Doing the right things but not getting better

Hello,   I have been in treatment for about 4 months. Twice a week since the beginning of treatment I get injections of glutathione and phosphatidylcholine. I have also been on 100mg twice a day of Doxy since then. Three weeks ago I started another abx called Ceftin which I believe is 400mg twice a day. This is in conjunction with the Doxy. I also take supplements, diet right, detox etc.. My problem is that I am not getting any better. Actually I think I am getting worse. So this puts me back in the mind state of “What if it’s not really Lyme at all?”. Just makes me think this is autoimmune since the abx are making me worse. I don’t have good days and bad days. All days are bad days. I don’t have flare ups really. I’m just always miserable.   Can someone please tell me if/when this will get better? I’m doing all the things I am supposed to and not seeing any results. Any input would be greatly appreciated.

I'm sorry you are feeling so bad. I felt my worst between 4-5 months of treatment also. My Dr. changed up my abx and I started having good days. In fact during my 8th month I thought I was almost done with treatment since most days were good. This last month we have changed things up again and are going after the biofilms. I'm back to herxing and feeling punk, but I know this will pass. As we know everybody heals differently, but I want to send you some hope. It sounds like you are doing the right things and taking good care of yourself. Just hang in there it will get better!

Co-infections are often the cause for slow or little progress with Lyme symptom improvements. Many of the symptoms overlap, so its very difficult to tell what disease is the cause of each symptom.

Has your LLMD discussed Bart or Babs treatment? Most LLMD assume we all have all three and do a treatment challenge to agitate a herx. Rif and Doxy is a good start to see if Bart is an issue. If you have Bart it may take a few months to treat it. Babs on the other hand will take 4 months minimum (and most likely up to year) to treat and Mepron is very expensive.

I'm trying my best but feeling disastrous. I've been in treatment for 3 months and not making progress. I was making some progress but crash worse than when I started. I just talked to a doctor who said to continue working with my naturopath to treat the lyme but I'm still testing for other stuff. My symptoms came on out of nowhere so it's really hard to say. Some of the tests and medicines that I have taken along the way have made it quite worse, so I can't tell between getting worse, herx or bad reaction.

I did test positive for lyme but I still need to rule out stuff. For example I had a giant lump in my throat and had that scanned. The happened to find thyroid nodules. Now I have to have those scanned. I've lost so much weight do is it lyme, thyroid, stomach?? It's all so weird. But I would continue to treat for lyme while searching for your answers.

Thanks, you too. I'm half tempted to have one of my healthy friends send their blood in to IgeneX and see if it comes back positive.

Akkami, my biggest problem was mold exposure and mosquito borne Protomyxzoa. This is what might be a good idea to try:

HLA DRB DBQ genetic testing-ability to remove mold and Lyme toxins from your body
MTHFR- genetic testing, ability to break down vitamin B9 and produce glutathione
organic solvents- when I was at Sponaugle there where score of people who had horrid levels of benzene or toluene and had no idea where they got it.
ammonia

The Fry test- will show you your biofilm and tell you exactly what they found in your blood. I heard that dr. Fry is extremely careful of what he says about the biofilm so you may need someone who interprets these tests on a regular basis but that is what got me on my way to better health.

Good luck! If you have any questions please ask or email me!

Your LLMD needs to check you for MTHFR, but more so, these LLMD's load people up on abx without doing any sort of drainage or detoxing first.

Abx will not and cannot heal chronic Lyme, it's not that tangible and needs way more treatments than abx....just my humble professional opinion

Colonics actually removed B12 form the body.

pictureofhealth said...
peacesoul, in your opinion what is needed besides abxs to heal from chronic lyme?

That's a loaded question, but basically to rule out MTHFR, super clean diet (no gluten, sugar, dairy), cleaning the terrain of the body to increase immunity, working on emotional health (lowering stress), finding mineral and vitamins deficiencies.

You can infect 10 people with Lyme, but not all 10 will get infected. Only those compromised will.

My patients who fully healed did a lot of work in lifestyle change and we also did LOTS of drainage and detox before starting any protocol
I'm also Lyme free for over 5 yrs myself.

Hope this help

Jen