Airways closing. Please help.

Do you have hot sweats?

Have you been tested for Mycoplasma?

btw, at least according to the Dept. of Public Health here, Doxy takes care of some co infections.

Margaret

After eating...are you allergic to something you are eating maybe?

It's worth mentioning that I had these similar episodes a year ago every time I took either nystatin or fluconazole but I stopped all antifungals since.

specialcase- Well my daughter had the same issue when she was sick. Dr. J. examined Heather's jaw and told us that her malformed jaw was causing a state of "fight or flight" for her autonomic nervous system. This translated into her choking when she ate food and going into a state of hyperventilation if she tried to swim.

Dr. J. is not a dentist or surgeon so he referred us to a "Biological Dentist" that understands and corrects such things. Heather's pediatric dentist was very alarmed that her jaw became malformed within a period of 6 months and told us that it can't be corrected orthodontically. He referred us to a couple of surgeons. They wanted to break her jaw and reshape it with titanium. We were horrified.

The Biological Dentist had the training to tell us the same things that Dr. J. told us. He also had equipment that scientifically showed us that the parasympathetic Nervous system was in chaos. He was extremely technologically advanced, and was able to show us what was wrong, and what needed to be done. He devised a series of orthodontic devices (Oral System Balancing) that slowly changed the shape of her jaw, and consequently the way that her teeth fit together. Prior to treatment, only 2 teeth in the back of her mouth touched on one side of her mouth. A session of Cranio-Sacral was also performed within hours of each appointment to adjust the orthodontic appliances. This type of treatment was used to change the way that her cranial plates were shaped. Her eating and breathing difficulties went completely away within a short period of time. The entire Oral System Balancing and orthodontic phase took over 2 years to accomplish. The end result is cosmetically pleasing as well.

Of course since these infections are inflammatory in nature, it could be due to medication intolerance, some other kind of allergy, or some other reason that causes histamine release or nervous system dysfunction.

I wish you well in your quest to find a solution. I would advise that you find a physician that has been trained to understand such things, as very few do. Good luck and please keep us posted with the situation. I know that is a nasty symptom to experience.

Don

Post Edited (Heathersdad) : 8/14/2014 7:06:04 PM (GMT-6)

Hi hun...sorry you arent feeling well. I have been where you are at and it is a scary place when it is to do with your breathing--I know. Does the benedryl help you? Im sorry, hospitals SUCK when it comes to lyme. Dont get me wrong, if its something that comes up on tests or in their face they will help you and treat you but they just arent up to par with lyme/multi-system zoonotic infections that come with lyme. They love to write the unknown off as "anxiety".

I have been ill for going on approx around 3 years now but was not really bad until this year. I went to the hospital by ambulance one of the times with what I call 'internal tremors' where my body will feel like im trembling and shaking inside and I didnt/couldnt sleep for 3 days straight among other symptoms flaring up. This is when I said Im getting my butt to an lyme literate medical doctor (it was this past March '14).

I am still not well at this point but it helps to recognize what things are and not be scared by them. We always "Fear the unknown" unfortunately.

Honestly, I swore up and down that it was not anxiety back then....but you would be surprised at what the bacteria can do to your nervous system and how it causes severe anxiety which can affect your breathing. Esp. bartonella which is really hard to get a positive test for even if you are tested.

With you saying you get "claw -like rashes" ...that is pretty indicative of bartonella I think most would agree.

Do you have sore shin bones or any nodules along extremities such as fingers or toes or shin bones....or severe anxiety? These are my distintive bart symptoms among others.

Also, what is your diet like? What about your tongue...is there a white coating on it? Or if you are female, any yeast down south?

I ask because when you took the anti-fungals, you could have a severe die-off (herxheimer reaction) to the die-off of candida. This can very well affect your breathing esp. mixed w/lyme or co-infections. I have been through much with this illness and have dealt with the breathing issue on more than one occasion.

The yeast overgrowth/candidia issue comes to mind as well because you mention after you eat that you have symptoms.

I am happy to hear you are getting ready to start abx. Although again, if you do have anything indicative of yeast overgrowth, you and your doc may want to address that first before starting abx because the abx contribute to more loss of good bacteria in gut.

Regardless, if candida is your issue or not...please keep in mind to get a good probiotic to take while your on abx. I normally try to space mine 3-4 hours aways from abx.

I hope you find some relief and feel better soon

xx's
-Courtney

orchid_rain said...
Do you have sore shin bones or any nodules along extremities such as fingers or toes or shin bones....or severe anxiety? These are my distintive bart symptoms among others.

No, none of those. Don't have any real pain such as the classic soles of feet pain that often crops up on symptoms lists.

orchid_rain said...
Also, what is your diet like? What about your tongue...is there a white coating on it? Or if you are female, any yeast down south?

I ask because when you took the anti-fungals, you could have a severe die-off (herxheimer reaction) to the die-off of candida. This can very well affect your breathing esp. mixed w/lyme or co-infections. I have been through much with this illness and have dealt with the breathing issue on more than one occasion.

The yeast overgrowth/candidia issue comes to mind as well because you mention after you eat that you have symptoms.

This is a strange one. Because before I got the lyme diagnosis I saw an ND who was sure the entire problem was candida-related. Tongue was indeed coated then. Prescription strength antifungals failed to make a dent and I stopped them completely after too many breathing problems. Tried every herbal antifungal - nothing. Huge amounts of probiotics - nothing. Then, after a suggestion of lyme, I tried a regimen of samento and banderol - only a drop or two a day. After two weeks of that my tongue became clearer than it had ever been and hasn't reverted back to what it was. But the breathing problems persisted so I know that's not a candida issue. And therefore, no real concerns about going on a long stretch of antibiotics.

Hi Specialcase,
Welcome to our community!

Have you read through our "New to Lyme? Start here!" thread yet? Even though you are not "new to Lyme", there is a ton of really good information there that could be of help to you.

You have not yet mentioned detoxing. No matter what you are treating - your body is obviously having great difficulty. Detoxing could be very helpful - I know that my body can't tolerate much if I'm not helping it to detox. We have some really great detoxing suggestions in the "New to Lyme?" thread.

You don't have to have all or any specific symptoms to have any one of these infections. It all depends on which strain of bacteria you have as to what symptoms you will experience and how your body responds to it. I would suggest that you go over all the symptom lists (also can be found in our "New to Lyme?" thread) adn see which ones you fit most of the symptoms for.

You said Samento and Banderol helped you - why did you stop using them? They can treat Lyme disease, so maybe this is all related to Lyme?

Have you been tested for mold exposure?

For mold exposure, I would suggest that you start here:
www.survivingmold.com/
Lyme and other tick-borne infections won't heal for some until they are treated for mold exposure.

Don't get me wrong - the trouble breathing would scare the beejeebies right out of me!! But - is it possible that you built up the samento/banderol too quickly, or that it was a "bad herx"?

Methylation issues can cause a person to herx quickly and severely.

Where are you located? Someone here may know of a doctor that can help you much better than we can by guessing. Don't give an exact location, just name a nearby larger city & state or at least the section of the state (North west, South east. etc.)

Don't want to go down a wrong road with the mold. I was treated for mercury toxicity for a long time to zero improvement. I never had asthma or problems around mold before, no breathing problems of any description. Though I know there'll be co-factors in any illness.

Methylation issues are a possibility.

I'm located in Ireland where there's nobody properly qualified for this illness. I was diagnosed by a nutritionist in London via phone consults (blood results from Germany). They're supposed to have a decent llmd there but I haven't spoken to him and he won't prescribe anything without seeing me face to face and travel is simply impossible for me at the moment.

It's wishing to know the exact cause of the breathing issues is the focus of frustration. I have terrible air hunger all of the time, haven't taken a normal breath since this illness hit me - this I can live with while treating. But the airways closing over and being unable to breathe - this I can't deal with.

"the airways closing over and being unable to breathe - this I can't deal with."
I don't blame you!! Have you tried using antihistamines when this happens? Just curious.

Also have you checked out this group? www.ticktalkireland.org/index.html

Being part Irish, I've always wanted to visit, although it's not something I'll likely every accomplish, unfortunately. I hear that it's a gorgeous area!

I have frantically guzzled down some benadryl when it's occurred but it doesn't feel like an allergic reaction as such.

I've checked out the lyme sufferers in Ireland and they're pretty much of the consensus that you need to get out of the country to get help.

Fortunately, I just spoke to my ND and he's open to prescribing whatever I need. Just wish I had an answer to the breathing problems.

For mold, please see this site:
www.survivingmold.com/