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New level of tiredness for me

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Posted 7/30/2014 4:43 PM (GMT 0)
Yesterday and today, I've been TIRED. Like fatigued. So drowsy that if I sit down, I truly don't want to get up. If I close my eyes, I feel like I'm 1 minute away from deep sleep.

The back story? I used to drink 1 cup of black & green tea (a mixture inside the tea bag, not using 2 tea bags) every morning and every afternoon. It was a beautiful and delicious ritual that I prized, for relaxation and me-time and re-energizing time.

Monday I went off caffeine per doctor's orders.

I think this reaction is SO pronounced. I knew I was tired before when I was drinking my daily 2 cups of tea, but I didn't realize that it was keeping me functional. I'm on neurontin which makes me sleepy. Oh, my. My eyes are shutting, demanding sleep, but I have things I want to do!
Posted 7/30/2014 5:00 PM (GMT 0)
I would say that the number one symptom of Lyme is fatigue. So
you are most likely just having a very obvious flare up of your illness. I get fatigue almost everyday and it is instant and clunked out type even after sleeping well at night. I feel groggy and like I need to lay down and sometimes I can sleep for 2 or more extra hours easily. I don't even know if I can shower and get dressed--even by supper time because I am so wiped out. It is just Lyme!
Posted 7/30/2014 7:35 PM (GMT 0)
I agree with Sueg. Fatigue is one of my most frustrating symptoms. I feel the same way all the time (and right this moment). Once I sit down, I try to get up to go get a glass of water or lunch, and I have to sit/lay right back down, and often take a nap in the middle of the day. It definitely makes it hard to get things done, huh?
Posted 7/30/2014 8:06 PM (GMT 0)
This afternoon, I dragged myself and my 7yo to the grocery store just 20 minutes away. I held her hand to help me be steady while I walked toward the grocery carts. We shopped for 2 bags of groceries--she helped me pick most of them out. But then, on the way home, I was SO tired while driving! I put the windows down to try to wake myself up. Then I had that jolting awakening feeling like I'd let my eyes shut while driving. Oh my goodness!! Adrenaline kicked in to get me home.

Conclusion: I cannot drive in this condition. What am I going to do?
Posted 7/30/2014 8:15 PM (GMT 0)
Oh gosh, yes I know that all too well. I found recently that Lyme is causing poor adrenal function for me- my cortisol levels are low in the morning and early afternoon, which causes me to feel as you've described. Not to try to pin all lyme fatigue on adrenal function, but do you know how your adrenals are functioning?
Posted 7/30/2014 8:24 PM (GMT 0)
I think I've had normal cortisol labs since being diagnosed with Lyme, but before that, my natural doctor was trying to boost my adrenals--without luck, apparently. :-)
Posted 7/30/2014 10:53 PM (GMT 0)
This is serious fatigue. I wish I had a different word for this feeling, something bigger.

I'll ask my LLMD about a change in meds & see what he says.
Posted 7/30/2014 11:11 PM (GMT 0)
I have overwhelmingly fatigue this week also. I am on an off week of antibiotics, wonder if that is why? I just ate my dinner thinking that would help but it didn't.

I clean homes for a living and it is so hard to move around and clean, this has to pass. Glad I don't always feel this like this, usually it comes for a few hrs.
Posted 7/31/2014 12:10 AM (GMT 0)
I wish I had more insight as well. All I can do is relate. Like you said, it's greater than just the word "fatigue." I hope your doctor has some answers for you. Good luck and keep us posted!
Posted 7/31/2014 12:36 AM (GMT 0)
Wait a minute. You're on an off week of antibiotics??? Me too.

I wonder if this is part of our norm.

I've been eating more and craving carbs more--perhaps to find some energy when none is to be found.

I hope your energy for cleaning comes back soon!




Revive said...
I have overwhelmingly fatigue this week also. I am on an off week of antibiotics, wonder if that is why? I just ate my dinner thinking that would help but it didn't.

I clean homes for a living and it is so hard to move around and clean, this has to pass. Glad I don't always feel this like this, usually it comes for a few hrs.

Posted 7/31/2014 7:46 PM (GMT 0)
I have read about other Lymies who say" you don't get it until you got it" (the fatigue, that is) And I think there is a word called
lassitude that would define it.

BTW--Before I go home after whatever errand I have had to park the car and rest for 30 mins or more just to be able to walk from the garage to the elevator at our apt. and then down the longggggg
hall to our place! I am trying to get a handicapped card so the garage walk is not as long.
Posted 7/31/2014 8:15 PM (GMT 0)
Your resting sounds smart. That'd be hard to do here when it's 95 degrees out.

I'm nervous about driving at all now. My teens will be home soon to help me manage.

Until then, I'm taking it easy!



sueg said...
I have read about other Lymies who say" you don't get it until you got it" (the fatigue, that is) And I think there is a word called
lassitude that would define it.

BTW--Before I go home after whatever errand I have had to park the car and rest for 30 mins or more just to be able to walk from the garage to the elevator at our apt. and then down the longggggg
hall to our place! I am trying to get a handicapped card so the garage walk is not as long.

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