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Posted 5/28/2014 12:26 AM (GMT 0)
I know there was a thread earlier on muscle twitching, but I can't find it!

I have had these twitches since January, and darn it they won't go away!!!

my llmd increased my magnesium and omega for nerve repair and they are still here and are super annoying!!

any suggestions??
Posted 5/28/2014 12:29 AM (GMT 0)
Where are they?
Posted 5/28/2014 12:36 AM (GMT 0)
oh they are everywhere. last night my wrist was twitching and it kept waking me up. mostly they pop up anywhere on my legs and arms, my lips and eyelids.
Posted 5/28/2014 12:41 AM (GMT 0)
Try drinking at least 4 oz of tonic water a day, it decreases my twitching. As far as getting rid of it for good I don't have advice yet as I haven't pursued the treatment plan my doc laid out for me yet. I have ostrich syndrome lately, or I am putting myself on the back burner a bit! ;) tonic water does help though, my eyes, cheeks and lips twitch like crazy, and my thighs and biceps. I sometimes put my finger in my eyelid to hold the twitch if I'm talking face to face with someone because it's embarrassing. Lol
Posted 5/28/2014 12:45 AM (GMT 0)
Hey! Here's one post from last week I don't know how to make it clickable though. Sorry!

https://www.healingwell.com/community/default.aspx?f=30&m=3083655
Posted 5/28/2014 1:04 AM (GMT 0)
ok, thanks!

I just don't know if this twitching is a real lyme symptom or just leftover nerve damage.
Posted 5/28/2014 1:15 AM (GMT 0)
HI Chapelle!

I had the twitches, for me it was the eyelid, all day everyday. SO ANNOYING!! Dr put me on phyto-cal mag 4 caps a day. I don't know if it is a highly absorpable grade and that is why it is so effective?

Anyhow, here are the ingredients, maybe you can find something comparable to try. I tried upping my mag when I got the twitches and it didn't do anything either. Something should work for you! You just need to find it. :)

er 4 Capsules: Vitamin D3 (as Cholecalciferol) 600 IU, Calcium (as DimaCal® Di-Calcium Malate) 360 mg, Magnesium (as Albion® Di-Magnesium Malate) 180 mg, Manganese (as TRAACS® Manganese Glycinate) 2 mg, Silica (as Bamboo Silica) 80 mg, Valerian Root Powder Extract 10:1 50 mg, Rosemary Leaf, Lemon Peel Powder
Posted 5/28/2014 1:30 AM (GMT 0)
Muscle twitches were one of my first symptoms - started last September. All over - back, legs, arms, constant...except when I slept.
Then I got the shakes, and muscle weakness to boot. I thought I was going to die - thought I had Parkinson's, then ALS, then MS. I really thought I might die. (I also had the body buzzing/vibrations)
The shakes subsided a couple months later, then twitches started to get less strong and less frequent. By January, the twitches had almost completely stopped.
I do not know what made them stop. I wasn't suspecting Lyme at the time, so i wasn't doing any Lyme treatment. But, I was taking adrenal support, lots of Vita C, Cal/Mag, extra mag (Magnesium glycinate), B12, VitaD, Omega 3, and L-Acetyl Cysteine. And praying to God to help me. and lots of crying.
I can't really attribute it to anything in particular...but it did ease up, and it will with you...just keep trying til you find what works.
Posted 5/28/2014 1:35 AM (GMT 0)
Chapelle... this disease is so different for all of us. Well I would rather have muscle twitching than neurolyme for sure. And I get the vibration and tingling in my brain.

I don't have any twitches anymore at all. Which is good. I remember my eye lid would twitch a bit and one time my eye lids blinked all on their own. I think it's from the infection in the nerve But now I'm dealing with tinidazole toxicity syndrome ! It's a long battle... I'm not sure what the best way to deal with it is. I wish I knew.

Should I try more teasel and GSE? Are you still taking those?
Posted 5/28/2014 1:58 AM (GMT 0)
still taking teasel but not GSE. gonna start GSE again next week. I have been herxing a lot since I switched doxy to Bactrim, so I am waiting until the herxing subsides to start GSE again.

believe me, I prefer muscle twitching over neuro lyme too - I am lucky it never reached my brain.
Posted 5/28/2014 2:19 AM (GMT 0)
How do you know for sure it never reached your brain though?

For the teasel, what is the dosing?

I'm going to try taking teasel now. I'm just so exhausted from taking tinidazole... I want to try something else now. I just feel overall very toxic from it. I believe it's not good and really harsh on the body.
Posted 5/28/2014 9:08 AM (GMT 0)
I get a lot of muscle twitching too, even my tongue twitches, how about that - LOL

Just something I wanted to add: I don't know if you are drinking lemon water? It can (not necessarely have to) increase muscle twitching. If you are drinking lemon water, you can just stop for a few days and see if the twitching gets better.

MarieLS
Posted 5/28/2014 10:39 AM (GMT 0)
lymepickle - I don't have any symptoms of lyme that would hint that it reached my brain. I originally thought that anxiety and insomnia were two, but now I think it was just the lyme playing with my hormones. All of my issues involved the nerves and muscles.

teasel root dose - I titrated the dose up slowly until I reached 30 drops twice a day.

mariels - I stopped drinking lemon water, got tired of it. LOL. thanks for the tip though. I take alkaseltzer gold twice a day.
Posted 5/28/2014 2:18 PM (GMT 0)
What is alka seltzer gold?
Posted 5/28/2014 2:37 PM (GMT 0)
alkaseltzer gold has a high amt of sodium bicarb - which makes your body alkaline - and as i am sure you already know, lyme likes acidic environments.
Posted 5/29/2014 4:55 AM (GMT 0)
I have twitches, I was told it's nerve damage
Posted 5/29/2014 5:48 AM (GMT 0)
I don't think it's always nerve damage...as I had serious twitching all over my body for several months...but it has slowly subsided...so it doesn't appear I have damaged nerves. Mine is about 80% better than it was.

I have read it can happen with an overexcitable peripheral nervous system.
But i think Lyme disease can cause it, too, as it is listed as one of the symptoms.
Posted 6/13/2014 6:42 PM (GMT 0)
girlie - if it is nerve damage, the nerves repair overtime, it is usually not permanent.
Posted 6/13/2014 7:25 PM (GMT 0)
So, interesting...past few days after months of only a little twitching....my twitching has increased...not like it was before...but definitely more than it has been.
When it was at it's worse -it was AWFUL. I mean legs/arms/stomach/back/face - all day long -different areas at different times. and strong twitches, too.

Don't know what it means.

I'm still taking J. Knotweed, Cat's Claw, Sib. Ginseng...and today added 1 capsule of Serrapeptase.
According to Buhner, the protocol should work within 2 months - he said a lot of people find they're improving after 1 month. I am almost at 5 weeks now...

See LLND on Saturday....hope she doesn't disappoint!
Posted 6/17/2014 12:16 AM (GMT 0)
Comforts me to know im not the only one who has twitches that are driving my nuts. My eye lids go all day long. The calf muscles my arm you name it Ive had it.
Posted 6/17/2014 4:43 AM (GMT 0)
My muscle twitching and vibrating has reduced. I don't know if it is the abx treatment or the thyroid meds or supplements or just a recovery period. Yes very annoying like so many of the symps.
Posted 9/12/2014 11:31 PM (GMT 0)
My muscle twitching is getting worse :( its all over. Not constant but every 15 mins or so somthing else is twitching. Im on 200 doxy and bactrim ds 2x daily. Im starting to wonder is i have MS and not really lyme... For gods sake
Posted 9/13/2014 3:16 AM (GMT 0)
LMFD - It definitely can be lyme. I think the twitching is from the lyme affecting the nervous system. Maybe it's a herx?

I know what you mean about questioning something else...if I don't get some improvement in the next few weeks...just send me to the psych ward...cuz I'll be going' crazy.
Posted 9/13/2014 4:56 AM (GMT 0)
I've had lots of twitches for years. My mother was diagnosed with benign fasiculations years ago. I don't know what causes mine. They do seem better since I started taking magnesium.
Posted 9/15/2014 1:20 AM (GMT 0)
I guess its good to know im not the only one second guessing this crap. Could this be nuero lyme? I have heard of bfs but this all started at the same time. Teitches began in the eye lifs and have since spread
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