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Still getting symptoms after nearly 2 years...

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Posted 10/17/2014 6:45 PM (GMT 0)
Hi all,

I was bitten twice by a tick in my garden 2 years ago. I had 2 bull ring rashes. I only realised something was wrong when I developed Bells Palsy and after googling the causes stumbled across Lyme. I tested positive in December 2012. I had 2 weeks of strong anti biotics and tested false positive in February 2013. I went back to my GP a few months later because my joints were still popping etc. He refused to re test and said you still get symptoms event though the disease has gone.

2 years on and my joints still pop and feel like they will dislocate. My hips and shoulders are worse. My fingers stiffen easily and I have noticed my memory is failing me. Im 32 years old.

Could this still be Lyme related? Is it true that you still get symptoms even though the disease has gone??

Thanks.
Posted 10/17/2014 6:49 PM (GMT 0)
Who determined it was false positive? Your GP?

you need to see a LLMD a.s.a.p.

Sometimes symptoms can linger, come and go for a few months...but not two years!
You were inadequately treated - two weeks is not enough, even for early stage lyme disease.

We can help you find a LLMD - it is really important that you don't rely on your GP or an ID Dr. for lyme disease treatment.
Posted 10/17/2014 6:52 PM (GMT 0)
They said that I was tested too soon after stopping the anti biotic course! Im guessing the test is expensive to do as they are v.reluctant to re do it.

Thanks for that. My memory seems to be getting worse. I left my car keys in the ignition again today when doing the school run!
Posted 10/17/2014 8:32 PM (GMT 0)
Hi Laura,
Two weeks of abx is no where near enough (a minimum of 6 weeks of abx are necessary) for a very slow to replicate bacteria like Lyme disease - the positive test result was because of the abx alright! It made sure that your body was producing a high enough amount of antibodies for the test to pick up - but it was no false positive! The Bulls eye rash proves that you have Lyme disease! That's the skin form of the disease and nothing else will produce a Bulls eye rash - nothing.

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, you can start a new thread titled something like:"Looking for LLMD/LLND in the _______ area." Although you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.

​ You can send me an email by clicking on my screen name or the small blue envelop under my screen name. I have may have contact information for some LLMD's in your area as well.​ Please be sure to include the state and area that you hope to find a LLMD in and I will do my best to find ones as close as possible.


You can email Stephanie at: [email protected] You can also go to: www.turnthecorner.org/ if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link: www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74


​ You can also now email TBDA (Tick Borne Disease Alliance) at [email protected]​
​ and ask for LLMD referrals also.
​

You will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your Lyme journey.www.ilads.org/lyme/ILADS_Guidelines.pdf
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