dizzy spells :(

wellI thought I was done with this hell that is lyme and coinfections.
But I don't know. This morning I went to a restaurant to get some to go food And I got this dizzy spells. there was loud music playing and I noticed all the patterns in the floors and walls and everythin- and I felt super dizzy and overwhelmed.
These days I don't know what is what.
Over the last few month I have taken a fair am't of valium to help with the anxiety. I wonder if possibly my current brain issues is a reaction to that, like valium withdrawal?
Otherwise it may be the lyme still active, which means my treatment isn't working.
Or else it is psychosomatic, sort of a ptsd from having had the panic in th epast.
I don't know but all I do know is I get so easily anxious and overwhelmed and visually dizzy.

I feel like this is continuing to ruin my life and I am so so sad about it.
A few months after I stop the treatment I will get the german blood test to see if my lyme is still active. It may be worth it for me though just to get the test at my next visit too which is about 2 weeks, so I know if I still have the active infection right now.
I am so tired of feeling easily overwhelmed. It is fine when I am home inside without too much stimulation. But going out in public with noise and too much movement and visual stimulation really messes me up. I don't know sometimes if I have permanent brain damage or something from this disease? Or if it is something just cause by my anxiety, or a reaction to having taken valium on average once a week for the past 3 months?
What do you guys think?

I'm sorry you're feeling like this Delmar.
I don't think taking valium once a week will cause rebound anxiety.

Discuss all this with your LLMD - maybe it takes a while for the brain to totally heal even after you stop the treatment.
Don't worry - even if it means further treatment for a few more weeks. Eventually you will be well!

well maybe not totally better. I don't even know what is what any more. I think I feel fine then bam I get hit with an episode.

You may find this link helpful too:
www.lymeinfo.net/autonomic.html

traveler- there are conflicting ideas about the 200 mg vs 400 mg of doxy ( or in my case minocycline).
The first llmd I saw said you have to take 400 mg or it doesn't work.
But the llmd I use now is so very much more experienced than the first one- he said at my first visit- we use lower doses of antibiotics and find that it actually works better than the higher doses-
He is not saying it from ignorance but I think from going even beyond the other thing?
All I know is my llmd is a close associate of Dr H, and works closely with him- and I like to think he really knows his stuff. At least I hope so! Where as the ppl I saw who said the 400 mg was necessary were not very skilled.
Of course I don't know the real answer- for me it remains to be seen. But I do trust my doctor for what it is worth! I think he is very well versed in lyme, it is his specialty. And he is a good doctor so I sure hope he knows what he is talking about!
HE doesn't just have me on the 200 mg of mino, as I have said I am also on malarone rifampin and a bunch of herbals.

traveler yes, my doctor switches my protocol. I see him in a week. I don't even know what is what anymore with my symptoms. I was feeling so much better--- even this week I posted on here that my symptoms were mostly gone. So know something is working. Then I had that dizzy spell yesterday and it sent me back into fear mode- and now I feel unbalanced and afraid again. It is so hard for me to interpret this whole thing. I will tell it all to the doctor next week and let you guys know what he says. He had been planning to stop my antibiotics really soon and go to just herbals for three months. Because I had been feeling so much better, It is so weird how I felt so much better but now I cant even discern what I feel. I may ask to get the german blood test he does- which can asses the level of infection accurately-- as I said I tested months ago for low level infection. He was planning to test me in a few months after I was done with the antibiotics but maybe I can get tested sooner too.
I will see what he says,
I feel like my symptoms have gotten better but then there is this residual brain stuff which is so scary. Also I will ask him why some ppl say 00 mg of mino and he says 200.

There's a big difference between Doxy and Mino, especially in their dosages.

If he's switching you around, have you changed anything recently? A change in most any thing can bring on a herx - maybe this is part of a herx?

I'm looking forward to hearing what your doc has to say!! Maybe a switch to herbals is what you need?

Do you know what forms of artemesia you took and what you are taking now?

Buhner did say this:
"Artesunate is a pharmaceutical derivative of a constituent of Artemisia annua. It is unstable and is only available as injections as artesunic acid. This must be prepared just before use. I am having growing concerns about artemisinin and its use in lyme infection and this would apply as well to artesunate.

Both should only be used short term, however many people are using artemisinin long term and even short term many people are reporting unpleasant side effects. I am beginning to recommend the use of cryptolepis more often, especially if artemisinin does not work after a short course use. "

Herxing s*cks - no matter when it hits! But I understand what you are saying.

Lyme tests cannot detect antibodies within the first few weeks after a tick bite. The body needs time to generate enough antibodies to be detectable on the test. But the doctors should have told you to get tested after about 4 weeks, and not just let you believe you didn't have Lyme... So sorry you had such lousy advice initially...

I too deal with vertigo (mine is constant 24/7) and being overwhelmed by patterns and places that are really busy...and these symptoms for me started after one dose of Doxy...

Ya just had to go and mention pizza, didn't you? I'm a pizza freak!! I just love, love, love the stuff!! LOL!!

Now I want some too!!!
Anyone know of a good gluten free pizza dough recipe???
Oh!! I found one I want to try!

By the way - that gluten cheat is almost certainly why you are so exhausted today.......

Once you talk with your doc, let us know what you find out!!

Oh I could kiss you, PrayingForAMiracle!!! LOL!

That's a lot of cheese for the crust, but maybe just once in a while I can tolerate it!!!

Woo hoo!!!!

yeah. I had the dizzy spell yesterday, before the gluten. I have been GF over 2 months and in that time once ( aout 2 wks ago) I had fried fish- felt moderately bad the next day. then this week had a few bites of someones tempura.
But the pizza, that was my first major bread gluten- and I just had to know for sure if it really affected me or not. My husband and son were eating it- my favorite amazing childhood pizza. first I thought, wellI will just eat the cheese and peperoni ( my doctor says dairy is fine for me). So I did that. Then, just one bite of the amazing crust, then I ate 1/2 or 2/3 of the piece. I said well if I am going to have gluten cheat it may as well be my favorite childhood pizza ( I am visitng family in my childhood hometown far from where I live so it is a rare chance to eat this special pizza). so yeah then today I am exhausted.
I hate the tick that made it so I get sick when I eat my favorite pizza :( so sad. so sad to be sick at all. So sad that at my age and with my knowledge ( early 40's), I still didn't treat the lyme aggressively in the beginning. I even came right on this website the week I got bit, but I was so confused stil about how to treat it. I went to three doctors and got mixed messages ad did a few weeks of antibiotics, almost got into dr H's practice just before he stopped taking patients- but my husband didn't get me when they called back ( argh!) then waited 7 months to start stronger treatment.

I have so much fear and regret abou this whole thing and how it has taken a year of my life. I have a young child and it is really draining my relationhip with my husband and child- I mean our relationship is fine but it is draining my own experience of being a wife and mom because I am scared and sick all the time.

I am glad I am seeing my llmd in a week- last time we just had a phone consult ( complications with car trouble on my end) and so this time he will see me and I will tell him all my troubles and maybe he can help.