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Does everyone have fatigue?

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Posted 6/27/2014 5:05 AM (GMT 0)
So, I hear everyone talk about the tremendous fatigue they have as one of their symptoms.

This is one of the reasons I am doubting I have Lyme disease. With the multitude of symptoms I have, I am not very tired. I have no motivation, or drive to do much, but I can't say that I'm exceptionally fatigued. Now, I haven't tried to go for a run in the trail since I've been unwell...maybe then I'd realize I had fatigue...


So, anyone else not have fatigue?
Posted 6/27/2014 5:15 AM (GMT 0)
Hey Girlie! Ya know, I've had lyme for 15 to 20 years, and up until last year, fatigue wasn't a big issue for me either. Then it hit me like a bulldozer and got worse after I started treatment. I don't think everyone has this one symptom.
Posted 6/27/2014 5:17 AM (GMT 0)
I didn't have fatigue for about 5 years. Then, same as Asada, I was hit hard. Now it's every day. Good thing you caught yours now.
Posted 6/27/2014 5:25 AM (GMT 0)
Not so much fatigue for me either as what Ive noticed is my loss of actual stamina...I cant go-go-go like I used to. I get worn out more easily.
Posted 6/27/2014 5:44 AM (GMT 0)
Thanks everyone!
Maybe if I wasn't in so much pain, I'd try to do more and realize I have fatigue. I'm not really pushing myself becuz I hurt almost all the time.
Posted 6/27/2014 1:41 PM (GMT 0)
I had lots of other symptoms for years, but they weren't enough for me to realize I was sick. It wasn't until my immune system really took a hit that the fatigue came, and I knew I needed help.
Posted 6/27/2014 10:42 PM (GMT 0)
I wasn't even aware that anyone with Lyme might NOT have fatigue. I get so tired I can barely talk; I start talking in a whisper. I used to get so tired, I had to get ready for bed (i.e. brushing teeth, etc.) sitting down. There were times I was too tired to walk, and would bump into walls.

Of course, I'm in the advanced stage, so maybe you aren't, at this point.

I've had Lyme for over 20 years, and have had several bull's eye rashes.

I'm just glad I don't fall asleep in the car anymore. I've taken naps in so many anonymous shopping mall parking lots, it's ridiculous.

Margaret
Posted 6/27/2014 11:12 PM (GMT 0)
Fatigue has never been an issue with me ... I've had migraines, debilitating pain, irritability and extreme lack of patience, foot pain, etc - - but fatigue has not been an issue ...

I wonder if the fatigue is actually the reactivated Mononucleosis / Epstein Barr virus returning when lyme has compromised the immune system ...

My sis had mono bad when she was younger, and when she had lyme, fatigue was profound with her - - She caught the lyme early and is doing great after a short course of antibiotics ( 2008 )

I never had a bad experience w/ mono ..... but then again, I have a lot of red streaks and all the classic bartonella symptoms, so maybe bartonella doesn't present as much fatigue as lyme ( although I don't see why it wouldn't )
Posted 6/28/2014 4:28 AM (GMT 0)
I've never had mono, and don't test positive for having been exposed either. But I have profound fatigue.

I know of others with Lyme who do not experience fatigue.
Posted 6/28/2014 5:03 AM (GMT 0)
Thanks for all the replies...now I know I could still have Lyme -with or without fatigue.

I don't mean to sound ecstatic about the possibility of lyme, but I have been feeling so crappy...that I want - or should I say need a diagnosis, and I'd certainly rather have Lyme disease than ALS, or MS. Not that it will be a "cake walk", but there is hope in treatment and having my life back.
Posted 6/28/2014 5:32 AM (GMT 0)
completely understand girlie and ditto on your points
Posted 6/28/2014 5:51 AM (GMT 0)
I had fatigue when I was on doxy in Oct. Then nothing until this week. I have been so tired I almost fell asleep standing up cooking:( LOL I hate cooking but you'd think I could think of a better way to get out of it.
Seriously though all day I've been wondering if I have cancer or something, I just can't keep my eyes open. this really sucks. I can't wait until Monday so I can give my LLND more blood to test.
Posted 6/28/2014 5:56 AM (GMT 0)
Hey Picture - I know what you mean. My results aren't back yet, so I'm not positive I have lyme.

I think about cancer, too. It's scary having all these symptoms and feeling so awful.
Lately my skin has been itchy. So, maybe I'll post about that and see if it's a Lyme symptom.
I know it can mean liver problems..and also kidney problems. Hear we go again.

Have you had positive blood test?
Posted 6/28/2014 6:52 AM (GMT 0)
I haven't been diagnosed with lyme, but I have had and do have many of the symptoms, including the bulls eye rash and pink eye. And I have an appointment in Sept. with a doctor who treats lyme. I am not exhausted, but I am always sleepy. Besides just falling asleep while driving or at the computer, I take lots of naps and sleep the day and night away, three or four days a week.
Posted 6/28/2014 3:40 PM (GMT 0)
yes, Mr. Mike - I'm chomping at the bit to get on Doxy and at least to a challenge...see how I respond. I'll do that if I'm negative and if I'm clearly positive - hooray! Let's kill them bugs!
Posted 6/28/2014 5:35 PM (GMT 0)
So do you think mono explains some of the fatigue? I had mono when I was in my 20s, and my EBV titers are really high.

Girlie, I'm glad for you (and anyone else) that your fatigue isn't bad. Count your blessings.

I have to say, I'm definitely less fatigued than I was years ago, but it depends on the day.

Sleep, or lack thereof, has a huge effect on how I feel.

Margaret
Posted 6/28/2014 8:48 PM (GMT 0)
Margaret - it's one of the few symptoms I don't have. If I end up getting fatigue, too - OMG - I'll be a mess.
Posted 6/28/2014 9:59 PM (GMT 0)
Yes. Terrible fatigue all the time.
Posted 6/28/2014 10:03 PM (GMT 0)
Sorry Akkami.

It's hard to cope with, and hard for others to understand.

Excuse bad grammar.

Margaret
Posted 6/29/2014 1:34 AM (GMT 0)
Fatigue was first to hit and last thing I have to resolve.
I don't think its all viral even though I did have reactivated EBV to start I also had 12 other infections.

The issue of fatigue for me seems to be CCSVI
And though when I researched a doctor treating this he feels it's the vagus nerve being affected that causes fatigue due to nervous system which runs from brain to body for all the automated things the nervous system does. Such as sleep too and digestion and urinary function. Which I always had issues with somewhat prior to being deathly ill. So who knows.

Fatigue and pain where always my debilitators
This last two years I got off narcotics and my pain is 90 percent resolved. Which is amazing. I am hoping since I had fatigue and then had pain set in that fatigue goes next.

I had at least 50 symptoms after fatigue and pain that all revolved in order they came on. Like perking back the layers that piled on many of us resolve in order they came on.

I'm surprised at the number who don't have fatigue but that would be a great thing I say be happy for that. But I don't think you must have fatigue to have Lyme disease.
Posted 8/9/2014 9:30 AM (GMT 0)
I can dive into bed and sleep for hours, no matter the time, day or night. But I don't have the debilitating fatigue that makes you feel that you can't take a step or lift your arms.

I had a first-time case of EBV a couple of years ago. Now, I'm confused by all the conflicting info, such as my blood test results this year. My pcp called to say my EBV numbers (didn't say titers) were the highest he had seen in a patient, and he sent me to a hematologist, who said the numbers meant I have a great immune system. Then the hematologist said to come back in four weeks for another test. I just don't know what to make of the whole thing, but I didn't go back. Thank God I will see an LLMD in Sept.
Posted 8/9/2014 2:35 PM (GMT 0)
I didn't have any noticeable symptoms for a looong time after I went into remission. Looking back, they were there and just attributed to other things (stress, being too busy, virus, arthritis etc.) Now that I'm being treated I feel every one of them included increased fatigue. Could you be doing the same with fatigue?
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