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Please sign this Lyme and coinfection petition!

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Posted 9/2/2014 1:38 AM (GMT 0)
This petition has less than 500 signatures! It is to form a panel including lyme doctors and lyme patients to find effective solutions for those affected by Lyme disease and coinfections.

Exposure is important!

/petitions.whitehouse.gov/petition/appoint-panel-find-effective-help-those-lyme-disease-and-associated-tick-born-infections/Pk9BzV9W

Post Edited (AML94) : 9/5/2014 11:02:51 PM (GMT-6)

Posted 9/2/2014 3:48 AM (GMT 0)
Awesome!

I signed it.

t-minus 18 days left people.
Posted 9/2/2014 4:00 AM (GMT 0)
I posted it on two Facebook groups, and at least two of my non Lyme friends have signed it. I also got one share. I just found out about this tonight. We need to spread the word!
Posted 9/2/2014 4:20 PM (GMT 0)
http://www.huffingtonpost.com/2011/09/22/white-house-we-the-people_n_976906.html

Signed it , hope its for real

Appears legit, see link above

Post Edited (Roxie60) : 9/2/2014 10:26:55 AM (GMT-6)

Posted 9/2/2014 4:24 PM (GMT 0)
We'll, it IS on the White House website, so I think it is for real.

I'm not sure how much good a panel would do, but at least it would be exposure.
Posted 9/2/2014 5:41 PM (GMT 0)
Respectfully, I question whether asking for more government involvement is a good thing. Let's not forget that the CDC is a government agency.
Posted 9/2/2014 9:51 PM (GMT 0)
Oh, I agree. I'm just not sure how to get the government out of it when they're already so involved. At least this panel is supposed to include lyme patients and top doctors.

We need a CDC whistleblower like the vaccine one!
Posted 9/2/2014 11:03 PM (GMT 0)
I am the last person who wants more government intervention but the government agencies have a vise grip on this issue. As the NIH memo stated, we are in a war and we need to do battle on as many fronts as possible. This is an easy one to raise awareness, no money just signatures.
Posted 9/2/2014 11:50 PM (GMT 0)
I sent a tweet to Kevin Bacon (at least I think I did) to make him aware of this petition. Hopefully he will retweet and will result in more signatures.
Posted 9/3/2014 12:06 AM (GMT 0)
Also sent tweet to Nathan Fillion, if he retweets he could reach millions with one tweet. Hopefully will see big jump in sigs over next couple of days. Also added to Facebook.
Posted 9/3/2014 12:36 AM (GMT 0)
We should tweet everybody famous with lyme. I don't use twitter.
Posted 9/3/2014 1:12 AM (GMT 0)
Sent email to Katina Makris host of weekly lymelightradio show asking for her to make announcement about this petition. Im spent, headache, need to take a break.
Posted 9/3/2014 3:28 AM (GMT 0)
Just heard back from Katina Makris. Her next live show is 9/10/14 and said she would mention the petition on air. You can find info on her radio show at this link lymelightradio.com/
Posted 9/3/2014 4:07 AM (GMT 0)
Cool!
Posted 9/3/2014 4:20 AM (GMT 0)
Just tweeted Lady of Lyme to make her aware of the petition. I really have know idea if thes3s tweets are working. I had never used twitter before. Hoping they Re getting through.
Posted 9/3/2014 4:10 PM (GMT 0)
Someone on another forum asked some questions about the petition so I thought I ould also post here

Sadly I think it is just for US citizens

What is the purpose of We the People?

We the People is a new, easy way for Americans to make their voice heard in our government. It is a platform on the White House website where individuals can create and sign petitions that call for action by the federal government on a range of issues facing our nation. If a petition gathers enough signatures, it will be reviewed by White House staff and receive an official response. We the People helps the White House understand the views of the American people and have a focused and civil conversation with them.

How does We the People work?Who can participate in the We the People platform?

Anyone 13 or older can create or sign a petition on WhiteHouse.gov. In order to participate in the We the People platform on WhiteHouse.gov, users must create a WhiteHouse.gov account and verify their email address.

What happens to a petition if it doesn’t reach the petition signature thresholds?

Petitions that do not reach the threshold for official response will be removed from site.
Posted 9/3/2014 5:08 PM (GMT 0)
Im sure we have over 100 active members here. Only a few have commited to stand up and be heard. There are many activities lymies cant participate in due to not enough energy, feeling sick or no finances to spare.

This is one way that costs nothing but 2 minutes of your time, your name which is only displayed as initials and your city. Then you have to reply to an email verifying who you are. That is it. If we dont try to stand up for ourselves and be heard who will? It takes more energy to post a thread here than sign this petition. None of us like what is happening to lyme patients and others likd cfs and ME so here is a chance for us to br heard. No matter the immediate results there is a good feeling when we stand up for ourselves against injustice.
Posted 9/4/2014 12:49 AM (GMT 0)
Bump for those who are not award of the opportunity
Posted 9/4/2014 2:44 AM (GMT 0)
I've had two Facebook shares, and at least 10 friends signed. But it's still barely over 500.
Posted 9/4/2014 3:11 AM (GMT 0)
Hopefully it will pick up as people make an effort to be counted and support those they know have lyme. I will not be discouraged cause I know you and I and a few others tried. I think about 20 have signed with my prompting. Katina makris show next wed might be a time to check again. We can be proud that we are taking opportunities to be heard instead of just complaing about how wrong our situation is and doing nothing.
Posted 9/4/2014 4:14 AM (GMT 0)
Can you tweet Daryl hall, Debbie Gibson, Amy Tan, Jordan Fisher Smith, Mandy Hughes, Jamie Lynn Siglar, Alec Baldwin, Richard Gere, Rebecca Wells, Jane Alexander, Angeli Vanlaanen, Dr. Burrascano, Pete Seeger, and Yolana Foster? All lyme patients.

I would gave added George Bush, but I can't see him signing a White House petition!

I really need to learn to use twitter!
Posted 9/4/2014 4:44 AM (GMT 0)
I just tried using Twitter to teach out to the ones I tried but have no idea if it worked as I have seen no reply. Not certain I know how to do it. Anyone here a regular twitter user that can hekp educate us so we can reach out to more folks?
Posted 9/4/2014 4:47 AM (GMT 0)
Dr burascano was a lyme patient
Posted 9/4/2014 5:05 AM (GMT 0)
https://m.youtube.com/watch?v=J0xbjIE8cPM for those wanting to learn twitter I gound a howto video. Looks a bit dated but the steps are probably the same
Posted 9/4/2014 5:12 AM (GMT 0)
Yes, that's why I added him. Ooh, Dr. Martz would be good too.
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