Posted 9/5/2014 2:03 AM (GMT 0)
I appreciate everyone's support and comments. Today was a very hard day for me. So far no additional information. I worked today and I feel when I work and sleep, the pain tends to affect me more. I am not sure why but it affects me more it seems. Current medication has been anti-viral meds (neurologist has me on) which I take 5 pills a day for 1 month and pain medication (which my Doctor prescribed to take 1 every 6 hours) However, I only take as needed. I have been very cautious with the pain medication because I have read about addiction issues and thats one thing my body can't handle. But let me tell you, when I wake up at 3am and watch tv with tears pouring out of the corner of my eyes the pain meds help. Its not so much the severity of the pain because I feel I have a very high tolerance for pain but the constant aching and pain everywhere that drives me nuts. I asked for a refill on my pain meds after 1 month which was for an RX for 20 pills and my Dr. is acting as if he no longer wants anything to do with me. I have to say, I was so confident with this primary but after that first visit he won't answer any questions about my blood work when I call. In fact, after my blood work came back the first time he had his nurse call me and read his lines about possibly having EBV. When I asked her every question I wanted to she had not one answer for anything! She just kept saying well... Dr.. said this and repeating herself. I am so frustrated I want to give up. When you are a human being with a problem that affects your life including sleep, work, my marriage and everything else in my life you just want a doctor to show they are concerned!!!!! Is that so much to ask?? As some of you have recommended regarding a lymes specialist, I contacted the only one here locally and the cost is pretty up there. My husband said I should still pursue setting up an appointment but I am hesitant just because I don't really have solid evidence that I have the Lymes (hoping some of you felt the same way). It worries me to spend this money and it come back negative. I guess I am scared of spending more money, more doctors who don't care and being let down once again. This problem is no bueno :( I miss my sleep and want to be pain free.