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Dizziness/balance and vertigo

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Posted 7/14/2014 8:24 PM (GMT 0)
I know that many of you have or have-had balance issues, I am just wondering what you attribute it to. Lyme, Bart or Babs? I was told 3 different things by 3 different docs... So frustrating.

It has gotten so bad. I almost fell into another person's plate the other night exiting a restaurant. And with the slurred speech, I am sure everyone else in the restaurant thought I had been drinking...

If you did have it, what helped? I am at a loss and would really appreciate help on this one...thanks!!!
Posted 7/14/2014 9:38 PM (GMT 0)
I was told it has to do with inflammation if the vestibular nerve. Lyme and company can settle there and cause annoying balance issues. Mine relatively mild but when it's bad it feels like I'm walking around in a trampoline and I get that heavy escalator "whoop" feeling a lot. Probably the worst symptom in my book. What helps is staying away from bread, sugar and carbs. Also I found that tea made from stevia helped for some reason.
Posted 7/14/2014 10:06 PM (GMT 0)
Sorry to hear you are struggling with dizziness and balance issues. Dizziness was my first symptom for 4 months, off and on. Sometimes it lasted for 2 weeks non stop. The room never was spinning thank goodness, it just felt like I was on a boat. Then one day it went away and hasn't come back in over 3 months. Let's hope it stays that way! My LLMD never said what exactly causes it, I never asked. But I see him next month and I will ask him his opinion.
Posted 7/14/2014 10:08 PM (GMT 0)
PS. This was way before treatment. I probably wouldn't of had it that long if I got treatment earlier.
Posted 7/14/2014 11:11 PM (GMT 0)
Thanks icurseticks! Please let me know what the md says. Thanks!!
Posted 7/14/2014 11:17 PM (GMT 0)
I will Dannarahn:) hang in there. It will pass.
Posted 7/14/2014 11:31 PM (GMT 0)
Icurseticks, what treatment were you on when it went away?
Posted 7/14/2014 11:43 PM (GMT 0)
It actually went away before treatment. Sadly I struggled with other symptoms after it left tho. Thats how i discovered it was lyme. Dizziness was my first and only symptom for the first 4 months so doctors never suspected Lyme.
Posted 7/15/2014 12:08 AM (GMT 0)
I just wish I knew which it was; Lyme,Bart or Babs. Then I could figure out best treatment!!!! I am soooooo dizzy 24/7. It's worse when I get up in the morning - I just keep spinning bad for about 2 hours - then it lessens but it's always there! I haven't read a book or walked a straight line in over 1 year now! Other symptoms too but none as debilitating as this! Argh....
Posted 7/15/2014 12:20 AM (GMT 0)
I am so sorry. I really am. It was my worst symptom for sure. Mine was worse in the morning too! I dreaded waking up in the morning and feeling dizzy and my head had a really weird feeling, it is hard to explain. Reading and walking was definitely a challenge for me as well. Please hang in there, nothing last forever. I am a strong believer in that.

My doctor just recently tested me for bart and babs. I am waiting for results....

Do you have any other symptoms?
Posted 7/15/2014 12:33 AM (GMT 0)
Dannarahn, I feel for you, I've had Lyme now for 15 yrs and the dizzy thing came on me after moving back to the north (WV) and at first I blamed it on barometric pressure changes. Seems like I had it more in the colder months but now I get it once in awhile in the summer. I got diagnosed in November and my doctor so far only suspects Lyme. So I've been on treatment for 7 months and still get it slightly but it doesn't last and it's not bad like it used to be and I've only noticed it a few times.

I don't get the slurred speech but I have issues finding words and forgetful.

I started grounding myself at night, read about it at www.earthing.com, and seems like it's gone away since I've been doing this now for 3 weeks or so.

When I get it, it's more so upon waking in the morning and has lasted half of the day. Seems like my back felt weird also, like I needed to stay in bed but had to always work so I fought my way through it.

Also had it one day when I went to the Lyme doc and he did a ozone treatment on me and it was gone when the treatment was over and didn't notice it again for a few days or week.

Prayers to you, I hope you get healed quickly, this thing is so annoying.
Posted 7/15/2014 1:08 AM (GMT 0)
I have a slight balance issue also but mine is worse in the evening.
Posted 7/15/2014 1:34 AM (GMT 0)
My neurologist put me on scopolamine patches and that has really helped. Sure makes your mouth dry though!

It's worth it because I can now move around my house without my walker. I won't attempt a trip out without it. Not that I go out anyway, except to doctor appointments...
Posted 8/17/2014 4:25 AM (GMT 0)
I have been dizzy for a few weeks now. It's happened before. My chiropractor does some kind of muscle testing and balances my body. It used to work very well ine past but hasn't been working as well the past few weeks. I'm thinking of going to an ENT to see if they can help and give me some exercises to move the crystals in the ear. Has anyone had luck with that even though you have lyme? My Physical therapist who is very lyme knowledgable thinks that it is Babesia. I was treated for Babesia and was not having dizzy attacks as much then. My LLMD said that I no longer have Babesia but i'm wondering if maybe it was never completely gone if that is my problem. It's very frustrating
Posted 8/17/2014 12:30 PM (GMT 0)
Jaspermax,
I can so relate! I have vertigo and balance issues worse than ever right now. I have tried taking meds with no success. I am an audiologist and am knowledgeable in that area, and it appears my problem is not stemming from my ears as much as is stemming from my brain. My husband is a physical therapist, and I have tried doing vestibular rehab with no success either. I will tell you though, that staying hydrated is very very important for vertigo.
I have been to many docs and most recently, I was told it was "chronic vertigo". When I told him that is a symptom and not a diagnosis he just looked at me. It's back to square one!
I was treated for Babesia as I tested positive, but perhaps I was not treated long enough - only 3 1/2 months. Another doc said vertigo is more likely Bartonella. I honestly don't care at this point which it is, as long as I can be treated and have it diminish somewhat where I can go about my day without holding onto everything!
Anyway, I wish you much luck and success and if I find a resolution I will certainly pass it on!

Post Edited (Dannarahn) : 8/17/2014 7:01:21 AM (GMT-6)

Posted 8/17/2014 2:00 PM (GMT 0)
D:

Have you tried accupuncture. Somebody I know had bad vertigo for close to a year and it helped her. She does not have lyme though.
Posted 8/20/2014 12:59 PM (GMT 0)
Aphysicalwreck
Thanks. Yes, I tried that for awhile with no relief. I am going to work on strengthening my immune system as someone suggested :-)
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