Bartonella neurological problems.

I was wondering if anyone has any advice on what treatment they use to keep the

extreme bartonella neurological symptoms at bay?

I was diagnosed with Lyme and bartonella clinically (negative blood test results)

and my worst symptoms are neurological symptoms.

These symptoms are headache, neck ache, lower back pain, and a shooting pain

that goes through my spine like my nerve is inflamed.

I am currently taking doxy, rifampin, samento, banderol, cumanda, houttyunia

We
burbur, pinella, magnesium, multi vitamin, turmeric, liposomal vitamin c, milk

thistle, vitamin d, vitamin b12, oreganol p73, and frequent Epsom salt baths.

also, are you detoxing?? how long have you been on this treatment? if you are on the right meds, the pain will subside as the bart gets knocked out.

Hmmmm only rifampin?? This is an LLMD?? Sounds like you may need to find a better Dr - you should not be put in the situation where you are trying to figure out the treatment yourself, you need to be in the care of a Dr who knows what to do!! This is only my opinion, of course, we all need be careful on here of how we make suggestions! How long have you been on the antibiotics for? Have you made any improvements?

Doxy and rifampin is a protocol for bart according to Dr. M. R.

Dr. M.R. protocol is combining rifampin with mino, zithro, or bactrim.
He says you can substitute doxy, or biaxin but the rifampin will decrease the blood levels of both of them.

But, I don't remember what the dosage of each is.

And, for the lyme...you may need a cyst buster.

I live in Charleston, sc. I don't mind you asking. I am thankful for you help and support.

Tons of neurological symptoms. Foot pain in morning. Rifampin made me herx my brains out also. My worst symptom is spinal pain shoulder neck ane head pain. These symptoms came on all of a sudden while hiking the Appalachian trail thru the tick infested north east.

Its a shame because the trail is so beautiful but ticks are everywhere and so hard to spot.

how is there not a cure for this?

I have seen the movie under our skin but I am still baffled at why the cdc and idsa want us to suffer. All of us lymies need to get together and sue those guys.

I will ask about getting a-bart as ive read alot about it. Does a-bart work for BLO (bartonella like organisms)?

Chapelle - you must see that movie...omg...it is sooo good. It gives me shivers just thinking about it. (That's not saying much...I shiver all the time these days...lol)

It's an eye-opener...I can't wait to see the sequel to find out how everyone is doing from the first movie.

The quote of the second movie: "The lie is too big to confess".
And that's about it - how do they back-peddle now??? They are compelled to deny....right? Lives have been ruined...people have died...

lymebarthiker - gotta stay positive! success stories are so important to share on here, because too many people that get better just don't bother coming back, but I don't ever plan to leave this forum especially once I am fully recovered! geez, I can't believe I have posted over a thousand comments on here, Girlie - you are way ahead of me!! LOL

thanks so much for your kind words - well, in short, I got bitten in October 2013, started treatment in February 2014 and really started notice a big improvement I would say in July. So it took a good 5 months. But I was still having issues in July - believe me, I am very active, and I was completely a mess. I couldn't even pick up my 3 year old this past winter. It was aweful. I think I preferred pain over the muscle weakness!!!

hang in there, we are all in this and will all get out of this together!

say, how do I see this movie? it isn't available to rent on Netflix??

I know, I post way too much...I'm a chatterbox...and I'm alone a lot...so it's post here or talk to myself.

You can google Under Our skin. I'll go see if I can get a link for you.

It's over an hour long, maybe close to two hours...you can pause part way through....and go get a kleenex.



topdocumentaryfilms.com/under-our-skin/

hope that link works.
Let us know if you see it...and what you think. I made my husband watch it..and he was glued to the screen.

oh, yes, plenty. I was on doxy alone until I reached 400mg/day. then I added Zithromax. then when the summer came, I switched doxy to Bactrim. I took Bactrim until the end of august, and stopped Zithromax last month.

all the while, I was on the following herbs: Teasel root, and Serrazymes. They are both excellent for lyme. I started AL complex and A-Bart when I started coming off antibiotics.

I was on nystatin tabs and diflucan (only on occasion) to control the yeast due to the antibiotics.

I was also on tons of nutritionals to boost my immune system, including magnesium, vitamin c, Vitamin D, Vitamin B12, probiotics, fish oil, coenzyme Q (excellent for the muscles - I took that on my own). And for detoxing I take alkaseltzer gold and charcoal tabs. I think there is more, but I am going blank. LOL

thanks for the info on the movie, I will take the time to watch it soon enough!!

wellbeautifulspirit - you're definitely not alone. I worry so much about my brain...it was my best feature...my husband could never win an argument...in the old days...but now...I don't even bother...lol.

I believe we will heal with time...including our brains.

We gotta just keep going, fighting...we'll beat this...and remember, we have each other.

that's fine for a probiotic dose, but are you taking any antifungals? is your tongue white?

And no I'm not on any antifungals. My doctor doesn't seem too concerned with this. Like I said I might be switching doctors soon but I have to stay put until I can find another one.