seem to be decling some after switch to Minocycline

This is such a confusing, confounding illness. I felt I had some improvements but since hoing on Minocycline once I finally had what I think was a herx then a few really pretty good days then slowing got worse agai . Has this happened to anyone else, seem to make progress on one abx then get change d to another one and feel you went backwards?

Roxie, you likely need to step up your detoxing routine. You can use the things you do for detoxing more often or add in new things.

When switching abx, upping the dose, or using something new and you start to feel worse, then the usual culprit is that you are killing off more bacteria. So the first thing you should do is see if increasing your detoxing will help.

I wonder if you need a different antibiotic because the Mino is not hitting what it needs to hit. I had to come off abx three times last fall and I know what you are saying about the illness returning. You just know that that's what's happening because you feel it coming on all over again. When I could not do antibiotics anymore I switched to silver and it really helped. When I first heard about people doing silver I was totally turned off and afraid of it. Then I ended up in a dead end lane with nothing else to turn to so I tried it and I am so glad I did. I was on it for about a month and made good progress.

"If it were just a detox think I would expect to feel poorly just for a short period of time."

While no one can tell you exactly what's going on and you know your body best - the problem is it's the toxins that the bacteria give off that drive our symptoms, not the bacteria itself. I know that I herxed pretty badly for 3 full weeks when I started my Bartonella treatment.

If you weren't doing too much for detoxing, then this can most likely be remedied by upping your detoxing routine - otherwise, you need to talk with your doc. Mino crosses the blood/brain barrier, so it can produce some strong herxes that will last until you can get the toxin levels in your body down.

Mino was the one abx that I used when I tried the abx route - and it was so potent for me that I was completely over run with toxins, started having seizures, passing out all the time (was lucky to always land on a soft spot), serious issues with cognitive function (couldn't remember hubby's or children's names, couldn't follow written or oral instructions and more), plus my physical symptoms got bad - muscle tremors so bad that my whole body would shake bad enough to "bounce" me off of whatever I sat or laid down on, and more. Mino is a very strong abx for many.

That's why I suggested trying to raise the amount you are detoxing first - if it doesn't help, then you know that it has to do with the medication, if it does - then you just saved yourself an appt with the doctor!

It is all very confusing! We all need something different, or a different amount of something in order to heal, so there is no set protocol to follow. That's why this forum is so wonderful!! We have many here - some that are just starting their journey, others that have almost completed their journey - and you can learn from them all!!

For me, it's my second time around, so you all are just stuck with me!!

Roxie60, I took mino for a few months when I was first in treatment. I remember feeling so dizzy at times I would hold the wall as I walked. I think dizziness is a side effect of mino. If you feel like you can't tolerate the side effects talk to your doc because there are plenty of other abx's to try;)

I will email you the protocol I was on. It also depends on the silver you have. The silver from Purest Colloids is nano silver and does not produce any chemical reactions. There are other silvers on the market that are very good too you just need to make sure that there are actually particles in the product and not just ions. Not all silvers are created equal.