Could it be lyme? I'm getting desperate.

6 or 7 years ago I had a tick bite and got a bullseye rash. I went to the doctor and they said if I started having flu like symptoms I'd need antibiotics for 2 weeks. I felt fine until my son was born 2.5 years ago. When he was born we both had a plethora of infections. We were on 5 antibiotics at once and the fevers didn't stop for 5 weeks. I've been progressively becoming more ill ever since. I got diagnosed with fibro myalgia recently and told I was just depressed. I've been having headaches that make me want to shoot myself in the face. One of my pupils is always bigger than the other and it's hard to focus and I see floaties.. I've been peeing blood that looks like pepper for weeks. My knees and hips hurt all the time and swell up and turn red. I have rashes that come and go on face and chest. I'm humiliated going to any kind of social event because I get so lightheaded I feel like I'm going to pass out and it's really getting to the point where it's too hard to pretend I feel ok. Normal chores feel like the hardest work of my life. Everything hurts.... I used to be super active and always outside. Now I'm a shell of a person hanging on by a thread. It tends to come and go. I can't afford a llmd... I'm scared for the future. I want more kids but I worry about energy. My son had so many problems and I can't put another kid through that.. I need advice. My life is being stolen from me. The only tests that came back weird was a high crp and low c3 and c4. "Borderline" positive for lupus. Anemic and low vitamin d.

Hi
Sorry to hear what you are going through. I am no expert in this but one thing bothered me as I was reading and that was the blood in your urine. It is very hard when you can't afford the right Doctors but sometimes home remedies can help this or that. A can of chopped up asparagus put in your blender until it is like baby food (I add a little mayo for taste) 2 tbls twice a day will work to clean up the kidneys. Lots of water and cranberry juice all day long. You really need to take care of this problem. Of course lot's of good probiotics are a must and look into ways to get the toxic stuff out of your body. Pantothenic acid and enzymes repairs the adrenal gland which sounds like yours is depleted. I suggest you start a monthly chart of good days vrs bad days. also put an H for headaches an R for rashes, etc. See what kind of cycle this is running in. It will help in the long run.

God bless
Nora

Hi Jenuhful,
Welcome to our community!!
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If you haven't already, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists (as Lyme rarely occurs by itself), helpful links and pdf's, how to detox when one has these infections, ​a list of questions that you can ask any doctor that you are seeking treatment from and so much more.

There's really no need to go to any other doctors looking for a diagnosis, unless you need it for yourself. You had a bulls eye rash and now have symptoms. Even though it was years later, it's still Lyme disease, as Lyme is the only thing that causes the bulls eye rash(the skin form of the infection), and the stress of having a baby is what brought it back to life, causing the symptoms.

Are you nursing your little one still? And you don't want to get pregnant until you have resolved these infections - they can be passed to the baby while the mother is pregnant and through breast feeding.

Are you really sure that you can't afford to see a LLMD/LLND? With your urine looking like that, it would be best for you to see a Lyme Literate doctor instead of tackling this on your own. Could you borrow the money from a relative or use something like Care Credit (a credit card for medical expenses only)?

If there really is no way that you can see a LLMD/LLND, then you should get started on self treatment with herbs right away. First thing you need to do is tackle the bladder/urinary issue. I know there are over the counter things you can get for bladder infections and I know that cranberry juice (unsweetened) will help as well.

For tackling the Lyme and other possible tick-borne infections, you can use either Cowden's protocol: www.nutramedix.ec/ns/lyme-protocol

or Buhner's protocols:buhnerhealinglyme.com/

You should get started detoxing as well. As the bacteria die (even on their own), they produce toxins that produce our symptoms. As I said above, we have some great (& inexpensive!!) detoxing suggestions in the "New to Lyme?" thread.

Eat as few processed foods as possible, no sugar, drink at least 64 ounces of lemon water each day and do only what you must so that you can rest - remember you are fighting a horrid infection.

Best of all, you are not alone in this!! We are here to help you find the information you need as you heal!!

Please get to a LLMD. My symptoms flared postpartum as well, and eye floaters are a big symptom for me. You and your LO likely need Igenex testing.

What happened with your kid? Mine almost died, meconium aspiration. He is still sick. Mostly fine- but definately has some issues. He is 2 and will lay in bed half the day holding his head. tylenol doesnt help. the doctors dont believe me that he is hurting.. he is going to the LLMD with me. but he is only 2 and im scared.

For Cowden's protocol, read these:
www.nutramedix.ec/ns/lyme-protocol

www.nutramedix.ec/ns/lyme-protocol/292-condensed-cowden-support-program-summary