 days of feeling a bit better.

Patty

I just posted about this. I feel absolutely horrible with joint pain every 3-4 weeks. My toe hurts so bad I can hardly stand on it. Now its my back. I am new to lyme dx. five days to be exact. No LLMD here in my area without a year waiting list so I am starting Cowdens protocol as soon as the pkg arrives.

no. I can't. I can't afford it. :(

Thank you again...Yes i am a health coach and do saunas, CE's, eat Paleo with safe starches (Gluten free dairy free soy free gal), eat only grass fed and pastured meats and organic vegetables and fruit. I sleep 7-9 hours a night and exercise minimally every day but enough to sweat. I could do better with my stress which is hugely important but honestly this has thrown me for a loop. I did post mu results and ask for interpretation and would love some knowledge on what the results mean.