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Anybody with yersinia?

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Posted 10/15/2014 3:26 AM (GMT 0)
I was wondering if somebody was in the same situation: i have chronic lyme with massiv gi problems due to yersinia and i cannot take oral abx as they cause huge problems in the gi tract and i am unable to eat, hardly drink.
If somebody has/had also yersinia, i would be glad for experiences. What were the symptoms? How was the treatment, what type of abx was chosen for how long? What was the reaction for that?
Posted 10/15/2014 5:14 PM (GMT 0)
I just sent an email to one of our Mods who is also dealing with this. She'll be on as soon as she is able to be here to help answer your questions, I'm sure.
Posted 10/15/2014 6:24 PM (GMT 0)
Hi Hornet,

I'm the one :-)
I saw your thread earlier on, but couldn't answer yet.

Yersinia is a difficult one... I still can not entirely wrap my head around it yet, it's complicated.

I had a positive stool test beginning of this year. My llmd then gave me a course of Ofloxacine, but he warned me that it might be more complicated because I got the wrong abx (from another dr) just prior to that.
Then I had a negative PCR test, three months later a positive IgG and IgA test. My dr thinks the infection has gone systemic.
I'm supposed to start IV abx for it in a few weeks.
My main symptoms are (I think, cause it all overlaps eachother): persistent Erythema Nodosum (over 20yrs), persistent gi problems (violent cramps, daily sudden diarrhea, stomach issues (bile reflux, acid reflux, nausea), a lot of air), very intense lower back pain, and probably more, but I'm not sure if it is the Borreliosis, Bartonellosis or Yersiniosis.
This is a very intersting document, about the only one I found about (chronic) Yersiniosis:
www.praxis-berghoff.de/dokumente/infektiologische_differentialdiagnose-engl.pdf
and also this (I have a lot of joint issues..., but I don't know what caused it, since I also have Lyme and Bartonella):
www.ncbi.nlm.nih.gov/pubmed/7960501

I have a suspicion I might have had this infection for a long time. I still need to have a proper discussion about this with my llmd.
So I'm still trying to put some chronology in all of this... I'll certainly have more information after my appointment.

Can I ask you if you are in the US or in Europe (I read you had the LTT Elispot test, hence my question)?
Does your dr think you have chronic Yersiniosis, or an acute infection? If so, and you are in Europe, and able to read German, there are is a German forum that has more information.

If you prefer to email me through pm, you can find my email address by clicking on my name or using the blue envelope under my name.

Marie
Posted 10/16/2014 11:52 AM (GMT 0)
Hi Marie!

Thank you very much for your answer!

I'm from Europe (Hungary), and I had also tested in the infectolab for yersinia (elispot LTT). The value is high! Reference is under 2, and I have 22. The elispot for borrelia was also higher (4, and 5), but the CD57 was normal. I have also neuro symptoms since january (this year).
The lyme history started for me 6 years ago with GI problems: sudden appendicitis-like symptoms, then 2weeks bowel infection, then recurrent right-lower abdominal pain (until now -> sometimes nothing, sometimes very-very painful), then reflux, gatritis, duodenitis. Almost always nausea. And my small intestines hurt like hell sometimes, and I have also diarrhea sometimes.
I went under a lot of gastroenteric examinations, but without real success (only the ones that I listed above, but doctors think it should not indicate these strong symptoms). They suspected Crohn's desease, but did not found evidence.
I do not know which one is yersinia releted, and which one belongs to borrelia.

My doc wants to prescribe levofloxacin, but I do not want to, as it can cause permanent nerve damage...
I read about good results with ceftriaxone+gentamicin, or doxy+gentamicin. I go to my doc today, I'll try to convince her to prescribe the ceftriaxone, as I cannot take oral ABX because of my symptoms (and cefi also good for borrelia). Mr. Schwarzbach from infectolab wrote me that he has good results with three weeks of ciprofloxacin. But it is also a fluoroquinolone (like levofloxacin), and can also cause permanent nerve damage, and neuropathy.

I tried to start a course of minocycline this week (for borrelia), and the result is: after one pill horrible ache in the small intestines for three days, and very hard diarrhea until now, and I was not able to eat anything for two days...

Some links I have found:
http://books.google.hu/books?id=BUVBcNkAdrwC&pg=PA115&lpg=PA115&dq=yersinia+enterocolitica+minocyclin&source=bl&ots=mu5ZMnBb-h&sig=O3QQTHIqJfd85YIZkdZjCTOVDZ4&hl=hu&sa=X&ei=9g09VJ6WJo_maIjWgagN&ved=0CGcQ6AEwCQ#v=onepage&q=yersinia%20enterocolitica%20minocyclin&f=false

http://en.wikipedia.org/wiki/Yersinia_enterocolitica


So, the ofloxacine did not help you? How long did you take it? As I know this is also a fluoroquinolone.
Posted 11/1/2014 5:46 PM (GMT 0)
Hi everyone,

I've posted in a couple of places because there doesn't seem to be one place for Yersinia. I would really like to more about treatments people have had, and any progress they've made as a result.

Thanks,

Mark
Posted 11/1/2014 6:09 PM (GMT 0)
Hi Marksi,
Welcome to our community! Is Yersinia the only infection you believe you have?

It's not something that many seem to have, so your idea of posting in many places is a good one! I know that Marie will respond to your email just as soon as she can. She's been out with an injury, but she still not only watches the forum, but answers her emails.

I hope you find the information you need in order to heal from this infection!!
Posted 11/1/2014 11:04 PM (GMT 0)
Hi Mark,

Welcome to the forum!

I'm sorry that the conversation wasn't finished here, but I'm planning to post again, after my appointment with my llmd in about a week. I hope he'll have answers on a lot of my questions.

I received your pm, and will reply after this. But I will come back to the forum to post what I'll know after the appointment, cause this coinfection is a nasty one, with very little information to be found. I found a German forum that has some information on it, but I need to talk it through with my dr first.
There are more and more people having issues with this infection and there is so little info on it, we're all in the dark... I get more and more messages about it...

Marie
Posted 11/2/2014 3:27 AM (GMT 0)
I've just been tested for it.

Apparently, it exists in the U.S. as well.

I'll let all of you know how it goes.

Margaret
Posted 11/2/2014 4:38 PM (GMT 0)
There are different strains of Yersinia - does anyone know what strain they have? Now I'm curious and would like to read a bit on it, but I would like to know which strains are most likely?
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